Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,900 members•53,259 posts

All posts for July 2024

Rant - so fed up

Just here for a very long rant and to see if anyone can offer any suggestions going forward.Still no diagnosis (all endo symptoms) pain started Mar22, had an...

Just here for a very long rant and to see if anyone can offer any suggestions go...

Jollie93

•4 months ago

14 Replies

had prostrap today what to expect

hi same as title what’s my side effects and what did u guys have as.m side effects .. any advice would help thanks x

hi same as title what’s my side effects and what did u guys have as.m side effec...

Sara0102

•4 months ago

17 Replies

Pelvic / hip nerve pain - how to get diagnosis?

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really struggling with hip joint pain / pain down right thigh (over last 18 months)...

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really s...

GWP81

•4 months ago

8 Replies

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holiday insurance

I have informed my insurers that I have Endo. Since taking out the policy, I have undergone a diagnostic laparoscopy so know more details as to the what is...

I have informed my insurers that I have Endo. Since taking out the policy, I hav...

Bakewey

•4 months ago

2 Replies

Recent Diagnosis, and finding it all a bit overwhelming

Hello! I had a laposcropy yesterday and was told I had severe, deep infiltrating endo. Particularly they were worried how close it had come to my kidneys. I'm...

Hello! I had a laposcropy yesterday and was told I had severe, deep infiltrating...

PanicAtTheHorizon1

•4 months ago

9 Replies

dineogest & bloating!!

I’ve been on dineogest 4 months, the start was a rocky road but things settled June time, I was still having bleeding on and off several weeks but I felt soo...

I’ve been on dineogest 4 months, the start was a rocky road but things settled J...

Markie16

•4 months ago

6 Replies

PIP payments with endometriosis and adenomyosis

Hi, I’ve recently been diagnosed with endometriosis and adenomyosis after 7 years of severe pelvic pain. I’m struggling to maintain my usual working hours...

Hi, I’ve recently been diagnosed with endometriosis and adenomyosis after 7 yea...

Derekthebunny12

•4 months ago

5 Replies

pelvic pain

hi. I was diagnosed with Endo last year and had a total hysterectomy in November 2023, everything removed. I’m on estrogen only hrt. last Thursday I had...

hi. I was diagnosed with Endo last year and had a total hysterectomy in Novembe...

Emsie971

•4 months ago

40 Replies

6 months post op - periods still excruciating..!

How long until the pain for your periods stopped being as bad as before the operation? I allowed the first few as I figured my body was healing, but my op was...

How long until the pain for your periods stopped being as bad as before the oper...

BlueLabrador2702

•4 months ago

10 Replies

Bowel shaving/resection and hysterectomy. Anyone had surgery for these together in one surgery?

Hi all. I am 46 years old, stage 4 deep infiltrating endo and possibly adenomyosis, had previously an excision surgery to remove chocolate cysts in my 20s. I...

Hi all. I am 46 years old, stage 4 deep infiltrating endo and possibly adenomyos...

jen2023

•4 months ago

11 Replies

No treatment

Hi all, I just wonder if there are others there who have gaps in between referral, diagnosis and surgery with no treatment? I stopped taking contraceptives...

Hi all, I just wonder if there are others there who have gaps in between referr...

Kedii

•4 months ago

6 Replies

post hysterectomy

hey! I’m 10 weeks post op, I had a few complications, hematoma and infection, bowel issues too as they got endo off there but I’ve just had a scan and the...

hey! I’m 10 weeks post op, I had a few complications, hematoma and infection, b...

Keke123

•4 months ago

2 Replies

Duloxetine

Hello team, Has anyone had duloxetine prescribed for pain management? I am struggling with side effects and having a big flare up after starting pro strap...

Hello team, Has anyone had duloxetine prescribed for pain management? I am str...

PotatoSalad

•4 months ago

9 Replies

yellow stools

Hi all, so for the last two months I’ve been having yellow diarrhea a week after my monthly period alongside a very sore stomach which last for a couple of...

Hi all, so for the last two months I’ve been having yellow diarrhea a week afte...

Smiley2022

•4 months ago

4 Replies

MRI - scan - symptoms worsening

Hi all,I have stage 3 endo with ovarian cysts diagnosed with a lap in 2022. I then gave birth to my son sept 23. Ever since my son (who i absolutely love to...

Hi all,I have stage 3 endo with ovarian cysts diagnosed with a lap in 2022. I th...

Booknerd1598

•4 months ago

22 Replies

Let’s just say it - Endo Rectal Pain and Vag Pain every month

Hi all, any tips on how to relieve or what provides some comfort for this specific type pain?? Shooting pains that go up and general ache/cramp feeling....

Hi all, any tips on how to relieve or what provides some comfort for this specif...

Pennyheart1

•4 months ago

7 Replies

Advice, please Hysterectomy or not?

10 weeks ago I had a diagnostic key hole procedure. It confirmed stage 4 endometriosis, multi fibroid uterus and on fibroid on cervix , frozen pelvis,...

10 weeks ago I had a diagnostic key hole procedure. It confirmed stage 4 endomet...

Bakewey

•4 months ago

28 Replies

help - anyone have this

hi I have an endometrioma in my right ovary and it causes pain - especially in my hip, any way today the pains so bad that everytime I put my foot down it’s...

hi I have an endometrioma in my right ovary and it causes pain - especially in m...

Scoops22

•4 months ago

6 Replies

Second diagnosis of Adenomysis and having a hysterectomy.

Hello to all that reads this...I had surgery last year to remove endometriosis, losing an ovary and fallopian tube. At the time, I was made aware I had...

Hello to all that reads this...I had surgery last year to remove endometriosis, ...

Finechina

•4 months ago

17 Replies

Stage 4 - Kissing Ovaries - Surgery NI Options

Hi all! I have stage 4 endo with kissing ovaries. Age 37 and have been trying to conceive for 7 years. Never been pregnant. Surgery wise I have only ever had a...

Hi all! I have stage 4 endo with kissing ovaries. Age 37 and have been trying to...

Behind_Hazel_Eyes

•4 months ago

3 Replies

5 months after hysterectomy

why have I started having severe lower pain back 5 months after hysterectomy?

Baabhyder

•4 months ago

4 Replies

Anyone out there a vet/vet nurse?

Hi, I have confirmed endometriosis (and until a hysterectomy last year, adenomyosis too). I’m waiting for an MRI to ascertain if there’s anything else...

Hi, I have confirmed endometriosis (and until a hysterectomy last year, adenomy...

Saffie123

•4 months ago

5 Replies

Diagnosed and feeling lost

TW: talk of fertility Today, I got my MRI results. Kissing ovaries, obliterated pouch of Douglas, various cysts and adhesions... The list seemed to go on and...

TW: talk of fertility Today, I got my MRI results. Kissing ovaries, obliterate...

UncreativeUsername1

•4 months ago

16 Replies

hi advice needed please someone reply

hi there I signed the theatre form for a hysterectomy but after researching so much I think I just want the endo removed and I don’t want a hysterectomy.. how...

hi there I signed the theatre form for a hysterectomy but after researching so m...

Sara0102

•4 months ago

3 Replies

Consultant said “get pregnant or have a hysterectomy “

So I’ve had Endo since 2019 and after covid had no option but to have surgery because the pain was unbearable and i do not have a high pain tolerance. I was...

So I’ve had Endo since 2019 and after covid had no option but to have surgery be...

Lola-cat

•4 months ago

10 Replies

Coil and ultrasound

so I had my ultrasound last week and today they have called and say they think it’s best for me to get the coil to help manage my pain and bleeding. im just...

so I had my ultrasound last week and today they have called and say they think i...

Ca1t7yn

•4 months ago

4 Replies

Anyone tried Noriday pill?

Hi has anyone tried Noriday mini pill and how did you get on with it? I’m still having heavy periods each month on the Desogestrel/Cerazette and wondering if...

Hi has anyone tried Noriday mini pill and how did you get on with it? I’m still ...

mistygrey

•4 months ago

1 Reply

endo- advice wanted

hi all! Recently had an ultrasound and my ovary is attached to my uterus and scarring actually very visible on the scan. I’m waiting to see a specialist - I...

hi all! Recently had an ultrasound and my ovary is attached to my uterus and sca...

Elisheva85

•4 months ago

7 Replies

Is an MRI beneficial?

Hello all, following on from my previous post I am now debating getting a second opinion, but also I have never had an MRI performed and due to having back...

Hello all, following on from my previous post I am now debating getting a second...

rach3110

•4 months ago

10 Replies

Upcoming Endo surgery advice

Hi there I have stage 4 endo and due to have endo surgery, stoma reversal, bowel resection and partial bladder removal. This will be my first Endo surgery...

Hi there I have stage 4 endo and due to have endo surgery, stoma reversal, b...

Meandmyendo

•4 months ago

6 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for July 2024

Rant - so fed up

had prostrap today what to expect

Pelvic / hip nerve pain - how to get diagnosis?

holiday insurance

Recent Diagnosis, and finding it all a bit overwhelming

dineogest & bloating!!

PIP payments with endometriosis and adenomyosis

pelvic pain

6 months post op - periods still excruciating..!

Bowel shaving/resection and hysterectomy. Anyone had surgery for these together in one surgery?

No treatment

post hysterectomy

Duloxetine

yellow stools

MRI - scan - symptoms worsening

Let’s just say it - Endo Rectal Pain and Vag Pain every month

Advice, please Hysterectomy or not?

help - anyone have this

Second diagnosis of Adenomysis and having a hysterectomy.

Stage 4 - Kissing Ovaries - Surgery NI Options

5 months after hysterectomy

Anyone out there a vet/vet nurse?

Diagnosed and feeling lost

hi advice needed please someone reply

Consultant said “get pregnant or have a hysterectomy “

Coil and ultrasound

Anyone tried Noriday pill?

endo- advice wanted

Is an MRI beneficial?

Upcoming Endo surgery advice

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