Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,847 members • 52,603 posts

All posts for July 2024

post surgery issues

I have fought for endometriosis to be diagnosed and finally got diagnosed 13 years later in January. I had a laparoscopy. They found stage 2 endometriosis and...

I have fought for endometriosis to be diagnosed and finally got diagnosed 13 yea...

EndoQueen2895

•17 hours ago

2 Replies

My first Laparoscopy is tomorrow i’m so scared

i’m having my diagnostic/ excision lap in the morning and i am so scared, just TERRIFIED that they won’t find it. my consultant said he specialises in endo and...

i’m having my diagnostic/ excision lap in the morning and i am so scared, just T...

velvetonion

•17 hours ago

1 Reply

Tibolone or sequential hrt?

I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone...

I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I hav...

Mindfullness4791

•1 day ago

2 Replies

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Mirena trial or straight to laparoscopy?

Hi! So I finally got to see a gynaecologist and she’s said it’s very likely that the ‘free fluid’ in my pelvis is blood from endometriosis but obviously...

Hi! So I finally got to see a gynaecologist and she’s said it’s very likely ...

Endo_suspected

•1 day ago

3 Replies

Try Mirena again or hysterectomy

hello! My life has been upside down for nearly a year now since having debilitating pain from endometriosis and suspected Adenimyosis (although they haven’t...

hello! My life has been upside down for nearly a year now since having debilita...

Sarah-lou77

•1 day ago

1 Reply

Mirena Coil Fit

Afternoon all, I had my coil fitted on Wednesday, been in absolute agony since considering I’m taking strong pain killers. I am waiting gynaecology still, I...

Afternoon all, I had my coil fitted on Wednesday, been in absolute agony since ...

Stitch22x

•2 days ago

10 Replies

TCRE anyone?

I've been put on the list for a TCRE. I'd never heard of it until my hysteroscopy appointment yesterday. Can anyone share their experiences with this...

I've been put on the list for a TCRE. I'd never heard of it until my hysteroscop...

TallulaShark

•2 days ago

Be the first to reply

Hi all!! New here and just want advice!

Hi So I have recently been diagnosed with Adenomyosis and am currently at the end of my 3 rd month on postal 3 injection. I just wanted to speak to you guys...

Hi So I have recently been diagnosed with Adenomyosis and am currently at the en...

cherrylake22

•3 days ago

3 Replies

Tips for quicker appointments

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and have been recovering these past few weeks - they removed several sections. I...

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and ...

SalukiSwift

•3 days ago

6 Replies

Rectal endo post surgery

Hi all, I had surgery about 2 months ago, had endo on my bowel, large nodule, and adhesions. Even the consultant said my case is very complex. I keep feeling a...

Hi all, I had surgery about 2 months ago, had endo on my bowel, large nodule, an...

Becs1490

•3 days ago

1 Reply

back from hospital

hello everyone, I hope you are all as well as you can be. I would like some advice please if anyone can help. My medical history is fibromyalgia,...

hello everyone, I hope you are all as well as you can be. I would like some adv...

Wumm

•3 days ago

6 Replies

Adenomyosis and endometriosis and the mirena

Hello all! I have officially given up trying for a baby now and have decided to have the mirena coil fitted again. My question is, has anyone had it fitted...

Hello all! I have officially given up trying for a baby now and have decided to ...

Field20

•3 days ago

7 Replies

Management Advice Endo & Adeno stage4

Hi everyone, I am new to this but many years of experience. Endo stage 3, diagnosis at 19, several operations, Adeno diagnosis at 42 am now 53. I want to let...

Hi everyone, I am new to this but many years of experience. Endo stage 3, diagno...

Serenechaos

•3 days ago

4 Replies

After Hysteroscopy Update

Hi all, had a hysteroscopy Friday for mirena coil instertion as my uterus is tilted. Was a pretty brutal experience, managed to grin and bare it though and...

Hi all, had a hysteroscopy Friday for mirena coil instertion as my uterus is til...

PunkyPeanutButterCup

•4 days ago

3 Replies

Back home & overthinking

After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my...

After 12 days in hospital I am back home. I now have to wear morphine patches, (...

Faylen34

•4 days ago

3 Replies

new here !!

hi guys I’m new here Im 18 and just recently been diagnosed with endometriosis after 8 years of suffering and being turned away , I’ve been in and out of...

hi guys I’m new here Im 18 and just recently been diagnosed with endometriosis a...

Kayleigh1x

•4 days ago

13 Replies

Most recent laparoscopy came back negative, feel so invalidated and down, please help

Hello all, I'm quite late to the party but after my most recent laparoscopy yesterday, I feel very deflated and invalidated. I'm sorry for the long post but...

Hello all, I'm quite late to the party but after my most recent laparoscopy yest...

rach3110

•4 days ago

6 Replies

Lap booked - should I have the mirena coil?

Hi everyone, I've got my first lap booked for end of August and they say they can also put in the mirena coil during this. I'd love to hear people's...

Hi everyone, I've got my first lap booked for end of August and they say they ca...

GlumDumpling

•4 days ago

5 Replies

Hemorrhage bleeding

Please help I'm in so much pain is this normal when I stand up blood flows out of me over the pad I'm losing alot of blood is this normal it seems to be every...

Please help I'm in so much pain is this normal when I stand up blood flows out o...

Lynnsashalily

•4 days ago

6 Replies

advice for adenomyosis

Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I...

Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 20...

cantdeal

•5 days ago

6 Replies

Zoledex and menopause

Does anyone still experience flare ups and what menopause symptoms.Im 4 injections now and had a rough 2 months but kept till the 3rd and had a good month....

Does anyone still experience flare ups and what menopause symptoms.Im 4 injectio...

Chartolfrey

•5 days ago

8 Replies

can someone advice me on pros trap please

hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my ovaries … I am 31 and until then have been offered prostrap.....

hi there I have been told to go on oristrao until I have my hysterectomy but the...

Sara0102

•5 days ago

10 Replies

MRI - buscapan and contrast dye

Hey guys, I have an MRI this week where I will have a cannula for both buscapan and contrast dye. Anyone who has had these were there any side effects after?...

Hey guys, I have an MRI this week where I will have a cannula for both buscapa...

Oneday_

•6 days ago

7 Replies

Abdominal wall endometriosis help

Suspected endometriosis in several areas, including my bowel, abominal wall, pocket of douglas, was supposed to have a diagnostic laparascopy but it was...

Suspected endometriosis in several areas, including my bowel, abominal wall, poc...

ceilidht

•6 days ago

2 Replies

I've been told I am 'too young' for surgery/diagnosis.

Hi girls, I've got 'suspected endometriosis' and would like to clarify some things. I've always had severely painful, heavy, and irregular periods but in the...

Hi girls, I've got 'suspected endometriosis' and would like to clarify some thin...

jasminep

•6 days ago

7 Replies

Just here for a rant about no diagnosis...

I'm just so frustrated, I have every possible symptom of Endometriosis as well as severe and widespread adhesions as found at my lap. How can it not be Endo?...

I'm just so frustrated, I have every possible symptom of Endometriosis as well a...

TallulaShark

•6 days ago

8 Replies

Advice/Help

Hi all, I'm just looking for some advice please? I'm due to go in for a Laparoscopy next week, I've had heart surgery in the past but, I'm really nervous...

Hi all, I'm just looking for some advice please? I'm due to go in for a Laparos...

Lollipoprose

•6 days ago

3 Replies

My recent Hysteroscopy

Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it...

Hello I posted a short while ago about my upcoming hysteroscopy. Just to updat...

pickles36

•6 days ago

12 Replies

A bit shell shocked by Hysterectomy recommendation

I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see...

I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. I...

Charlamine2023

•6 days ago

5 Replies

Symptoms worse after internal exam

Hey :) new here!I have had my endometriosis removed with surgery before (about 10 years ago) and I have been blessed to have 3 children since then. Anyway I...

Hey :) new here!I have had my endometriosis removed with surgery before (about 1...

Bumblebee11

•7 days ago

2 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for July 2024

post surgery issues

My first Laparoscopy is tomorrow i’m so scared

Tibolone or sequential hrt?

Mirena trial or straight to laparoscopy?

Try Mirena again or hysterectomy

Mirena Coil Fit

TCRE anyone?

Hi all!! New here and just want advice!

Tips for quicker appointments

Rectal endo post surgery

back from hospital

Adenomyosis and endometriosis and the mirena

Management Advice Endo & Adeno stage4

After Hysteroscopy Update

Back home & overthinking

new here !!

Most recent laparoscopy came back negative, feel so invalidated and down, please help

Lap booked - should I have the mirena coil?

Hemorrhage bleeding

advice for adenomyosis

Zoledex and menopause

can someone advice me on pros trap please

MRI - buscapan and contrast dye

Abdominal wall endometriosis help

I've been told I am 'too young' for surgery/diagnosis.

Just here for a rant about no diagnosis...

Advice/Help

My recent Hysteroscopy

A bit shell shocked by Hysterectomy recommendation

Symptoms worse after internal exam

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