I am completely desperate with my on goin... - Endometriosis UK

Endometriosis UK

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I am completely desperate with my on going issues

HEDGEHOGlady0626 profile image
1 Reply

Good evening, this may be a long message so please bare with me I have alot to say but I will be as brief as possible.

I have been suffering with mental health issues since i was due to how severe mine are.

The gynaecology issues started when I started my period, all of the normal symptoms. I left it for years until I finally got told it was normal and to go to the doctors after years of tests I had my first lacroscopy in dec 2020.

My surgeon didn't know what he was doing and has lied to me about what happened on the table several times soon still not 100% on what happened there.

I was told it was attached to lots of areas aswell as my colon. Here is where I need your help.

I'm having extremely difficult bowel issues which feels like I'm breaking through a mass the size if a golf ball about 10cm up my bowel and its agonising.

I also passed 2 date/prune size masses that looked like endo. I've tried calling 111 they aren't concerned and neither is my partner but my pain is a 9 out of 10 and I pride myself on my pain threshold.

Anything you ladies would suggest please?

So much love xx

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HEDGEHOGlady0626 profile image
HEDGEHOGlady0626
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AllthatGlitters profile image
AllthatGlitters

Hi I didn’t want to read and run. Can you see a different doctor and list all of the things that is wrong with you and maybe day your symptoms match endometriosis?

Are you able to get an urgent appointment at your surgery like today!! Due to the pain you are in.

If not, if your pain is too much to handle go to A&E. lots of us including myself have been in A&E several times due to pain.

I was told for years my symptoms were IBS, it took for me to move to a new area and become extremely ill and I registered with a new practice and I was taken seriously.

Sending you a hug, I know how hard this is. I have a high pain threshold but with endometriosis and adenomyosis the pain is labour like, horrific and unbearable.

Please PM if you need a chat 💗

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