Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for April 2021

Endometriosis Book Recommendations?

Fancy doing some reading and would love some recommendations 😊

Kimmeka

•3 years ago

10 Replies

CA-125 Blood Test Experiences and Thoughts ?

I’ve had a blood test for markers of endometriosis imagine its the CA-125. Which can be done to see if you have an elevated level of a certain blood protein,...

I’ve had a blood test for markers of endometriosis imagine its the CA-125. Whic...

Kimmeka

•3 years ago

7 Replies

first face to face consultation with gynae

rant/ vent, so had my first face to face consultation with consultant today he was 45 minutes late to see me then said my bloods were fine and no endo markers...

rant/ vent, so had my first face to face consultation with consultant today he w...

siren1

•3 years ago

4 Replies

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Has anyone ever done the CA125 test? I just did mine. The results are hight above the normal. Going to see the gynea. Should i be worried???

CA125 is a tumormarker test

GCLS

•3 years ago

10 Replies

Glow period tracker

Hi! I've been using Glow on Android for about 5/6 months now and it's been invaluable in helping me give information about my symptoms to the gynecologist. I...

Hi! I've been using Glow on Android for about 5/6 months now and it's been inval...

CryBaby91

•3 years ago

9 Replies

Sky Dive for Endometriosis UK! :)

Hey everyone! I'm doing a 15,000 feet sky dive to raise money for Endometriosis UK in a few weeks. To support this bad decision I'd appreciate it if you could...

Hey everyone! I'm doing a 15,000 feet sky dive to raise money for Endometriosis ...

Chapter73

•3 years ago

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Endo after hysterectomy

I had a total hysterectomy and removal of ovaries and tubes 4 years ago. I’m in constant severe pain. I have 8 laxido a day, still backed up. My hips are...

I had a total hysterectomy and removal of ovaries and tubes 4 years ago. I’m in ...

Lindsey1976

•3 years ago

6 Replies

Rectal clinic/bowl specialist referral after endo diagnosis and laparoscopy

Hey everyone, I had a laparoscopy at the end of February to remove an ovarian cyst and to remove most of my endometriosis. After that I am now no longer under...

Hey everyone, I had a laparoscopy at the end of February to remove an ovarian cy...

greenleaf1997

•3 years ago

1 Reply

Feeling frustrated

Just to give some background I'm 19 years old and I have severe period pain. I had a scan in 2019 which revealed that my ovary was lower down than it should be...

Just to give some background I'm 19 years old and I have severe period pain. I h...

gracie2201

•3 years ago

1 Reply

endometriosis

Does anyone recommend any natural remedies for endometriosis?

chalky96

•3 years ago

2 Replies

So I got so fed up of being fobbed off I booked a private Ultrasound this Sunday!

So I’m still no better.. 6 months on! My left side is massive! Emptying my bowels makes me want to throw up! Plagued by more rashes! Lost more weight! Not...

So I’m still no better.. 6 months on! My left side is massive! Emptying my bowel...

Heloo85

•3 years ago

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Painful & Prolonged Period After Lap + Mirena

Hey all. Any insight on this would be really helpful. I had my first laparoscopy with a specialist consultant in Ireland, alongside excision of stage 2 endo...

Hey all. Any insight on this would be really helpful. I had my first laparoscopy...

sarahemmahughes

•3 years ago

2 Replies

Benefits entitlements

Hi I'm currently on ssp and been off since 22nd December. However I didn't start claiming till 11th January, 2021. I'm still get excruciating pains every...

Hi I'm currently on ssp and been off since 22nd December. However I didn't star...

Jasmin24

•3 years ago

2 Replies

What would you do?

I believe I have endometriosis but still have to be diagnosed, I have had 2 c-section and since the second my pain has been awful but I would like another...

I believe I have endometriosis but still have to be diagnosed, I have had 2 c-se...

Mic1810

•3 years ago

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Negative Pelvic Ultrasound Results.

Please could I have some advice. Since December I have been experiencing some strange symptoms which are not normal for me. I am pretty sure they are related...

Please could I have some advice. Since December I have been experiencing some st...

budgie12

•3 years ago

3 Replies

I’m unsure?

Hi, I’ve recently come off my pill and get really bad period pains when my periods starts. (this was one of the reasons I went on the combined pill). Im...

Hi, I’ve recently come off my pill and get really bad period pains when my peri...

SocialFairy

•3 years ago

1 Reply

Laparoscopy experience

I have been referred for a diagnostic laparoscopy for suspected endometriosis, and was just wondering how long others took to recover before going back to work...

I have been referred for a diagnostic laparoscopy for suspected endometriosis, a...

alicexmae

•3 years ago

14 Replies

Zoladex and Tibolone

Hi everyone! I’ve (finally!) been offered a different treatment for my endometriosis! They won’t do another lap because I had one 4 years ago and they said...

Hi everyone! I’ve (finally!) been offered a different treatment for my endometr...

EndoG

•3 years ago

1 Reply

Dept health consultation for us to complete

There’s a consultation being run on women’s health by the department for health and social care, I’ve completed it on my experiences with endo, might be worth...

There’s a consultation being run on women’s health by the department for health ...

MagicTea

•3 years ago

2 Replies

Sanitary pads help for endo

Hi ladies, I was diagnosed with endo in 2014, I suffer from horrible ovulation pain, migraines, pelvic pain and PMS. In general I am in pain when on my...

Hi ladies, I was diagnosed with endo in 2014, I suffer from horrible ovulation p...

Chegotsi

•3 years ago

2 Replies

Breast pain (only right breast) and endo (diaphragmatic)

I’d experience breast pains and tender breasts regularly during PMS, period and ovulation but over the past few weeks I developed a pain in my right breast...

I’d experience breast pains and tender breasts regularly during PMS, period and ...

monika-me

•3 years ago

2 Replies

Endo clinics in Hampshire and London

Hello, I'm currently under the care of a Gynae in Cardiff and just started treatment for endo ( Prostap). We're moving to Hampshire at the end of May and my...

Hello, I'm currently under the care of a Gynae in Cardiff and just started trea...

Aussie79

•3 years ago

8 Replies

Has anyone got any tips for leg pain?

I am unsure if its endometriosis or adenomyosis related but, over the last few weeks my leg pain has gotten soo much worse. I suffer from the heaviness and...

I am unsure if its endometriosis or adenomyosis related but, over the last few w...

JadeH92

•3 years ago

22 Replies

Picolax before bowel resection

Does anyone know what sort of dietary changes I need to do before taking Picolax for bowel resection surgery? I've just been given the medicine with...

Does anyone know what sort of dietary changes I need to do before taking Picolax...

theneverendostory

•3 years ago

20 Replies

Fleshy lump after laparoscopy

I no this is infected got antibiotics a few days ago have they made me a new belly button as I had and inny before nothing in there at all or this caused by...

I no this is infected got antibiotics a few days ago have they made me a new bel...

Staycb891

•3 years ago

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Laparoscopy-reopened c - section scar

Had my laparoscopy, excision, cysctcopy and hysterocopy just over a week ago. My scars from the laparoscopy are healing fine but during the surgery they had to...

Had my laparoscopy, excision, cysctcopy and hysterocopy just over a week ago. My...

Titch1908

•3 years ago

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Umbilical bleeding still waiting for op

I am still yet to be seen for my larcascopy to determine whether I have umbilical endrimitriotious, it’s been over a year now and I’m still just being left in...

I am still yet to be seen for my larcascopy to determine whether I have umbilica...

KiteRunner123

•3 years ago

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Breakthrough Endometriosis in The NY Times

Hello everyone Thought I'd spread some positive endometriosis news, as there so rarely is any! The NY Times published the article below yesterday. I know it...

Hello everyone Thought I'd spread some positive endometriosis news, as there so ...

Chapter73

•3 years ago

1 Reply

Migraines

Hi, Last year when I was on zoladex I would get seem to get a migraine nearly every month when I should be due on but obviously because of the zoladex I did...

Hi, Last year when I was on zoladex I would get seem to get a migraine nearly ...

Xroisinellenx

•3 years ago

2 Replies

Post-laparoscopy follow-up

Hi everyone, I had a laparoscopic excision of an endometrioma last week. It was a bit weird - the 10cm endometrioma wasn’t attached to my ovaries, but it was...

Hi everyone, I had a laparoscopic excision of an endometrioma last week. It was ...

SparklePig

•3 years ago

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2021

Endometriosis Book Recommendations?

CA-125 Blood Test Experiences and Thoughts ?

first face to face consultation with gynae

Has anyone ever done the CA125 test? I just did mine. The results are hight above the normal. Going to see the gynea. Should i be worried???

Glow period tracker

Sky Dive for Endometriosis UK! :)

Endo after hysterectomy

Rectal clinic/bowl specialist referral after endo diagnosis and laparoscopy

Feeling frustrated

endometriosis

So I got so fed up of being fobbed off I booked a private Ultrasound this Sunday!

Painful & Prolonged Period After Lap + Mirena

Benefits entitlements

What would you do?

Negative Pelvic Ultrasound Results.

I’m unsure?

Laparoscopy experience

Zoladex and Tibolone

Dept health consultation for us to complete

Sanitary pads help for endo

Breast pain (only right breast) and endo (diaphragmatic)

Endo clinics in Hampshire and London

Has anyone got any tips for leg pain?

Picolax before bowel resection

Fleshy lump after laparoscopy

Laparoscopy-reopened c - section scar

Umbilical bleeding still waiting for op

Breakthrough Endometriosis in The NY Times

Migraines

Post-laparoscopy follow-up

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