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Endometriosis UK

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partial blindness, tremors and migraines from the mini pill

As the title says. 90% of the above symptoms stopped when I stopped using the pill in question. So, for those of you who are predisposed to migraines, what...

As the title says. 90% of the above symptoms stopped when I stopped using the pi...

AnnaMae

•2 days ago

4 Replies

Has anyone found antidepressants help with the pain?

Hi all, I'm new here. I have had painful periods since they began when I was 11. I think my endometriosis was masked for years when I went on the contraceptive...

Hi all, I'm new here. I have had painful periods since they began when I was 11....

Summerhappiness

•10 days ago

12 Replies

Zoledax for endo treatment (induced menopause)

Hey on my 2nd round of zoledax treatment. 1st stint was 6 months.2nd stint so far I'm at 2 months. What are peoples experience on this treatment? Anyone had...

Hey on my 2nd round of zoledax treatment. 1st stint was 6 months.2nd stint so fa...

Chronic21

•26 days ago

3 Replies

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Help with first steps

Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now 49) I have finally had a ‘vague’ diagnosis of deep endo following an MRI. The...

Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now...

TandE

•1 month ago

6 Replies

will Norfolk and Norwich endometriosis clinic see private patients?

it’s the nearest specialist clinic to me but I don’t know if they see patients privately? I know the general hospital can see private patients but I’m...

it’s the nearest specialist clinic to me but I don’t know if they see patients p...

pinkie25

•1 month ago

2 Replies

is everyone else not getting diagnosed or much treatment?

I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the...

I’ve had severe period pain for years, when I wasn’t taking painkiller in time I...

pinkie25

•3 months ago

18 Replies

Tilted Uterus and Mirena Coil

Just wondering how many of you have been told you have a tilted uterus and that it'll be hard to fit the mirena coil. Saw my gyne back in November, he has...

Just wondering how many of you have been told you have a tilted uterus and that ...

PunkyPeanutButterCup

•3 months ago

11 Replies

anyone used myovvii device ?

hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it...

hello everyone, curious to find out if any of you have used the myovvii device...

Virginia10

•4 months ago

11 Replies

Bleeding 3 weeks on desogesterel

I have been taking Desogesterel since March and at first it was fine, I still had a monthly bleed on it which was not painful. In July I discussed future...

I have been taking Desogesterel since March and at first it was fine, I still ha...

Mushroom40

•4 months ago

6 Replies

Lack of concentration & feeling uncomfortable on Prostap

Hello, I'm hoping someone can recommend something I can take to help with lack of concentration and feeling uncomfortable in your skin on Prostap? I've been...

Hello, I'm hoping someone can recommend something I can take to help with lack...

Womble84

•7 months ago

Be the first to reply

Prostab monthly injections for endometriosis

Hi just wanted to ask whether anyone is experiencing an increase in facial hair after taking prostab injection with hrt patches I have had 4 injections so far...

Hi just wanted to ask whether anyone is experiencing an increase in facial hair ...

Deedee112345

•10 months ago

4 Replies

Consultant recommendations

Hi, I'm having a bit of a dreadful time with Endo - pain and loads of associated symptoms (fatigue, migraine, faintness) getting so much worse I have made...

Hi, I'm having a bit of a dreadful time with Endo - pain and loads of associat...

Misss_r3d

•11 months ago

9 Replies

Decapeptyl and bone thinning

A quick summary of my journey so far: I was diagnosed with extensive endometriosis in October 2015. I have had two surgeries to removed cysts and...

A quick summary of my journey so far: I was diagnosed with extensive endometrio...

tiger6

•1 year ago

Be the first to reply

What is your experience of novasure endometrial ablation?.

Hi 😊 I've had a crap time with endometriosis (like everyone here) Im due to have bilateral endometriomas removed and ablation followed by Mirena coil...

Hi 😊 I've had a crap time with endometriosis (like everyone here) Im due to ha...

NikkiJR

•1 year ago

28 Replies

Guardian Articles on Endo

Saw these in The Guardian this morning -...

bluebug

•1 year ago

2 Replies

Prostap isn't helping anymore

Hello. I'm new here and just have a question about Prostap.I was diagnosed with endo around 13 years ago, and currently on my third round of Prostap...

Hello. I'm new here and just have a question about Prostap.I was diagnosed with ...

Hidden

•1 year ago

3 Replies

prostap and tibolone - pelvis pain and night sweats

I’ve had three prostap injections, started tibolone at the same time, had heavy bleeding after first injection but none since. My pelvis pain is getting severe...

I’ve had three prostap injections, started tibolone at the same time, had heavy ...

Tootie2008

•1 year ago

4 Replies

Dr Khazali sciatalgia

Hi everyone.Unluckily I have a sciatalgia which is probably related to my endometriosis. I want to see a specialised doctor to get a proper diagnosis and an...

Hi everyone.Unluckily I have a sciatalgia which is probably related to my endome...

Alidian

•1 year ago

4 Replies

Looking for feedback on Zoladex

Hi all, hoping for as much feedback here as I can get from anyone who's tried Zoladex injectons. For a brief background I am currently 28 and had a...

Hi all, hoping for as much feedback here as I can get from anyone who's tried Zo...

NikNaxx

•1 year ago

22 Replies

1st Prostap Injection

Hello, if anyone wouldn’t mind sharing, how long after your first prostap injection did you a) start to be in more pain, and b) start to have menopause...

Hello, if anyone wouldn’t mind sharing, how long after your first prostap inject...

purpleiPhone

•1 year ago

1 Reply

Zalkya and mood

I’m stage 4, avoiding Prostap but listed for hysterectomy. I’m on Zalkya but the thing I feared most is happening. The depression. Anyone taking it and...

I’m stage 4, avoiding Prostap but listed for hysterectomy. I’m on Zalkya but the...

Graciexx

•2 years ago

8 Replies

Advice about treatment from NHS

Hi everyone, I started trying to get help from my GP for what seemed to clearly be endometriosis symptoms back in February. I got offered the combined pill...

Hi everyone, I started trying to get help from my GP for what seemed to clearly...

fairyblueberry

•2 years ago

11 Replies

Endometriosis and sickness

Hi Ladies, I was diagnosed with endometriosis in 2018 and had excision surgery last year . Starting 3 months ago I started to be badly sick on my period which...

Hi Ladies, I was diagnosed with endometriosis in 2018 and had excision surgery ...

SophJaz

•2 years ago

Be the first to reply

Health insurance / going private?

Hi guys, So my endo is currently the worst it’s ever been, not only is it a battle every day physically but also mentally now. My GP doesn’t know what to do...

Hi guys, So my endo is currently the worst it’s ever been, not only is it a batt...

Chloehawkins_

•2 years ago

4 Replies

Ovary potentially stuck to bowel

Hi, I'm just wondering if anyone has had the situation where the endo has stuck their ovary to their bowel and what happened? I had an internal ultrasound...

Hi, I'm just wondering if anyone has had the situation where the endo has stuck ...

CaseyRodger

•2 years ago

2 Replies

https://petition.parliament.uk/petitions/616081

Can you help with my petition for free IVF for woman with Endometriosis and are in the same sex relationship?

Can you help with my petition for free IVF for woman with Endometriosis and are ...

endowarrior15

•2 years ago

3 Replies

Bleeding after sex, back pain & zoladex

I have just been referred back to gynaecology as I believe my symptoms are my endo/ or scar tissue from my laparoscopy giving me jip. Every other doctor has...

I have just been referred back to gynaecology as I believe my symptoms are my en...

PinkPrincess2210

•2 years ago

2 Replies

Post-Laparoscopy

I had a laparoscopy last week to investigate symptoms of endometriosis. They didn't find any tissue to remove but said that I had an inflamed pelvis, liver and...

I had a laparoscopy last week to investigate symptoms of endometriosis. They did...

StarLady1807

•2 years ago

3 Replies

Management treatment for post endometriosis surgery

Hi all, I had endometriosis surgery last week and was discharged with the pill. However, I am not too keen on taking these due to the long term risks....

Hi all, I had endometriosis surgery last week and was discharged with the pill. ...

NBP22

•2 years ago

8 Replies

Alternatives

Hello! I am 27. They found a cyst on my right ovary 6 years ago when I was having bladder issues around my period... It was a simple cyst and nothing was done....

Hello! I am 27. They found a cyst on my right ovary 6 years ago when I was havin...

Rachael010

•2 years ago

2 Replies

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Treatment posts

partial blindness, tremors and migraines from the mini pill

Has anyone found antidepressants help with the pain?

Zoledax for endo treatment (induced menopause)

Help with first steps

will Norfolk and Norwich endometriosis clinic see private patients?

is everyone else not getting diagnosed or much treatment?

Tilted Uterus and Mirena Coil

anyone used myovvii device ?

Bleeding 3 weeks on desogesterel

Lack of concentration & feeling uncomfortable on Prostap

Prostab monthly injections for endometriosis

Consultant recommendations

Decapeptyl and bone thinning

What is your experience of novasure endometrial ablation?.

Guardian Articles on Endo

Prostap isn't helping anymore

prostap and tibolone - pelvis pain and night sweats

Dr Khazali sciatalgia

Looking for feedback on Zoladex

1st Prostap Injection

Zalkya and mood

Advice about treatment from NHS

Endometriosis and sickness

Health insurance / going private?

Ovary potentially stuck to bowel

https://petition.parliament.uk/petitions/616081

Bleeding after sex, back pain & zoladex

Post-Laparoscopy

Management treatment for post endometriosis surgery

Alternatives

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Treatment posts

partial blindness, tremors and migraines from the mini pill

Has anyone found antidepressants help with the pain?

Zoledax for endo treatment (induced menopause)

Help with first steps

will Norfolk and Norwich endometriosis clinic see private patients?

is everyone else not getting diagnosed or much treatment?

Tilted Uterus and Mirena Coil

anyone used myovvii device ?

Bleeding 3 weeks on desogesterel

Lack of concentration & feeling uncomfortable on Prostap

Prostab monthly injections for endometriosis

Consultant recommendations

Decapeptyl and bone thinning

What is your experience of novasure endometrial ablation?.

Guardian Articles on Endo

Prostap isn't helping anymore

prostap and tibolone - pelvis pain and night sweats

Dr Khazali sciatalgia

Looking for feedback on Zoladex

1st Prostap Injection

Zalkya and mood

﻿Advice about treatment from NHS

Endometriosis and sickness

Health insurance / going private?

Ovary potentially stuck to bowel

https://petition.parliament.uk/petitions/616081

Bleeding after sex, back pain & zoladex

Post-Laparoscopy

Management treatment for post endometriosis surgery

Alternatives

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive

Advice about treatment from NHS