Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for September 2024

Healing time

It is coming up to 3 weeks since my laparoscopy and although the outside is healing, I don’t feel too good. I can’t quite tell if the pain is just from where...

It is coming up to 3 weeks since my laparoscopy and although the outside is heal...

Lunaloo123

•2 months ago

29 Replies

Left feeling confused after my follow up appointment post laparoscopy.

I had my first laparoscopy back in July where I was diagnosed with endometriosis which was apparently widespread and quite a lot but not deep infiltrating. I...

I had my first laparoscopy back in July where I was diagnosed with endometriosis...

Bagel96

•2 months ago

7 Replies

Endo with nerve involvement

I haven’t yet been diagnosed with Endo, however, it’s highly suspected due to my symptoms and pain. (All tests and scans have revealed nothing, including an...

I haven’t yet been diagnosed with Endo, however, it’s highly suspected due to my...

Forest_Green

•2 months ago

9 Replies

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Endo symptoms?

Hello, I recently got diagnosed with endometriosis when I had an ovarian dermoid cyst removed by laparoscopy. It was a surprise and my gynaecologist said it...

Hello, I recently got diagnosed with endometriosis when I had an ovarian dermoid...

Pugparent

•2 months ago

4 Replies

endo diagnosis, post laparoscopy

hi everyone, Before my laparoscopy, like many of us, i was severely scared they wouldn’t find anything because of the doubting doctors but fast forward post...

hi everyone, Before my laparoscopy, like many of us, i was severely scared the...

Bk27

•2 months ago

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Gnrh injections and HRT

Hi all , I have been on Decapeptyl injections now for 6 weeks alongside hrt ( everol 50 patches and Utrogestan 100mg continuously ) Iam currently having brown...

Hi all , I have been on Decapeptyl injections now for 6 weeks alongside hrt ( ev...

Smiley2022

•2 months ago

6 Replies

sciatic endo

Hi I’ve had a total hysterectomy about 5 years ago. Still have ongoing pains but have told because I’ve had the hysterectomy it’s no longer a gynae issue. I...

Hi I’ve had a total hysterectomy about 5 years ago. Still have ongoing pains but...

Sickofthisshit

•2 months ago

7 Replies

Has this happened to anyone else?

I was having heart palpitations and chest pain for few days. 111 sent me to hosp I had blood tests, urine test, ECG, chest x ray, blood pressure and oxygen...

I was having heart palpitations and chest pain for few days. 111 sent me to hosp...

Fulham85

•2 months ago

15 Replies

question- flank pain and endo?

hi all, I have lived with constant left flank tenderness for about 4/5 years that have had an array of diagnosis from rib issue, to pulled muscle to...

hi all, I have lived with constant left flank tenderness for about 4/5 years ...

Khill37

•2 months ago

6 Replies

MRI Scan outcome

Hi! I was referred by my GP to see a gynae doctor as she suspected I may have endometriosis. Through private I was able to see a consultant who is an...

Hi! I was referred by my GP to see a gynae doctor as she suspected I may have...

Bektimhaz

•2 months ago

3 Replies

Using the pill to help endo pain

I had a lap surgery in January this year to ablate some endo on my uterosacral ligaments.I take the combined pill back to back to avoid having periods or pain,...

I had a lap surgery in January this year to ablate some endo on my uterosacral l...

Unicorn777

•2 months ago

8 Replies

Referred to a different hospital! Don't know what to do?! Please help :(

I've just received a call from N&N Hospital where I have been on the waitlist for surgery since June 2023 (after being told my case was urgent). I spoke to...

I've just received a call from N&N Hospital where I have been on the waitlist fo...

always_asleep

•2 months ago

11 Replies

Hysterectomy and rectovaginal endo please please share advice I'm so lost

Hello to all of you amazing endo warriors. I am in need of some advice please. I apologise for the length of this post but wanted to add the details to give...

Hello to all of you amazing endo warriors. I am in need of some advice please. I...

ChicaPixie

•2 months ago

10 Replies

Endo in my abdominal wall

I'm Lizzie and I was diagnosed today at nearly 39 years of age. Endometriosis in my abdomen and ovary. My ferritin levels have been very low for two years and...

I'm Lizzie and I was diagnosed today at nearly 39 years of age. Endometriosis i...

Lizziepats85

•2 months ago

15 Replies

Nerve Endometriosis

Hi all, I had stage 4 endo removed in July. I had my left hypogastric nerve partially rescted as endo was fully invading it. Has anyone else had this before...

Hi all, I had stage 4 endo removed in July. I had my left hypogastric nerve part...

NevBean

•2 months ago

1 Reply

Any experiences with Decapeptyl injection? Starting on Monday don't know how to feel

Hiya everyone, Just wondering if anyone has any experience or advice with the Decapeptyl injections? I am starting on Monday after having 3 laparoscopies since...

Hiya everyone, Just wondering if anyone has any experience or advice with the De...

Emmalouise1310

•2 months ago

18 Replies

Referral Wait Time?

What’s the average wait time to be seen by a specialist hospital?

HealthStarDust

•2 months ago

9 Replies

Post to vent from feeling let down.

I’ve had symptoms since the age of 14 and got diagnosed at the age of 28 with them saying at that time there is nothing we can do. It was a battle to get that...

I’ve had symptoms since the age of 14 and got diagnosed at the age of 28 with th...

Endoholllou

•2 months ago

3 Replies

Think I’m giving up on HRT, endo & bleeding flaring yet again…

Hello, I’m a regular on here. Some of you know me, others probably not. Wanted some advice so I’m going to keep it simple. 1. I’m 53 with a history of...

Hello, I’m a regular on here. Some of you know me, others probably not. Wanted ...

Brambledoggy

•2 months ago

17 Replies

Ryeqo

is anyone struggling to get hold of this medication

Sprocker23

•2 months ago

1 Reply

endo flare up

I went to hospital on Tuesday as I’m in excruciating pain only to be told I need to learn to cope with it at home. They prescribed me medication which was...

I went to hospital on Tuesday as I’m in excruciating pain only to be told I need...

Sprocker23

•2 months ago

10 Replies

Advice

I really want to start taking control of my own cycle, it is extremely irregular but I want to do research and hopefully try to create a perfect routine for...

I really want to start taking control of my own cycle, it is extremely irregular...

SummerJunkie

•2 months ago

2 Replies

Lost Where To Go Next

Hi everyone, I'm feeling really lost at the moment and was hoping some ladies on here have been in a similar situation and can tell me where I need to be...

Hi everyone, I'm feeling really lost at the moment and was hoping some ladies ...

TomatoGirl97

•2 months ago

3 Replies

MRI scan results back - what now??

I got my scan results back via the NHS trust app last Thursday. From what I can decipher, they have said signs indicative of deep infiltrative endometriosis...

I got my scan results back via the NHS trust app last Thursday. From what I can ...

Regblue

•2 months ago

7 Replies

Getting diagnosed - GP Referral

My mother told me a few months ago that she had been diagnosed with endometriosis a few years ago as well as my auntie and my nanny. This came as a mild shock...

My mother told me a few months ago that she had been diagnosed with endometriosi...

EmyrLouNB

•2 months ago

9 Replies

swimming post surgery

hello ! I had my surgery on the 14th Sep, I have 6/7 incision wounds which are healing nicely. The hospital didn’t advise me on when I can swim again, was...

hello ! I had my surgery on the 14th Sep, I have 6/7 incision wounds which are h...

Ru8yred

•2 months ago

3 Replies

Mobility aids

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they also found multiple small fibroids, adhesions on my uterus, bowel, ovaries and...

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they ...

GreenQueen92

•2 months ago

5 Replies

IVF OHSS Query

Hi everyone. I'm wondering if I can ask if anyone with stage 4 endo, adeno and a frozen pelvis with other complications has ever had ohss with IVF? I've...

Hi everyone. I'm wondering if I can ask if anyone with stage 4 endo, adeno and a...

Eeshpeesh1994

•2 months ago

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Natural or IVF after excision surgery

I'm after a bit of advice, maybe from someone who has been in similar shoes.I had excision surgery a few weeks back on my pelvis and bowels, after freeing up...

I'm after a bit of advice, maybe from someone who has been in similar shoes.I ha...

WJSM

•2 months ago

6 Replies

please help!!

I had surgery to diagnose/ burn out endo in July and I had about 4 weeks relief and then it started all over again. The pain is back with new ones. Has anyone...

I had surgery to diagnose/ burn out endo in July and I had about 4 weeks relief ...

Emmaalfie

•2 months ago

32 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2024

Healing time

Left feeling confused after my follow up appointment post laparoscopy.

Endo with nerve involvement

Endo symptoms?

endo diagnosis, post laparoscopy

Gnrh injections and HRT

sciatic endo

Has this happened to anyone else?

question- flank pain and endo?

MRI Scan outcome

Using the pill to help endo pain

Referred to a different hospital! Don't know what to do?! Please help :(

Hysterectomy and rectovaginal endo please please share advice I'm so lost

Endo in my abdominal wall

Nerve Endometriosis

Any experiences with Decapeptyl injection? Starting on Monday don't know how to feel

Referral Wait Time?

Post to vent from feeling let down.

Think I’m giving up on HRT, endo & bleeding flaring yet again…

Ryeqo

endo flare up

Advice

Lost Where To Go Next

MRI scan results back - what now??

Getting diagnosed - GP Referral

swimming post surgery

Mobility aids

IVF OHSS Query

Natural or IVF after excision surgery

please help!!

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