Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,455 members • 52,957 posts

All posts for September 2024

Referral Wait Time?

What’s the average wait time to be seen by a specialist hospital?

HealthStarDust

•4 hours ago

1 Reply

Post to vent from feeling let down.

I’ve had symptoms since the age of 14 and got diagnosed at the age of 28 with them saying at that time there is nothing we can do. It was a battle to get that...

I’ve had symptoms since the age of 14 and got diagnosed at the age of 28 with th...

Endoholllou

•5 hours ago

1 Reply

Think I’m giving up on HRT, endo & bleeding flaring yet again…

Hello, I’m a regular on here. Some of you know me, others probably not. Wanted some advice so I’m going to keep it simple. 1. I’m 53 with a history of...

Hello, I’m a regular on here. Some of you know me, others probably not. Wanted ...

Brambledoggy

•5 hours ago

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Ryeqo

is anyone struggling to get hold of this medication

Sprocker23

•7 hours ago

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endo flare up

I went to hospital on Tuesday as I’m in excruciating pain only to be told I need to learn to cope with it at home. They prescribed me medication which was...

I went to hospital on Tuesday as I’m in excruciating pain only to be told I need...

Sprocker23

•10 hours ago

5 Replies

Advice

I really want to start taking control of my own cycle, it is extremely irregular but I want to do research and hopefully try to create a perfect routine for...

I really want to start taking control of my own cycle, it is extremely irregular...

SummerJunkie

•13 hours ago

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Lost Where To Go Next

Hi everyone, I'm feeling really lost at the moment and was hoping some ladies on here have been in a similar situation and can tell me where I need to be...

Hi everyone, I'm feeling really lost at the moment and was hoping some ladies ...

TomatoGirl97

•1 day ago

3 Replies

MRI scan results back - what now??

I got my scan results back via the NHS trust app last Thursday. From what I can decipher, they have said signs indicative of deep infiltrative endometriosis...

I got my scan results back via the NHS trust app last Thursday. From what I can ...

Regblue

•1 day ago

7 Replies

Getting diagnosed - GP Referral

My mother told me a few months ago that she had been diagnosed with endometriosis a few years ago as well as my auntie and my nanny. This came as a mild shock...

My mother told me a few months ago that she had been diagnosed with endometriosi...

EmyrLouNB

•1 day ago

9 Replies

swimming post surgery

hello ! I had my surgery on the 14th Sep, I have 6/7 incision wounds which are healing nicely. The hospital didn’t advise me on when I can swim again, was...

hello ! I had my surgery on the 14th Sep, I have 6/7 incision wounds which are h...

Ru8yred

•1 day ago

2 Replies

Mobility aids

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they also found multiple small fibroids, adhesions on my uterus, bowel, ovaries and...

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they ...

GreenQueen92

•2 days ago

5 Replies

IVF OHSS Query

Hi everyone. I'm wondering if I can ask if anyone with stage 4 endo, adeno and a frozen pelvis with other complications has ever had ohss with IVF? I've...

Hi everyone. I'm wondering if I can ask if anyone with stage 4 endo, adeno and a...

Eeshpeesh1994

•2 days ago

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Natural or IVF after excision surgery

I'm after a bit of advice, maybe from someone who has been in similar shoes.I had excision surgery a few weeks back on my pelvis and bowels, after freeing up...

I'm after a bit of advice, maybe from someone who has been in similar shoes.I ha...

WJSM

•2 days ago

3 Replies

please help!!

I had surgery to diagnose/ burn out endo in July and I had about 4 weeks relief and then it started all over again. The pain is back with new ones. Has anyone...

I had surgery to diagnose/ burn out endo in July and I had about 4 weeks relief ...

Emmaalfie

•2 days ago

32 Replies

Bowel Endo

I am 49 and have stage 4 endo and at one pt had my bowel shaved! However my daughter aged 19 has been diagnosed with deep infiltrating bowel endo that the...

I am 49 and have stage 4 endo and at one pt had my bowel shaved! However my daug...

Reddog8

•2 days ago

20 Replies

Hysterectomy & Hormones

Hi all, I'm booked in for a total abdominal hysterectomy with bilateral salpingo-oophorectomy next month and wondered if anyone will check my hormone levels as...

Hi all, I'm booked in for a total abdominal hysterectomy with bilateral salpingo...

BlueMocktail

•2 days ago

17 Replies

Extreme endo flare

how do you know when to go a&e with an endo flare

Sprocker23

•2 days ago

6 Replies

Endo Bloating

hello ! I had my surgery just over a week ago, removed a lot and I’m finally up and walking semi-normally. I have a bloating question, I just bloat on and...

hello ! I had my surgery just over a week ago, removed a lot and I’m finally up ...

Ru8yred

•3 days ago

3 Replies

useful podcast?

Lara Briden podcast on endometriosis which might help lots of you find a bit of relief 🤞🏽 https://m.youtube.com/watch?v=kszMaZ6581E

Lara Briden podcast on endometriosis which might help lots of you find a bit of ...

PeriMenoEndo

•3 days ago

1 Reply

Absolutely terrible experience with a gynecologist (in Portugal not UK)

I hope this is allowed as it's not about the UK. I recently moved to Portugal and needed to see a gynecologist to discuss next steps. I've never had an...

I hope this is allowed as it's not about the UK. I recently moved to Portugal an...

Elsa150

•3 days ago

2 Replies

Have you had an Ultrasound scan in the UK?

To understand peoples experiences of receiving their ultrasound scan reports I am looking for people who can share their stories. If you are interested in the...

To understand peoples experiences of receiving their ultrasound scan reports I a...

InformedVoices

•3 days ago

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Endo/ Laparoscopy and C-section/preganancy

hi all, I have recently had an MRI that shows possible endo on/near my uterus. My consultant is pushing for a lap, but I am unsure whether to postpone this as...

hi all, I have recently had an MRI that shows possible endo on/near my uterus. ...

emilylb

•3 days ago

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groin pain

does anyone suffer with groin pain when having a flare up

Sprocker23

•4 days ago

10 Replies

chest pain

hello everyone, I was wondering if anybody experiences any kind of chest pain with endo or adeno? I’m not sure what causes this or if this is the cause but I...

hello everyone, I was wondering if anybody experiences any kind of chest pain wi...

nightsky2

•4 days ago

4 Replies

Endo and adenomyosis

There has been background endo and background adenomyosis found on my mri scan I don't really know what it means, what the treatment for these are I've done...

There has been background endo and background adenomyosis found on my mri scan I...

Dolphin1045

•4 days ago

4 Replies

endometriosis

Hi all, I’ve been suffering with pain for years at first I thought it was back related pain from having my children but after lots of tests they’ve found...

Hi all, I’ve been suffering with pain for years at first I thought it was back r...

Addy2016

•5 days ago

18 Replies

Has anyone had eggs frozen?

hi, I am currently at the stage of worry about my eggs and fertility daily (I am now 24 reaching 25) I am looking into egg freezing and it is daunting how...

hi, I am currently at the stage of worry about my eggs and fertility daily (I ...

StrongestAvenger

•5 days ago

4 Replies

Hysterectomy or both hysterectomy and oophorectomy?

Hi, I'm on my 4th month of Decapetyl injections. I'm due to be reviewed by Consultant on 23/9. I'm currently listed for ' full pelvic clearance' due to DIE....

Hi, I'm on my 4th month of Decapetyl injections. I'm due to be reviewed by Consu...

thebird1

•5 days ago

17 Replies

Endometriosis and diet

Hello I was hospitalised the other day from my period pain as my body went into spasm and I was convulsing for hours. It was not the first time at all that...

Hello I was hospitalised the other day from my period pain as my body went into ...

ponyos

•5 days ago

14 Replies

Heartbroken

Hi everyone I'm new here! I'm just in so much shock reading peoples stories. I never realised how many people were left in pain with nowhere to turn I just...

Hi everyone I'm new here! I'm just in so much shock reading peoples stories. I n...

Hello33

•5 days ago

23 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2024

Referral Wait Time?

Post to vent from feeling let down.

Think I’m giving up on HRT, endo & bleeding flaring yet again…

Ryeqo

endo flare up

Advice

Lost Where To Go Next

MRI scan results back - what now??

Getting diagnosed - GP Referral

swimming post surgery

Mobility aids

IVF OHSS Query

Natural or IVF after excision surgery

please help!!

Bowel Endo

Hysterectomy & Hormones

Extreme endo flare

Endo Bloating

useful podcast?

Absolutely terrible experience with a gynecologist (in Portugal not UK)

Have you had an Ultrasound scan in the UK?

Endo/ Laparoscopy and C-section/preganancy

groin pain

chest pain

Endo and adenomyosis

endometriosis

Has anyone had eggs frozen?

Hysterectomy or both hysterectomy and oophorectomy?

Endometriosis and diet

Heartbroken

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