Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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Diagnosed at 21, left in the dark

Hi there, I was diagnosed with endometriosis in 2022 at the age of 21. I still feel really unaware of my condition and as if I have been left in the dark...

Hi there, I was diagnosed with endometriosis in 2022 at the age of 21. I still...

Jas1404

•5 days ago

11 Replies

Endometriosis vs Sacroiliitis

Hello, I have been going through health challenges for the last year and it has been a nightmare!! Doctors have not come to a conclusion and it would be good...

Hello, I have been going through health challenges for the last year and it ha...

Health_conscious

•20 days ago

7 Replies

Pelvic / hip nerve pain - how to get diagnosis?

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really struggling with hip joint pain / pain down right thigh (over last 18 months)...

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really s...

GWP81

•24 days ago

8 Replies

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Tips for quicker appointments

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and have been recovering these past few weeks - they removed several sections. I...

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and ...

Hidden

•1 month ago

6 Replies

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question is the last paragraph so feel free to skip to the end🙈A...

Hello, this post is longer than I intended but I wanted to give some context - m...

Clio135

•2 months ago

17 Replies

First consultation

Hello, I have my first private gynaecology consultation on Friday after having no luck through the NHS. Been told its just IBS and my period symptoms are...

Hello, I have my first private gynaecology consultation on Friday after having n...

GlumDumpling

•3 months ago

8 Replies

Pelvic inflammatory disease (PID) & endometriosis help

Hi All, Hope your all doing the best you can. Has anyone suffered or gone through PID (pelvic inflammatory disease). I was just admitted to a gynae ward with...

Hi All, Hope your all doing the best you can. Has anyone suffered or gone throug...

Booknerd1598

•3 months ago

8 Replies

Mirena coil after stopping the mini pill due to severe mood swings

Hi, while waiting for my gynae referral for possible endometriosis I was put on the mini pill. I tried Lovima and Cerazette but had very severe mood swings,...

Hi, while waiting for my gynae referral for possible endometriosis I was put on ...

Helen_Gemini

•3 months ago

1 Reply

2 months on the pill, Are my symptoms normal?

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my endo symptoms. Apparently the symptoms I have are puzzling as they don't fit...

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my...

TomatoGirl97

•3 months ago

1 Reply

Oestrogen help 🤗

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test showed 209 pmol around day 9 of cycle does anyone know if this is low. I'm 38....

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test show...

Beeekind22

•4 months ago

7 Replies

Advice request - going in circles with doctors

Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might...

Hi all, I've been suffering with endometriosis for years but I'm really struggli...

Bookworm321123

•6 months ago

2 Replies

Finding support

I have endometriosis and fibromyalga. My endometriosis is spread around and inside my fallopian tubes along side my bowel area. I have had an operation and...

I have endometriosis and fibromyalga. My endometriosis is spread around and insi...

Teemaurica

•6 months ago

1 Reply

Adenomyosis struggle

Hi everyone, I’m new here and I really need support as the specialists are throwing my mental health to the bin, in particular -ironically- gynaecologists....

Hi everyone, I’m new here and I really need support as the specialists are thro...

Taikaei

•6 months ago

8 Replies

Perimenopause treatments and endometriosis

Hello all, I'm not sure if I'm allowed to promote/query commercial products here, but I've reached that stage of life and it's playing havoc with what were...

Hello all, I'm not sure if I'm allowed to promote/query commercial products her...

Bellebell

•7 months ago

5 Replies

polyp/ bleeding

hi all, I’m just looking for some advice really. Basically a few years ago I was under the gynaecologist team in the old city where I lived. They suspected...

hi all, I’m just looking for some advice really. Basically a few years ago I was...

Elliemouse22

•7 months ago

4 Replies

Unexpected Stage IV Diagnosis

Hello, On Wednesday I went for a keyhole surgery to finally get an ovarian cyst removed that had been there for around 5/6 years. Unfortunately, when they...

Hello, On Wednesday I went for a keyhole surgery to finally get an ovarian cyst...

JBee24

•8 months ago

6 Replies

hysteroscopy

I was admitted to hospital two night ago for severe pain due to my endometriosis. The last consultant decided to tell me my endometriosis doesn’t exist and...

I was admitted to hospital two night ago for severe pain due to my endometriosis...

Besutyinmydreams

•8 months ago

4 Replies

Adenomyosis or Endo back??

Hi everyone, I had a laparoscopy in 2018 and had mild endometriosis tissue removed from my pelvis, and two cysts removed (one being an endometrioma). I have...

Hi everyone, I had a laparoscopy in 2018 and had mild endometriosis tissue remo...

HarrietGrace

•8 months ago

4 Replies

First consultant’s appointment - any tips?

Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecologist appointment tomorrow since 2019 for suspected endometriosis. I have never...

Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecol...

KiwiCookie

•8 months ago

3 Replies

Post menopausal Hydrocolpos, vaginal cyst

Hi, I just had a pelvic ultrasound and they found a 4cm cyst in my upper vagina, I'm postmenopausal so the drs are very confused as this only happens to women...

Hi, I just had a pelvic ultrasound and they found a 4cm cyst in my upper vagina,...

Mel5523

•9 months ago

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Local hospital treats endometriosis in general gyn

I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In...

I started experiencing cyclical pain last summer, after ultrasound and mri they ...

Hidden

•9 months ago

2 Replies

Zolodex decision

Hi. Newbie here. Long story short, I've had a history of menstrual/ pelvic issues for almost 20 years now, currently only now going through the process of...

Hi. Newbie here. Long story short, I've had a history of menstrual/ pelvic issue...

Lornalost89

•11 months ago

9 Replies

Heavy Clots / Miscarriage? Endo? Cyst?

hello everyone, I was diagnosed with Severe Endometriosis back in 2017 via surgery. Post surgery my pain was less, period bleeding was less and I only had...

hello everyone, I was diagnosed with Severe Endometriosis back in 2017 via sur...

tjohnson95

•1 year ago

5 Replies

chronic fatigue

hi guys so a little about me first. Ive been suffering with crippling pain since october, after many visits to a&e and my gp theyre pretty sure i have endo....

hi guys so a little about me first. Ive been suffering with crippling pain sinc...

Beck215

•1 year ago

12 Replies

Travel insurance to cover Endometriosis when waiting for surgery

Hi all, I was just wondering if anyone could recommend a travel insurance provider that would cover me for Endometriosis and Hydronephrosis (due to...

Hi all, I was just wondering if anyone could recommend a travel insurance provid...

Seetheworld

•1 year ago

5 Replies

Prostap & Chemical Menopause

I went to see my gynae yesterday after waiting 2.5 years for my appointment (Covid!). I have been struggling more and more with the pain (I am stage 4) and the...

I went to see my gynae yesterday after waiting 2.5 years for my appointment (Cov...

redsoledshoegal

•2 years ago

23 Replies

Doctor makes it seem like I want to have surgery and not like I actually need it

After struggling with severe constant daily pain for a year and a half, a gynaecologist has decided to put me on a waiting list for surgery. I didn't go see...

After struggling with severe constant daily pain for a year and a half, a gynaec...

JustPain2

•2 years ago

4 Replies

unsure of what to do next

Hello everyone, After some advice from you lovely ladies , really unsure and a bit worried, so a bit of a back story … sorry long winded I know. I was...

Hello everyone, After some advice from you lovely ladies , really unsure and ...

Yupithurts

•2 years ago

6 Replies

Sciatica and endometriosis? Also, what is that lump?!

Hello everyone! This is going to be a long post, so apologies for that! I'm after some information and advice re possible endometriosis and sciatica so I'll...

Hello everyone! This is going to be a long post, so apologies for that! I'm afte...

Tealandgold

•2 years ago

10 Replies

New here - Advice for talking to GP - could it be endometriosis? Painful periods, irregular bleeding, bowel & fertility issues

Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have...

Hi everyone, I've never spoken with a GP specifically about endometriosis, but...

birdnerd

•2 years ago

15 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

General support posts

Diagnosed at 21, left in the dark

Endometriosis vs Sacroiliitis

Pelvic / hip nerve pain - how to get diagnosis?

Tips for quicker appointments

Feeling Undermined and Overwhelmed

First consultation

Pelvic inflammatory disease (PID) & endometriosis help

Mirena coil after stopping the mini pill due to severe mood swings

2 months on the pill, Are my symptoms normal?

Oestrogen help 🤗

Advice request - going in circles with doctors

Finding support

Adenomyosis struggle

Perimenopause treatments and endometriosis

polyp/ bleeding

Unexpected Stage IV Diagnosis

hysteroscopy

Adenomyosis or Endo back??

First consultant’s appointment - any tips?

Post menopausal Hydrocolpos, vaginal cyst

Local hospital treats endometriosis in general gyn

Zolodex decision

Heavy Clots / Miscarriage? Endo? Cyst?

chronic fatigue

Travel insurance to cover Endometriosis when waiting for surgery

Prostap & Chemical Menopause

Doctor makes it seem like I want to have surgery and not like I actually need it

unsure of what to do next

Sciatica and endometriosis? Also, what is that lump?!

New here - Advice for talking to GP - could it be endometriosis? Painful periods, irregular bleeding, bowel & fertility issues

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