Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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I feel lost and scared.

My journey started 26 years ago, I passed out in a toilet at collage. I was studying nursery nursing. I was told I have ovarian cysts. The start of a never...

My journey started 26 years ago, I passed out in a toilet at collage. I was stud...

Kit38

•30 days ago

6 Replies

Financial Supports & Decapeptyl troubles

Hi all, This is my first time writing here but I’m at a loss right now and don’t know what to do. I had my diagnostic laparoscopy in October where I got...

Hi all, This is my first time writing here but I’m at a loss right now and don...

Quackers9

•1 month ago

6 Replies

Not being taken seriously

hi all, hope someone can give me some advice! I’ve been suffering with painful periods and fatigue for as long as I can remember, it’s painful to the point...

hi all, hope someone can give me some advice! I’ve been suffering with painful p...

Cinnabun

•2 months ago

16 Replies

Want to take advantage of all our features? Just log in!

Hi ! I was just wondering if anyone knows what the current wait times are for a PIP review ?

I got a letter saying that I was going to be reviewed and a form was sent out. I filled it in and basically told them that nothing has changed and then sent it...

I got a letter saying that I was going to be reviewed and a form was sent out. I...

Flossie96

•4 months ago

1 Reply

I don't think I can work anymore

Hi all, Apologies if this all sounds a bit dramatic but I'm really struggling right now :( I had a laparoscopy in September that finally diagnosed me with...

Hi all, Apologies if this all sounds a bit dramatic but I'm really struggling r...

JellyfishPud

•4 months ago

14 Replies

Advice for what happens next and fertility

Hi, Last January I had laparoscopic surgery to diagnose endometriosis. Turned out I have stage 4 endo, adhesions, scarring, and a couple of endometriomas....

Hi, Last January I had laparoscopic surgery to diagnose endometriosis. Turned ...

Dawner_

•4 months ago

1 Reply

Any experiences with Decapeptyl injection? Starting on Monday don't know how to feel

Hiya everyone, Just wondering if anyone has any experience or advice with the Decapeptyl injections? I am starting on Monday after having 3 laparoscopies since...

Hiya everyone, Just wondering if anyone has any experience or advice with the De...

Emmalouise1310

•5 months ago

18 Replies

Mobility aids

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they also found multiple small fibroids, adhesions on my uterus, bowel, ovaries and...

Hello! I was diagnosed with endo August 2022 during my laparoscopy where they ...

GreenQueen92

•5 months ago

5 Replies

work clothing tips!

Hi girls, I had surgery 7 weeks ago and went back to work last week! I work with little ones, sometimes doing home visits, office working, etc. My dilemma...

Hi girls, I had surgery 7 weeks ago and went back to work last week! I work wit...

Minigoose

•6 months ago

6 Replies

Diagnosed at 21, left in the dark

Hi there, I was diagnosed with endometriosis in 2022 at the age of 21. I still feel really unaware of my condition and as if I have been left in the dark...

Hi there, I was diagnosed with endometriosis in 2022 at the age of 21. I still...

Jas1404

•6 months ago

11 Replies

Endometriosis vs Sacroiliitis

Hello, I have been going through health challenges for the last year and it has been a nightmare!! Doctors have not come to a conclusion and it would be good...

Hello, I have been going through health challenges for the last year and it ha...

Health_conscious

•7 months ago

7 Replies

Pelvic / hip nerve pain - how to get diagnosis?

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really struggling with hip joint pain / pain down right thigh (over last 18 months)...

I've had endo for 20+ years, 15 operations and lots of scar tissue. I'm really s...

GWP81

•7 months ago

8 Replies

Tips for quicker appointments

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and have been recovering these past few weeks - they removed several sections. I...

Hi All! I recently underwent surgery for endometriosis in my lung/diaphragm and ...

Hidden

•7 months ago

6 Replies

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question is the last paragraph so feel free to skip to the end🙈A...

Hello, this post is longer than I intended but I wanted to give some context - m...

Clio135

•8 months ago

17 Replies

First consultation

Hello, I have my first private gynaecology consultation on Friday after having no luck through the NHS. Been told its just IBS and my period symptoms are...

Hello, I have my first private gynaecology consultation on Friday after having n...

GlumDumpling

•9 months ago

8 Replies

Pelvic inflammatory disease (PID) & endometriosis help

Hi All, Hope your all doing the best you can. Has anyone suffered or gone through PID (pelvic inflammatory disease). I was just admitted to a gynae ward with...

Hi All, Hope your all doing the best you can. Has anyone suffered or gone throug...

Booknerd1598

•9 months ago

9 Replies

Mirena coil after stopping the mini pill due to severe mood swings

Hi, while waiting for my gynae referral for possible endometriosis I was put on the mini pill. I tried Lovima and Cerazette but had very severe mood swings,...

Hi, while waiting for my gynae referral for possible endometriosis I was put on ...

Helen_Gemini

•9 months ago

1 Reply

2 months on the pill, Are my symptoms normal?

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my endo symptoms. Apparently the symptoms I have are puzzling as they don't fit...

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my...

TomatoGirl97

•9 months ago

1 Reply

Oestrogen help 🤗

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test showed 209 pmol around day 9 of cycle does anyone know if this is low. I'm 38....

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test show...

Beeekind22

•10 months ago

7 Replies

Advice request - going in circles with doctors

Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might...

Hi all, I've been suffering with endometriosis for years but I'm really struggli...

Bookworm321123

•1 year ago

2 Replies

Finding support

I have endometriosis and fibromyalga. My endometriosis is spread around and inside my fallopian tubes along side my bowel area. I have had an operation and...

I have endometriosis and fibromyalga. My endometriosis is spread around and insi...

Teemaurica

•1 year ago

1 Reply

Adenomyosis struggle

Hi everyone, I’m new here and I really need support as the specialists are throwing my mental health to the bin, in particular -ironically- gynaecologists....

Hi everyone, I’m new here and I really need support as the specialists are thro...

Taikaei

•1 year ago

8 Replies

Perimenopause treatments and endometriosis

Hello all, I'm not sure if I'm allowed to promote/query commercial products here, but I've reached that stage of life and it's playing havoc with what were...

Hello all, I'm not sure if I'm allowed to promote/query commercial products her...

Bellebell

•1 year ago

5 Replies

polyp/ bleeding

hi all, I’m just looking for some advice really. Basically a few years ago I was under the gynaecologist team in the old city where I lived. They suspected...

hi all, I’m just looking for some advice really. Basically a few years ago I was...

Elliemouse22

•1 year ago

4 Replies

Unexpected Stage IV Diagnosis

Hello, On Wednesday I went for a keyhole surgery to finally get an ovarian cyst removed that had been there for around 5/6 years. Unfortunately, when they...

Hello, On Wednesday I went for a keyhole surgery to finally get an ovarian cyst...

JBee24

•1 year ago

6 Replies

hysteroscopy

I was admitted to hospital two night ago for severe pain due to my endometriosis. The last consultant decided to tell me my endometriosis doesn’t exist and...

I was admitted to hospital two night ago for severe pain due to my endometriosis...

Besutyinmydreams

•1 year ago

4 Replies

Adenomyosis or Endo back??

Hi everyone, I had a laparoscopy in 2018 and had mild endometriosis tissue removed from my pelvis, and two cysts removed (one being an endometrioma). I have...

Hi everyone, I had a laparoscopy in 2018 and had mild endometriosis tissue remo...

HarrietGrace

•1 year ago

4 Replies

First consultant’s appointment - any tips?

Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecologist appointment tomorrow since 2019 for suspected endometriosis. I have never...

Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecol...

KiwiCookie

•1 year ago

3 Replies

Post menopausal Hydrocolpos, vaginal cyst

Hi, I just had a pelvic ultrasound and they found a 4cm cyst in my upper vagina, I'm postmenopausal so the drs are very confused as this only happens to women...

Hi, I just had a pelvic ultrasound and they found a 4cm cyst in my upper vagina,...

Mel5523

•1 year ago

Be the first to reply

Local hospital treats endometriosis in general gyn

I started experiencing cyclical pain last summer, after ultrasound and mri they noted I had an 8cm endometioma on one ovary and DIE behind my other ovary. In...

I started experiencing cyclical pain last summer, after ultrasound and mri they ...

Hidden

•1 year ago

2 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

General support posts

I feel lost and scared.

Financial Supports & Decapeptyl troubles

Not being taken seriously

Hi ! I was just wondering if anyone knows what the current wait times are for a PIP review ?

I don't think I can work anymore

Advice for what happens next and fertility

Any experiences with Decapeptyl injection? Starting on Monday don't know how to feel

Mobility aids

work clothing tips!

Diagnosed at 21, left in the dark

Endometriosis vs Sacroiliitis

Pelvic / hip nerve pain - how to get diagnosis?

Tips for quicker appointments

Feeling Undermined and Overwhelmed

First consultation

Pelvic inflammatory disease (PID) & endometriosis help

Mirena coil after stopping the mini pill due to severe mood swings

2 months on the pill, Are my symptoms normal?

Oestrogen help 🤗

Advice request - going in circles with doctors

Finding support

Adenomyosis struggle

Perimenopause treatments and endometriosis

polyp/ bleeding

Unexpected Stage IV Diagnosis

hysteroscopy

Adenomyosis or Endo back??

First consultant’s appointment - any tips?

Post menopausal Hydrocolpos, vaginal cyst

Local hospital treats endometriosis in general gyn

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