Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,847 members • 52,603 posts

All posts for June 2024

grade 4 endo pouch of Douglas

hello everyone I was diagnosed last year at the age of 32( 20 years after onset of symptoms ). At this point I was diagnosed with stage 4 endo , with...

hello everyone I was diagnosed last year at the age of 32( 20 years after ons...

SRD91

•21 days ago

10 Replies

Myoovi - has anyone tried this and what do you think?

I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X

I've looking at getting the myoovi tens machine for my awful endo pain - has any...

AFC007

•21 days ago

16 Replies

Ladies, any help/advice to help me with my crazy hormones and endometriosis?

I was diagnosed with endometriosis this year, although I have been suffering from non-diagnosed endometriosis for over a decade along with PMDD. Since my...

I was diagnosed with endometriosis this year, although I have been suffering fro...

rachanafen

•22 days ago

2 Replies

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Anyone feel like they need to wee more often before and during cycle? Even though you dont need it?

Title says it all really. Diagnosed with endo nearly two years ago. Every cycle just before my period and during it I feel like I need to see more often even...

Title says it all really. Diagnosed with endo nearly two years ago. Every cycle ...

Pennyheart1

•23 days ago

3 Replies

Decapeptyl and pain

Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9...

Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 y...

Snowwhite2207

•23 days ago

2 Replies

please can anyone help with how to manage the excruciating pain with endo?

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tabs) but the gp said there is nothing else. They barely touch the sides and I'm...

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tab...

AFC007

•23 days ago

19 Replies

Water works during endo flare - help!!!

Hey everyone, I'm in need of your fantastic advice again! It's a strange situation, but I'll take literally any suggestions, because I feel so stuck. A bit of...

Hey everyone, I'm in need of your fantastic advice again! It's a strange situati...

GrouchoSparx

•23 days ago

7 Replies

Severe left pain/adhesions/adhesiolysis rant. Tired and confused.

Recap: Laparoscopy and TV Ultrasound both "clear" for endo, but severe/deep/widespread adhesions. Also "clinically insignificant" cysts and fibroids. Awaiting...

Recap: Laparoscopy and TV Ultrasound both "clear" for endo, but severe/deep/wide...

TallulaShark

•23 days ago

5 Replies

officially diagnosed

so I had my endo uss with a endo specialist which lasts 1 hour On my scan I have adhesions, Adenomyosis, and my ovaries are stuck to my uterus… she said endo...

so I had my endo uss with a endo specialist which lasts 1 hour On my scan I hav...

Sara0102

•24 days ago

3 Replies

Anyone had costochondritis with endometriosis

Just wondering if anyone has had costochondritis and also has endometriosis? costochondritis is apparently inflammation of the chest and considering...

Just wondering if anyone has had costochondritis and also has endometriosis? cos...

me94

•24 days ago

3 Replies

awaiting first gynaecology appointment- inhomogenous texture of uterus

Hi. I’ve just had my first ultrasound results which has showed a fibroid but also an inhomogenous texture of uterus. My GP has said because of this (not the...

Hi. I’ve just had my first ultrasound results which has showed a fibroid but als...

LRLR

•25 days ago

2 Replies

stuck on what to do

hi, I had my diagnostic keyhole for endo 2 weeks ago but they didn’t find any endometriosis apart from cysts in my ovaries. I have had excruciating pain for...

hi, I had my diagnostic keyhole for endo 2 weeks ago but they didn’t find any en...

Ella_21

•25 days ago

3 Replies

Pelvic pain after laparoscopy

Hi all. I had my laparoscopy 2 weeks ago, with nodular endometriosis being vaporised and my ovary being unstuck from my abdominal wall. However, I am still...

Hi all. I had my laparoscopy 2 weeks ago, with nodular endometriosis being vapor...

Cazarooni30

•25 days ago

1 Reply

long periods and bleeding out bottom while on this long period

Hi all need some help I keep bleeding out my bottom I had a ct scan in January which given me the all clear it was with dye aswell does anyone else...

Hi all need some help I keep bleeding out my bottom I had a ct scan in January w...

Sara0102

•25 days ago

5 Replies

help advice on treatment route - nhs lap stage 4+

Hi there, I have been diagnosed with Endo a few weeks ago now with 2 cysts and ‘sticking’ kissing ovaries and bowel symptoms for years, currently in a lot of...

Hi there, I have been diagnosed with Endo a few weeks ago now with 2 cysts and...

Els123456

•25 days ago

3 Replies

Protrusion in right upper abdomen

Has anyone experienced a mass / protrusion in their upper abdomen (right side) that was endo, fibroids or ovarian cysts? Or a mis-placed uterus or ovaries due...

Has anyone experienced a mass / protrusion in their upper abdomen (right side) t...

K-Bear88

•25 days ago

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Should I keep pushing to be tested? Or are the doctors right?

Hi there, I am really struggling. I have always felt like something was not right about my menstrual cycle. I’m now 22, and have been bleeding consistently...

Hi there, I am really struggling. I have always felt like something was not r...

PrueyBug

•26 days ago

13 Replies

Your story - MA Research

Hello, I hope this is okay to post! I am an endometriosis myself and am very passionate about the Gender Health Gap. As many women I have spoken too that have...

Hello, I hope this is okay to post! I am an endometriosis myself and am very pa...

ClementimeClock

•26 days ago

1 Reply

New Diagnosis of Endometriosis

Recently Diagnosed- Was sick ovulating for a year then put on the pill Now having awful flare ups especially when not going to the toilet often enough -...

Recently Diagnosed- Was sick ovulating for a year then put on the pill Now...

amyisabel18

•26 days ago

1 Reply

is an MRI only looking for DIE?

I’ve had an ultrasound at a general hospital by a general gynaecologist and it was normal. I then saw an endometriosis specialist and he said he normally does...

I’ve had an ultrasound at a general hospital by a general gynaecologist and it w...

pinkie25

•26 days ago

7 Replies

newbie - just diagnosed need some help

hi everyone, first time on here. Yesterday I was diagnosed with endometriosis and I’m feeling all out of sorts! I had a private ultrasound a few weeks ago...

hi everyone, first time on here. Yesterday I was diagnosed with endometriosis an...

Scoops22

•26 days ago

2 Replies

Small bowel

Hi everyone,I am looking for information about small bowel endometriosis. If you had /have it what are your symptoms? And if you have been undergone to...

Hi everyone,I am looking for information about small bowel endometriosis. If you...

Alidian

•27 days ago

1 Reply

PIP phone call help

Hello all. I’ve been given a date for next Thursday for my phone PIP assessment. Does anyone have any tips before I go ahead with it? Thank you!

Hello all. I’ve been given a date for next Thursday for my phone PIP assessment...

MonsteraMartha1995

•27 days ago

13 Replies

Can an MRI detect superficial endo?

hey! Just a quick question as I’m a little confused. I had an MRI last year which showed (as stated on the report) “deep infiltrating endometriosis and...

hey! Just a quick question as I’m a little confused. I had an MRI last year ...

Ps-endo

•27 days ago

4 Replies

I dont no what to do with my self fell like giving up

Hi everyone, I don't normally write on here, but I'm at a loss and have no one else to talk to. I feel like I'm putting too much pressure on my partner, and I...

Hi everyone, I don't normally write on here, but I'm at a loss and have no one e...

Loki_

•27 days ago

4 Replies

hysterectomy

hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.....

hi all I’ve just had an appointment with my consultant and looking for some advi...

Peetzo

•28 days ago

14 Replies

Second opinion- advice please

Hi This is a bit of a long one so I do apologise. So over the last two years my Gynae has been anything but helpful and will not do surgery on me since it...

Hi This is a bit of a long one so I do apologise. So over the last two years ...

p1xcv123

•28 days ago

2 Replies

Living on Blood Thinners while being on Birth Control

Hello Has anyone experienced blood clots after their laparoscopic surgeries and how do you navigate living on blood thinners while taking any type of birth...

Hello Has anyone experienced blood clots after their laparoscopic surgeries and...

purpleblueskies

•28 days ago

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CA125 level 89

I’ve just had bloods back and have raised levels of ca125. Last time I had this test about 18 months ago it was 53. It is now 89. Large mass on my right ovary,...

I’ve just had bloods back and have raised levels of ca125. Last time I had this ...

K-Bear88

•28 days ago

11 Replies

Anyone had the same?

Hi,I wonder if anyone can help me, I had an ultrasound today and was told I have endometriosis, fibroids, a cyst on my left ovary and my right ovary is stuck...

Hi,I wonder if anyone can help me, I had an ultrasound today and was told I have...

BlueMocktail

•28 days ago

25 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for June 2024

grade 4 endo pouch of Douglas

Myoovi - has anyone tried this and what do you think?

Ladies, any help/advice to help me with my crazy hormones and endometriosis?

Anyone feel like they need to wee more often before and during cycle? Even though you dont need it?

Decapeptyl and pain

please can anyone help with how to manage the excruciating pain with endo?

Water works during endo flare - help!!!

Severe left pain/adhesions/adhesiolysis rant. Tired and confused.

officially diagnosed

Anyone had costochondritis with endometriosis

awaiting first gynaecology appointment- inhomogenous texture of uterus

stuck on what to do

Pelvic pain after laparoscopy

long periods and bleeding out bottom while on this long period

help advice on treatment route - nhs lap stage 4+

Protrusion in right upper abdomen

Should I keep pushing to be tested? Or are the doctors right?

Your story - MA Research

New Diagnosis of Endometriosis

is an MRI only looking for DIE?

newbie - just diagnosed need some help

Small bowel

PIP phone call help

Can an MRI detect superficial endo?

I dont no what to do with my self fell like giving up

hysterectomy

Second opinion- advice please

Living on Blood Thinners while being on Birth Control

CA125 level 89

Anyone had the same?

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