Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,111 members • 52,729 posts

All posts for August 2024

Nodules on bowel

Just had robotic surg for endo pcso and bowel resetion they found nodules on the bowel which they removed and sent off has any had this experience with them...

Just had robotic surg for endo pcso and bowel resetion they found nodules on the...

ocke2030

•5 hours ago

Be the first to reply

Can someone pls tell me if this is this endometriosis?

1. Pain getting triggered because of periods(starts between 3-5th day) which lasts for between 12-26 days 2. Lower abdomen+pelvic(in the middle + left side)...

1. Pain getting triggered because of periods(starts between 3-5th day) which las...

puku127

•1 day ago

2 Replies

Sever endo 16 years post hysterectomy

I am 58 and had a total hysterectomy 16 years ago, because I was told I had extremely bad pelvic inflammatory disease. now after years and years of problems,...

I am 58 and had a total hysterectomy 16 years ago, because I was told I had extr...

Joonaspryte

•1 day ago

2 Replies

Want to take advantage of all our features? Just log in!

Please help

Hi, I'm 26 and I had my first diagnostic laparoscopy yesterday on the NHS at my local hospital. This is following a previous diagnosis of adenomyosis and years...

Hi, I'm 26 and I had my first diagnostic laparoscopy yesterday on the NHS at my ...

Greyhound18

•2 days ago

6 Replies

MRI results

Hi everyone, I’ve had a MRI done the 4th of August and I wanted to know who long you reckon to get the results. I am really struggling with pain as I’m on...

Hi everyone, I’ve had a MRI done the 4th of August and I wanted to know who lo...

Cris_SC

•2 days ago

20 Replies

Passing multiple large clots

hi I’m 51 and was diagnosed with endometriosis 2 years ago, I actually thought I was going through menopause as my periods had stopped for several months but...

hi I’m 51 and was diagnosed with endometriosis 2 years ago, I actually thought I...

Avyb73

•2 days ago

5 Replies

Deep infiltrating bowel and infertility

Hi all, this is my first time posting here and looking for some advice really. I had a miscarriage in November (after trying for a second child for 1 year)...

Hi all, this is my first time posting here and looking for some advice really. ...

LJM89

•2 days ago

6 Replies

3 weeks post lap and getting pain in upper legs/groin

I’m 3 weeks post laparoscopy/excision of endometriosis and have noticed the last few days I’m getting either dull aches or shooting pains in my groin and upper...

I’m 3 weeks post laparoscopy/excision of endometriosis and have noticed the last...

Bagel96

•3 days ago

2 Replies

endo experiences

hi everyone, I’ve recently had multiple healthcare & gynae professionals suggest that I probably have a mild form of endometriosis, and am wondering if...

hi everyone, I’ve recently had multiple healthcare & gynae professionals sugge...

SwissRoll56

•3 days ago

1 Reply

endometriosis centre

My surgeon has referred me to the endometriosis centre in Manchester. Has anyone else ever had to wait upto a year to see them? My surgeon isn’t in my area I...

My surgeon has referred me to the endometriosis centre in Manchester. Has anyone...

Red476

•3 days ago

11 Replies

prostap

I’ve been on prosap for 7 months, how soon after stopping will my period come back? And the hot flushes stop

I’ve been on prosap for 7 months, how soon after stopping will my period come ba...

Red476

•3 days ago

10 Replies

desogestrel pill

Hello I'm just wanting some guidance or opinions on desogestrel pill if anyone has been on it for endometriosis or Adenomyosis to help with symptoms. I'm just...

Hello I'm just wanting some guidance or opinions on desogestrel pill if anyone h...

Highlandcow96

•4 days ago

3 Replies

Post Lap

Hi everyone, Just wondering how long pain lasted after laparoscopy for everyone? My op was 1st of August, untethering of bowel uterus/ovary and pelvic wall...

Hi everyone, Just wondering how long pain lasted after laparoscopy for everyone...

Tangoandmax

•4 days ago

13 Replies

Flare up during my periods.

For the last 2 months I have had very bad bowel flare up during my periods. I didn't know about this before. As I never experienced these symptoms. I feel endo...

For the last 2 months I have had very bad bowel flare up during my periods. I di...

Shabs2024

•4 days ago

1 Reply

pip tribunals?

hi so I’m just wanting to know if anyone who has endometriosis and tried applying for pip has got it? I have appealed mine and they have denied it again. I...

hi so I’m just wanting to know if anyone who has endometriosis and tried applyin...

Ginge2001

•4 days ago

10 Replies

Insomnia on Nortriplyline

I’ve been on Nortriplyline now for over a month now and have barely slept 🤦‍♀️. I was on Amitriptyline and was great for making me sleep. Has anyone...

I’ve been on Nortriplyline now for over a month now and have barely slept 🤦‍♀️....

endowarrior12

•5 days ago

4 Replies

Possible endometriosis return

I am 55 year old and about 11 years ago I had a hysterectomy to remove ovaries and womb but was left with cervix. I had sever endometriosis. It took me from...

I am 55 year old and about 11 years ago I had a hysterectomy to remove ovaries a...

Cockapoo_dog

•5 days ago

1 Reply

Advice on Zoladex?

I’m just looking for some advice regarding Zoladex, I was diagnosed with stage 3 Endo last November and my pain improved for maybe 3 months and then it’s back...

I’m just looking for some advice regarding Zoladex, I was diagnosed with stage 3...

Ps-endo

•5 days ago

4 Replies

Results

hi all, I’ve been trying to read up on articles what was found to help me understand my pain etc, due to it progressing again after having the mirena inserted...

hi all, I’ve been trying to read up on articles what was found to help me unders...

Trancelove

•5 days ago

1 Reply

Dealing with symptoms

Hello all, Does anyone have any tips for dealing with gastro problems during period and at other times during endo flare up? I had an ultrasound in Jan...

Hello all, Does anyone have any tips for dealing with gastro problems during pe...

Iceprincess123

•5 days ago

4 Replies

I have an appointment letter!

Hey, I have posted a few times recently and I just wanted to update. I have finally received an appointment letter! I mean.. 27th November, but still, its a...

Hey, I have posted a few times recently and I just wanted to update. I have fi...

Bumblebee11

•5 days ago

7 Replies

MRI clear, help please

Hi ladies, I’m at a bit of a loss and I was just wondering if someone could help. I suppose it’s the same old story, really. It’s a long one, I apologise!...

Hi ladies, I’m at a bit of a loss and I was just wondering if someone could he...

Bee_22

•6 days ago

11 Replies

Gaslighting and downplay of symptoms?

Long story short in December 2023 i was put on a waiting list for a gyno appointment for the possibility of having endometriosis. I just had my appointment...

Long story short in December 2023 i was put on a waiting list for a gyno appoint...

Khadijaa23

•6 days ago

9 Replies

Mirena/IUD - how was it for you?

I was diagnosed last November after symptoms for a long time - heavy periods, pain during sex, pain and bleeding between periods and at ovulation, pain going...

I was diagnosed last November after symptoms for a long time - heavy periods, pa...

ar1497

•7 days ago

2 Replies

Menopause at 29 via zoledax advice on dealing with symptoms please help

Hello. Quick summary tried everything available been on zoledax for 6 months now, specialist has advised to continue and will be having another appointment to...

Hello. Quick summary tried everything available been on zoledax for 6 months now...

Chronic21

•7 days ago

7 Replies

8cm cyst on my ovary - how do you all cope with the pain whilst waiting for surgery?!

I collapsed at home beginning of June and was admitted with suspected appendicitis (pain is all right sided). CT scan cleared appendix, but showed a 7cm cyst...

I collapsed at home beginning of June and was admitted with suspected appendicit...

ShropshireLassInPain

•7 days ago

3 Replies

Please help!

Hi all, I have written down a list of my symptoms - could you all advise if this sounds like endo please (I know you’re not doctors but I need some...

Hi all, I have written down a list of my symptoms - could you all advise if this...

Elbowpuppy

•8 days ago

4 Replies

Decapeptyl

HiHas anyone experienced heart rate issues whilst in decapeptyl with add back tibilone?

HiHas anyone experienced heart rate issues whilst in decapeptyl with add back ti...

Janey81

•8 days ago

2 Replies

Mefenamic Acid, Lansoprazole & Cyclizine Hydrochloride

Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please tell me if I understand well - so the landoprazole I should take like after food...

Hi, I’ve been prescribed these two by the GP to treat my pain. Can you please te...

senselessmind

•8 days ago

4 Replies

Entrometrosis & Adenomyosis

Hi everyone Just wondering your views on having Adenomyosis and entrometrosis, I am 51 years old & never had children, I've been tortured with endo for years...

Hi everyone Just wondering your views on having Adenomyosis and entrometrosis, ...

Jella123

•8 days ago

7 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for August 2024

Nodules on bowel

Can someone pls tell me if this is this endometriosis?

Sever endo 16 years post hysterectomy

Please help

MRI results

Passing multiple large clots

Deep infiltrating bowel and infertility

3 weeks post lap and getting pain in upper legs/groin

endo experiences

endometriosis centre

prostap

desogestrel pill

Post Lap

Flare up during my periods.

pip tribunals?

Insomnia on Nortriplyline

Possible endometriosis return

Advice on Zoladex?

Results

Dealing with symptoms

I have an appointment letter!

MRI clear, help please

Gaslighting and downplay of symptoms?

Mirena/IUD - how was it for you?

Menopause at 29 via zoledax advice on dealing with symptoms please help

8cm cyst on my ovary - how do you all cope with the pain whilst waiting for surgery?!

Please help!

Decapeptyl

Mefenamic Acid, Lansoprazole & Cyclizine Hydrochloride

Entrometrosis & Adenomyosis

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive