Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,658 members • 52,130 posts

All posts for September 2023

No endo found

Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel adhesions noted. Mirena inserted. May 2022 the pain started again, lower left...

Dec 2021 I had endo removed between my bladder and abdominal wall, dense bowel a...

Ccn2018

•7 months ago

13 Replies

recovery from endo surgery - reassurance if possible!

Hello, I am 16 days post laparoscopy with a high level of removal of endometriosis from “everywhere…all over the organs” (to quote my consultant!) with...

Hello, I am 16 days post laparoscopy with a high level of removal of endometrios...

Mxc908

•7 months ago

25 Replies

Lupron

My daughter is going to be put on this drug for uterine fibroids and potential endometriosis for a period of 7 months and then we'll have surgery for...

My daughter is going to be put on this drug for uterine fibroids and potential e...

Nature4Me

•7 months ago

9 Replies

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Rectovaginal endo surgery and bowel symptoms remaining

Hi, Question to anyone else who has had colorectal/ rectovaginal endo removed via an MDT. To what extent if any do you think this has alleviated your...

Hi, Question to anyone else who has had colorectal/ rectovaginal endo removed vi...

Sabrinacolada

•7 months ago

11 Replies

Referral rejected

Hi all, Usually under Cwm taf university health board but was referred to the Heath hospital in Cardiff as my case was too complex. Yesterday I found out that...

Hi all, Usually under Cwm taf university health board but was referred to the He...

DaviesTF14

•7 months ago

7 Replies

IUD + ENDO

Hey gurls, Got the iud put in 3 months ago. Been in heaps of pain (codeine everyday) and bleeding since. The doctor had told me it will take 12 months to...

Hey gurls, Got the iud put in 3 months ago. Been in heaps of pain (codeine eve...

Granolaloverxd

•7 months ago

6 Replies

Severe Bowel Endo/ Adeno

Hi all, posting for the first time just for a bit of support and to see if someone has been in a similar position. I have been going back and forth to the...

Hi all, posting for the first time just for a bit of support and to see if someo...

Zb92

•7 months ago

17 Replies

Waiting for a Hysterectomy

Hello everyone, I am writing to ask for any advice/support or similar situations. I am 39, F, live in Scotland UK Have been having problems since May 2021 -...

Hello everyone, I am writing to ask for any advice/support or similar situations...

Kittie5117

•7 months ago

3 Replies

Bilatreal TAP injections

Hey hope you're all good. My specialist told me my source of pain can't still be in my pelvic area as I've had excision 3 years ago. They think its memory of...

Hey hope you're all good. My specialist told me my source of pain can't still b...

filous

•7 months ago

5 Replies

tips on health related ptsd?

About a year ago, I passed out in the gym toilet from extreme pelvic pains which turned out to be a tubo ovarian abscess. This was the start of my...

About a year ago, I passed out in the gym toilet from extreme pelvic pains which...

Hc1992

•7 months ago

8 Replies

Bowel Endo Symptoms

hi all, Hoping for some support or advice. I’m being investigated for bowel endo - unsure of the stage atm. I get rectal bleeding when I get my period. I am...

hi all, Hoping for some support or advice. I’m being investigated for bowel e...

CharlotteT92-

•7 months ago

3 Replies

Who and how to get a diagnosis

Hi! So I'm currently endo diagnosed although not lap confirmed. However I've got a sneaky suspicion adeno could also be lingering. As the wait times are...

Hi! So I'm currently endo diagnosed although not lap confirmed. However I've g...

Bxnxnx24x

•7 months ago

11 Replies

all over body shakes

hi, I’ve been shaking non stop. I’m not cold or anything but my body just won’t stop shaking. I also feel quite tender to the touch. Have a bruise on my lower...

hi, I’ve been shaking non stop. I’m not cold or anything but my body just won’t ...

Kieraface

•7 months ago

10 Replies

currently in the hospital after my first lap!

hey everybody. Had to stay in overnight after my first lap yesterday because of a cysts bursting mid surgery, the surgeon said I have severe endometriosis and...

hey everybody. Had to stay in overnight after my first lap yesterday because of ...

Rosiehannah1

•7 months ago

3 Replies

Prostap/tibolone - regal study

Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm not coping well. I dont want to be another horror story on the internet so to...

Hi all, I'm 1 week into prostap and tibolone as part of the reval study and I'm ...

Ash24601

•7 months ago

2 Replies

Enlarged Spleen

I have had endo for 25 years but only diagnosed within the last 7 years. I've had one laparoscopy to remove endo (1st one) and one diagnostic recently that...

I have had endo for 25 years but only diagnosed within the last 7 years. I've ha...

Endowarrier23

•7 months ago

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lap is booked and i'm nervous

hi! so i randomly got a call yesterday arranging my laparoscopy after months of nothing! it's next thursday and i am so nervous. i've been waiting years for...

hi! so i randomly got a call yesterday arranging my laparoscopy after months of ...

VioletCoffee

•7 months ago

6 Replies

Thrush

I’ve have endo, adeno and a history of cysts. Last year I was suffering with extreme bloating and nausea and I paid to see a private gynaecologist who put me...

I’ve have endo, adeno and a history of cysts. Last year I was suffering with e...

Millabajack

•7 months ago

9 Replies

Zoladex and Tibolone causing achey legs

Hi, I was wondering if anyone had experienced painful achey legs whilst on Tibolone? I've recently changed from 3 month Prostap to monthly Zoladex due to the...

Hi, I was wondering if anyone had experienced painful achey legs whilst on Tibol...

Sheep2

•7 months ago

2 Replies

Lack of concentration & feeling uncomfortable on Prostap

Hello, I'm hoping someone can recommend something I can take to help with lack of concentration and feeling uncomfortable in your skin on Prostap? I've been...

Hello, I'm hoping someone can recommend something I can take to help with lack...

Womble84

•7 months ago

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Mini pill worsened

hey! Did the mini pill make your symptoms worse? I was told to go on the pill to reduce symptoms of endo but ever since I have started taking it I am in...

hey! Did the mini pill make your symptoms worse? I was told to go on the pill t...

EmilyKindon

•7 months ago

1 Reply

Deep infiltrated Bowel Endo

Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I...

Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth ...

Karen_92

•7 months ago

15 Replies

Post Hysterectomy

Hi all, I am 10 weeks post full hysterectomy. I feel I am doing well physically and have followed all advice. However, on Saturday some familiar pain started...

Hi all, I am 10 weeks post full hysterectomy. I feel I am doing well physically ...

Cardiff87

•7 months ago

2 Replies

prostap and bleeding

I have had three surgeries for removal of endometrioma cysts. My third surgery was 7th sept this year. They put me on prostap (started 8th sept) and kept my...

I have had three surgeries for removal of endometrioma cysts. My third surgery w...

User7776

•7 months ago

1 Reply

Medical negligence?

Hi, I have a lot of confusing feelings at the moment. I've recently discovered that what I felt about my first surgery seems to be true. When I had it, I...

Hi, I have a lot of confusing feelings at the moment. I've recently discovered ...

Giraffegreen

•7 months ago

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finding a consultant

Hi, Just wondering how to find a good endo consultant. Are the specialists in endo listed anywhere? There is a private consultant locally but his NHS work...

Hi, Just wondering how to find a good endo consultant. Are the specialists in e...

Endohasme

•7 months ago

3 Replies

Did your Lap make your endo pain worse?

Hey everyone! I was diagnosed with Endo about 3 weeks ago following a lap to remove a swollen fallopian tube. My letter stated ‘the scarring in my pelvis...

Hey everyone! I was diagnosed with Endo about 3 weeks ago following a lap to re...

EmilyKindon

•7 months ago

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Pain clinic

Hi guys :) I am due on my period (like, today) and last month was absolutely horrific to the point where about 5 different family members begged to take me...

Hi guys :) I am due on my period (like, today) and last month was absolutely h...

endo_the_stigma

•7 months ago

10 Replies

mri / ultrasound

hello all☺️ Just more like an update more than anything and to check I made the right choice. I asked about having an MRI instead of an ultrasound, the gynae...

hello all☺️ Just more like an update more than anything and to check I made the...

hobbitty

•7 months ago

14 Replies

does anyone get too frequent urination during your flare ups or constantly

well i have just noticed a couple of days back that I’m going to the loo to pee almost every hour and I’m not drinking that much Does anyone else goes...

well i have just noticed a couple of days back that I’m going to the loo to pee ...

Lovedsibling

•7 months ago

5 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2023

No endo found

recovery from endo surgery - reassurance if possible!

Lupron

Rectovaginal endo surgery and bowel symptoms remaining

Referral rejected

IUD + ENDO

Severe Bowel Endo/ Adeno

Waiting for a Hysterectomy

Bilatreal TAP injections

tips on health related ptsd?

Bowel Endo Symptoms

Who and how to get a diagnosis

all over body shakes

currently in the hospital after my first lap!

Prostap/tibolone - regal study

Enlarged Spleen

lap is booked and i'm nervous

Thrush

Zoladex and Tibolone causing achey legs

Lack of concentration & feeling uncomfortable on Prostap

Mini pill worsened

Deep infiltrated Bowel Endo

Post Hysterectomy

prostap and bleeding

Medical negligence?

finding a consultant

Did your Lap make your endo pain worse?

Pain clinic

mri / ultrasound

does anyone get too frequent urination during your flare ups or constantly

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