Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

73,019 members•53,339 posts

All posts for January 2023

Coil and Endometriosis

Hi all! I had my first laparoscopy back in May 2022 and I had a mirena coil put in as this was meant to help with the endo. A little background, it took me 9...

Hi all! I had my first laparoscopy back in May 2022 and I had a mirena coil put ...

EmsP

•2 years ago

16 Replies

New NICE guideline for endometriosis

NICE are soon to start developing the new endo guideline. As many of you will know I run an evidence-based UK endo guidance and info group that uses the...

NICE are soon to start developing the new endo guideline. As many of you will k...

Lindle

•2 years ago

12 Replies

Less bloating after surgery

Hi All, I had my MRI at the start of the year and now waiting for surgery, does anyone know if this will help with the bloating ? Mines is excessive and so...

Hi All, I had my MRI at the start of the year and now waiting for surgery, does...

AG12xx

•2 years ago

6 Replies

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advice on the pill

so I’ve tried a few pills and nothing helped. Been on Lucette pill for past 8 months. Really helped for about 6 months. Less cramping and lighter periods also...

so I’ve tried a few pills and nothing helped. Been on Lucette pill for past 8 mo...

Hayayaya

•2 years ago

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Pain relief for endometriosis & fibroids

Hi everyoneJust wondering if anyone has experienced the same as myself,I've endrometrosis and fibroids,had my last lap 8 years ago,and been in constant pain...

Hi everyoneJust wondering if anyone has experienced the same as myself,I've end...

Jella123

•2 years ago

3 Replies

Constant bleeding... Help?!

Hello, Bit of a back story I have been suffering with period bleeding for 3 1/2 weeks and then about 3 days break every single month, I have been trying for...

Hello, Bit of a back story I have been suffering with period bleeding for 3 1/...

Lauren233

•2 years ago

2 Replies

Help! I want a baby so bad, but partner isn't ready ...and I have endometriosis!

Im a 30 year old Primary School Teacher and my Fiancé in a 31 year old University Lecturer. We have been together since we were 16 and 17 years old and are...

Im a 30 year old Primary School Teacher and my Fiancé in a 31 year old Universit...

Hidden

•2 years ago

14 Replies

Hqve you heard this... 'Pregnancy can cure it we don't know why'

I've been told from a scan it is expected I have adenomyosis.They've done a lap and it was negative to endo, and they're going to do an MRI. Theyve said if the...

I've been told from a scan it is expected I have adenomyosis.They've done a lap ...

Bluehusky96

•2 years ago

26 Replies

Frustrated with NHS

hi. I don’t even know if I ‘belong’ to this group. I’ve always had heavy periods and thought nothing of it (I mean doesn’t everyone have pain at that time of...

hi. I don’t even know if I ‘belong’ to this group. I’ve always had heavy periods...

Catlady1978

•2 years ago

7 Replies

Recent diagnosis & upcoming hysterectomy - what should I expect?

Hello, this is my first post and I am so thankful to have found this group 😄 In the last 5 months, I have experienced surgical menopause, been diagnosed with...

Hello, this is my first post and I am so thankful to have found this group 😄 In...

Hidden

•2 years ago

6 Replies

hormonal issues- is it the mirena coil?

Hi all, I wondered if anyone could give me advice, but I have been diagnosed with endometriosis last year and had my first laparoscopy surgery and all went...

Hi all, I wondered if anyone could give me advice, but I have been diagnosed w...

Chester29

•2 years ago

2 Replies

mirena coil - is it worth it? Other options?

Hi everyone, I had the mirena coil fitted 5 days ago and since then its caused me nothing but grief. I know it’s been a very short period of time and that for...

Hi everyone, I had the mirena coil fitted 5 days ago and since then its caused ...

oceandaisies

•2 years ago

13 Replies

painkiller recommendations?

hi all, I hope everyone is okay. I’ve been struggling with chronic daily pain, I have severe endo which has caused one of my kidneys to fail and so I have a...

hi all, I hope everyone is okay. I’ve been struggling with chronic daily pain...

TashaBarry

•2 years ago

10 Replies

Not endo but grief!! Grief is killing me

sorry I know this isn’t about medical terms but I’ve been always had the best support on here🤍 over the past year I have lost everyone my dad my aunties my...

sorry I know this isn’t about medical terms but I’ve been always had the best su...

Coral07

•2 years ago

4 Replies

Any advice?

My nearly 18 y/o has a 4 year plus history of endo. Confirmed with lap. A year ago mirena coil fitted, no improvement , constant bleeding - tried desogesterol,...

My nearly 18 y/o has a 4 year plus history of endo. Confirmed with lap. A year a...

Redmum2

•2 years ago

11 Replies

Endometriosis Action Month March 2023...

Every March, people all over the world show their support for everyone affected by endometriosis and come together for Endometriosis Action Month. And this...

Every March, people all over the world show their support for everyone affected ...

TogetherWeAreStrong

Endometriosis UK•2 years ago

1 Reply

Period Education. Gobsmacked 😶

Education, education, education . I am gobsmacked 😶 and feel that as a group and organisation we have each other’s backs. I am left reeling by what might be,...

Education, education, education . I am gobsmacked 😶 and feel that as a group an...

BloomingMarvellous

•2 years ago

32 Replies

Contraception for endo

I have recently been diagnosed with mild endometriosis at the age of 29, I am looking to start a family in the next couple of years. Currently I am on no...

I have recently been diagnosed with mild endometriosis at the age of 29, I am lo...

Harriet123

•2 years ago

3 Replies

Endometriosis in Nerves - specialist

Hi does anyone know of a specialist neurologist in the uk who does microsurgery on endometriosis of the nerves? I know there is Camran Nezhat in the USA...

Hi does anyone know of a specialist neurologist in the uk who does microsurgery...

TealBananaPeel

•2 years ago

1 Reply

Bilateral sciatic? Tingly, limb weakness not disc related!

Hi lovelies, Currently writing this from a hospital bed ( missing an endometresiosis support group I said I'd go to today!) just to see if anyone else has had...

Hi lovelies, Currently writing this from a hospital bed ( missing an endometresi...

Sabrinacolada

•2 years ago

21 Replies

Cerazette Side Effects - advice on coming off the POP

Hi All, So I have been on the POP Cerazette for 4.5 months and have had various side effects which have come and gone like, painful eyes, frequent long...

Hi All, So I have been on the POP Cerazette for 4.5 months and have had variou...

Circe3

•2 years ago

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Surgical menopause - HRT and cutting patches

HeyI had a oophorectomy in June, struggled to get the right balance of estrogen. Finally put on the 100mg patches which have made a difference in terms of I'm...

HeyI had a oophorectomy in June, struggled to get the right balance of estrogen....

My_adventures

•2 years ago

2 Replies

Chest pains

Anyone with endo experience severe chest pains? Had x-rays and scans multiple times, all come back clear. Is it to do with the endo?

Anyone with endo experience severe chest pains? Had x-rays and scans multiple ti...

Saf1Saf1

•2 years ago

9 Replies

Endometriosis of the skin

hi has anyone come across this before? I have raised lumps on my neck. I’ve been told my the dermatologist that it’s a form of endometriosis. She is taking...

hi has anyone come across this before? I have raised lumps on my neck. I’ve bee...

Beckie1

•2 years ago

5 Replies

Pain 1 week post lap 😬

1 week post lap and apart from being really badly constipated for a few days and generally uncomfortable felt ok however, today ive had quite bad pain just in...

1 week post lap and apart from being really badly constipated for a few days and...

Darlingdiva

•2 years ago

4 Replies

Possible Scar endometriosis, but struggling to get help.

Hello all, New here. I find myself here as I actually don't know what to do. I have been living with pain now since December 2021. My forst episode was so...

Hello all, New here. I find myself here as I actually don't know what to do. I...

ItsMeBe

•2 years ago

2 Replies

Could it be ovarian remenant syndrom? Had left ovary removed 3 years ago scan now say have cyst on left ovary, I don't have a left ovary!

3 years ago had left ovary removed due to endo.Had a scan in July showing cyst. Gyno said maybe not cyst have another scan. So wait for scan. Had another scan...

3 years ago had left ovary removed due to endo.Had a scan in July showing cyst. ...

Purple_Cavalier

•2 years ago

1 Reply

Updates- 😱😤🤯🧐

Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I...

Hi Feel like the only ones that will understand are people who are the same as m...

Awwy

•2 years ago

16 Replies

Prostap injection advice

Hi, I started my second round of prostap injections last September as getting pregnant has been a fail for me. (My blog explains more about me so I won’t bore...

Hi, I started my second round of prostap injections last September as getting pr...

MarieC24

•2 years ago

Be the first to reply

Suspected Endometriosis

Hi everyone. Just looking for support/advice. Not really sure what to do or where to go from here after being told I could possibly have endometriosis…and...

Hi everyone. Just looking for support/advice. Not really sure what to do or whe...

littledove97

•2 years ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2023

Coil and Endometriosis

New NICE guideline for endometriosis

Less bloating after surgery

advice on the pill

Pain relief for endometriosis & fibroids

Constant bleeding... Help?!

Help! I want a baby so bad, but partner isn't ready ...and I have endometriosis!

Hqve you heard this... 'Pregnancy can cure it we don't know why'

Frustrated with NHS

Recent diagnosis & upcoming hysterectomy - what should I expect?

hormonal issues- is it the mirena coil?

mirena coil - is it worth it? Other options?

painkiller recommendations?

Not endo but grief!! Grief is killing me

Any advice?

Endometriosis Action Month March 2023...

Period Education. Gobsmacked 😶

Contraception for endo

Endometriosis in Nerves - specialist

Bilateral sciatic? Tingly, limb weakness not disc related!

Cerazette Side Effects - advice on coming off the POP

Surgical menopause - HRT and cutting patches

Chest pains

Endometriosis of the skin

Pain 1 week post lap 😬

Possible Scar endometriosis, but struggling to get help.

Could it be ovarian remenant syndrom? Had left ovary removed 3 years ago scan now say have cyst on left ovary, I don't have a left ovary!

Updates- 😱😤🤯🧐

Prostap injection advice

Suspected Endometriosis

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