Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,655 members • 52,130 posts

All posts for May 2019

What's the next step?...

Right, I'm sat here feeling sorry for myself. Once again ive been floored by this..... need to take control! Does anyone have any diet tips? I need to evaluate...

Right, I'm sat here feeling sorry for myself. Once again ive been floored by thi...

Katie1982

•5 years ago

2 Replies

Endovam

I have heard only positives about Endovan. so much that i am getting suspicious.. please give me a heads up guys.. have you tried it? i have severe endo pain

I have heard only positives about Endovan. so much that i am getting suspicious....

Barci1234

•5 years ago

1 Reply

Any advice?

Hi I have my lap coming up and I’m not sure what to regarding my pain relief. I take liquid morphine everyday throughout the day and I’m not sure what to do on...

Hi I have my lap coming up and I’m not sure what to regarding my pain relief. I ...

Xroisinellenx

•5 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Three months after laparoscopy

Hi all, I had a laparoscopy mid February. Endo was removed from the ligament of my uterus and was also found on my ovary. All on my left side. My recovery has...

Hi all, I had a laparoscopy mid February. Endo was removed from the ligament of...

13kd

•5 years ago

3 Replies

2 operations for one cyst and Zoladex injection

(I know I have spelt the name wrong of the injection). Privately by 2 top surgeons they said they could take the endometrioma out (5 by 5 by 4cm) in one...

(I know I have spelt the name wrong of the injection). Privately by 2 top surgeo...

Hidden

•5 years ago

13 Replies

New Endometriosis diagnosis advice

Hey everyone. Just discovered this group. I had surgery just under 8 weeks ago after I found out I had a blocked Fallopian tube, they found severe...

Hey everyone. Just discovered this group. I had surgery just under 8 weeks ago a...

Emmyh80s

•5 years ago

2 Replies

Zoladex side effects

Have just come to the end of a three month injection and had a new one in yesterday (monthly instead of 3 month one due to mix up at hospital). Have had the...

Have just come to the end of a three month injection and had a new one in yester...

Hidden

•5 years ago

9 Replies

Looking to hear other people's experiences...

So it's been a while since I posted on here, 2 years infact. My health problems started over 5 years ago with my symptoms including abdominal pain, kidney...

So it's been a while since I posted on here, 2 years infact. My health problems ...

AG22

•5 years ago

Be the first to reply

Op coming up

Hey guys I’m having surgery in about a weeks time , I’ve been with my husband for over 9 years and never fallen pregnant never used protection as I’ve always...

Hey guys I’m having surgery in about a weeks time , I’ve been with my husband fo...

Sophiii

•5 years ago

Be the first to reply

Stage 4 Endo and Endometriomas

I have been diagnosed with stage 4 endo and I have 3 endometrioma cysts. The ultrasound confirmed the cysts and the MRI discovered the endo. My consultant...

I have been diagnosed with stage 4 endo and I have 3 endometrioma cysts. The ult...

Hidden

•5 years ago

5 Replies

Bowel symptoms

Hey, In hindsight I always had gynae symptoms but due to lack of knowledge didn't realise. By 2011 these were extreme. Was diagnosed with endo 2012 but think...

Hey, In hindsight I always had gynae symptoms but due to lack of knowledge didn'...

Janeyd27

•5 years ago

6 Replies

I have no life!!

Hiya girls, this is my first time writing on here and think I’m just looking for advice/reassurance. Sorry it’s my life story 🙈 I am 27 and have struggled...

Hiya girls, this is my first time writing on here and think I’m just looking for...

Amib

•5 years ago

5 Replies

Raised CA-125 and a cyst

Hi, anyone have raised ca-125 levels? Mine is 75 ( normal is 0-35). I have an ovarian cyst measuring 3cm. My gynaecologist said the raised levels would be...

Hi, anyone have raised ca-125 levels? Mine is 75 ( normal is 0-35). I have an o...

Poppymum

•5 years ago

8 Replies

I am building an endo app to share what helped along my journey. What would you find helpful?

I am a software engineer that has been stuck with endometriosis pain for more then 15 years. Recently have been taken with an ambulance to St. Thomas for...

I am a software engineer that has been stuck with endometriosis pain for more th...

claudia_d

•5 years ago

19 Replies

Endometriosis on diaphragm

Hi all! So I was diagnosed with stage 4 endometriosis after a laparoscopy in 2016, almost exactly 3 years ago to the date! During the laparoscopy my...

Hi all! So I was diagnosed with stage 4 endometriosis after a laparoscopy in 201...

endosisterr

•5 years ago

21 Replies

Prostap and fibroids

Hi all, I haven't posted before but I was wondering whether anyone can tell me their experiences being on prostap for shrinkage of fibroids. I have a large...

Hi all, I haven't posted before but I was wondering whether anyone can tell me ...

LoveSmith123

•5 years ago

2 Replies

Need fertility support? Join the Swansea Fertility Group meeting on Tuesday 4 June

Are you affected by fertility issues? Do you want expert information and to meet others who are trying to conceive? Join the Swansea Fertility Group meeting on...

Are you affected by fertility issues? Do you want expert information and to meet...

AliceMatthews

•5 years ago

Be the first to reply

Advice after diagnosis?

Hello! So on Tuesday I had my first laparoscopy and got diagnosed with endometriosis. It’s come as a shock but after 2+ years of pain and suffering I’m happy...

Hello! So on Tuesday I had my first laparoscopy and got diagnosed with endometr...

livsophieh

•5 years ago

6 Replies

Mefanamic acid, painkillers and advice about moving area

Hiya, I changed GP recently and last week rang to get my repeat prescriptions of stemetil and mefanamic acid which I take to treat some of my symptoms when...

Hiya, I changed GP recently and last week rang to get my repeat prescriptions of...

csytasista

•5 years ago

1 Reply

Fowler's syndrome..... Bladder issues and UTI's

Hi ladies, As well as stage three endo, adenomyosis and some fibroids I'm now being diagnosed as having fowler's syndrome. Along my endo journey I...

Hi ladies, As well as stage three endo, adenomyosis and some fibroids I'm now b...

Chillier

•5 years ago

Be the first to reply

not sure how to handle the diagnosis

Hello, I am having one of those "isolated" days. I don't know anyone with endometriosis, with which I have been diagnosed for the past 13 years. As of this...

Hello, I am having one of those "isolated" days. I don't know anyone with endom...

Knina

•5 years ago

11 Replies

Possible endometriosis

Hi, so I've been booked in to have a preop on the 3rd if June, As they think I might have endometriosis. I've been suffering nearly 9months. I was on the...

Hi, so I've been booked in to have a preop on the 3rd if June, As they think I ...

Purple101214

•5 years ago

8 Replies

Pulsating in tummy where I had op

Hi - I had a laparoscopy last week for ovarian cyst removal and they found endometriosis. There was so much that they couldn’t remove it and I need another op....

Hi - I had a laparoscopy last week for ovarian cyst removal and they found endom...

Jensx1

•5 years ago

8 Replies

Green and confused

Hi. I'm 52. I had a laparascopy and hysterscopy for another condition in September 2018, the 2 months 'urgent appointment happened 4 months later when I was...

Hi. I'm 52. I had a laparascopy and hysterscopy for another condition in Septemb...

Anastasia17

•5 years ago

5 Replies

Laparoscopy- still feeling rubbish at WEEK FOUR! 😩😭

Hi, I had my laparoscopy surgery four weeks ago now and I just can’t seem to feel myself again 🙁😭. I had removal of endometriosis under my left ovary and a...

Hi, I had my laparoscopy surgery four weeks ago now and I just can’t seem to f...

Ka06

•5 years ago

10 Replies

Debilitating cramps even mid pill, post-lap- wrong type of birth control?

5 mos post-laprascopy and periods are still really painful. I'm 2 weeks in on Loloestrine (prescribed this one since I'm "small") but just had 2 days of...

5 mos post-laprascopy and periods are still really painful. I'm 2 weeks in on Lo...

alpacamadness

•5 years ago

1 Reply

Manchester specialists?

Can anyone recommend a private doctor in Manchester for a laparoscopy? I’ve been waiting for so long for my nhs appointment don’t think I can cope any longer!...

Can anyone recommend a private doctor in Manchester for a laparoscopy? I’ve bee...

Sazzy_K

•5 years ago

Be the first to reply

Vaginal bleeding with bowel movement? 😅

Not the nicest post, I have the Mirena coil fitted and low oestrogen combined pill on top to stop bleeding, all working well to stop periods. Still have daily...

Not the nicest post, I have the Mirena coil fitted and low oestrogen combined pi...

Katyt234

•5 years ago

2 Replies

Just saying hi and offering any support anyone dealing with endometreosis needs if I can xx

Hi, I'm 33 years old. I've been dealing with endometreosis for the past 4 years. I have had horrific experiences of the NHS specifically in the diagnosis and...

Hi, I'm 33 years old. I've been dealing with endometreosis for the past 4 years....

Abbbb

•5 years ago

12 Replies

Ultrasound- cysts and endo?

Hi, I’ve just had an ultrasound and the lady did it has told me I have 4 cysts (2 on each ovary) is this something normal to happen with endo please? And do...

Hi, I’ve just had an ultrasound and the lady did it has told me I have 4 cysts (...

Lkj510

•5 years ago

3 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for May 2019

What's the next step?...

Endovam

Any advice?

Three months after laparoscopy

2 operations for one cyst and Zoladex injection

New Endometriosis diagnosis advice

Zoladex side effects

Looking to hear other people's experiences...

Op coming up

Stage 4 Endo and Endometriomas

Bowel symptoms

I have no life!!

Raised CA-125 and a cyst

I am building an endo app to share what helped along my journey. What would you find helpful?

Endometriosis on diaphragm

Prostap and fibroids

Need fertility support? Join the Swansea Fertility Group meeting on Tuesday 4 June

Advice after diagnosis?

Mefanamic acid, painkillers and advice about moving area

Fowler's syndrome..... Bladder issues and UTI's

not sure how to handle the diagnosis

Possible endometriosis

Pulsating in tummy where I had op

Green and confused

Laparoscopy- still feeling rubbish at WEEK FOUR! 😩😭

Debilitating cramps even mid pill, post-lap- wrong type of birth control?

Manchester specialists?

Vaginal bleeding with bowel movement? 😅

Just saying hi and offering any support anyone dealing with endometreosis needs if I can xx

Ultrasound- cysts and endo?

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive