Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for February 2022

Waiting to be tested for endometriosis. Any advice on pain while I wait to be seen by a gynaecologist please.

I'm 35yrs old, I suffer from gastritis, IBS, mental health issues and my doctors suspects I have endometriosis. I'm awaiting a pelvic scan and to be seen by...

I'm 35yrs old, I suffer from gastritis, IBS, mental health issues and my doctor...

Hpaddict

•3 years ago

13 Replies

Decapeptyl and norethisterone together

Hello - I’m into my seventh week of the decapeptyl treatment to shrink fibroids. I was having profuse bleeding so I was out back into norethisterone which has...

Hello - I’m into my seventh week of the decapeptyl treatment to shrink fibroids....

KimG21

•3 years ago

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Menopause injections

Hi all. Hoping for some advice. I was recently referred back to gynae after some time regarding my pain. After trialling the pill for several months with no...

Hi all. Hoping for some advice. I was recently referred back to gynae after so...

AMJ88

•3 years ago

10 Replies

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Has anyones Endometriosis pain returned 5 months after treatment

I had my second endo surgery back in September and already my pain/symptoms have returned. Has anyone else experienced this ?

I had my second endo surgery back in September and already my pain/symptoms have...

Kgleason88

•3 years ago

6 Replies

Brown bleed

Hi could someone help me I was on zoladex from November to January the 26th I was told to come of it as it was making my worse but I've just gone for a wee and...

Hi could someone help me I was on zoladex from November to January the 26th I wa...

Lilly2010

•3 years ago

1 Reply

Access to names of experts in imaging of deep endometriosis which hopefully will expedite referrals to endo centres

The BSGE had a webinar the other day and asked for questions to be put on their Instagram post. I put several on on behalf of not just members of the UK endo...

The BSGE had a webinar the other day and asked for questions to be put on their ...

Lindle

•3 years ago

7 Replies

Laparoscopy on Friday

I’ve got my laparoscopy on Friday morning to diagnose and treat endo and I’m an absolute bundle of emotions. I haven’t slept for about 4 days because I keep...

I’ve got my laparoscopy on Friday morning to diagnose and treat endo and I’m an ...

RosieLou94

•3 years ago

11 Replies

NIGHTMAREEE

So i chased up my appointment for lap...... Im not even in a waiting list for a lap now as my original consultant retired so his list got shared out and now I...

So i chased up my appointment for lap...... Im not even in a waiting list for a ...

Crazycatladyjones

•3 years ago

2 Replies

Pain 7 months post lap

Hi! I had my laparoscopy 7 months ago and amazingly, haven’t had any cramps or Endo pain since then however, I was woken up in the night with the worst pain...

Hi! I had my laparoscopy 7 months ago and amazingly, haven’t had any cramps or E...

Littlenestofvipers

•3 years ago

1 Reply

Periods post op

I had laparoscopy and treatment in November everything went well my periods were normal but painful ...4 months later I've had periods every 2 weeks for the...

I had laparoscopy and treatment in November everything went well my periods were...

Jaye75

•3 years ago

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Lower Back Pain. Both Side of Stomach and Pelvic Cramping

Anyone get lower back pin that’s not your back but it feels deep as well as pelvic pain. The back pain redacted to the side of my atom and from of stomach and...

Anyone get lower back pin that’s not your back but it feels deep as well as pelv...

Littlebug77

•3 years ago

1 Reply

Is it normal to wait 9 months for an emergency operation stage 4 Endrometriosis

My 29 year old daughter was diagnosed stage 4 Endrometriosis with 2 ovarian cysts 16cm and 15cm and bowel and uterus connection in August 2021, she was told...

My 29 year old daughter was diagnosed stage 4 Endrometriosis with 2 ovarian cyst...

Wertxcv

•3 years ago

5 Replies

Did you ovulate straight after first period following laparoscopy and excision of endo?

Just wondering what to expect, had my period 9 days post op, lasted 6 days and was heavy and painful for the last 4 days of it. I’m trying to track my...

Just wondering what to expect, had my period 9 days post op, lasted 6 days and w...

Bluerock7

•3 years ago

2 Replies

Severe pain but clear ultrasound?

Hi all, I was diagnosed with Endo via laparoscopy in 2018. Since then I've struggled to get care/treatment on the NHS so mostly self managing. A couple of...

Hi all, I was diagnosed with Endo via laparoscopy in 2018. Since then I've strug...

Squirrel1991

•3 years ago

5 Replies

Conceiving after prostap 3

Hiya I had my last 3 month prostap injection November 14th it's now Feb 27th I can feel slightly cramps in my stomach so may be an indicator of my period...

Hiya I had my last 3 month prostap injection November 14th it's now Feb 27th I...

Tasha200

•3 years ago

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Should I be chasing?

I had a 14cm cyst discovered by ultrasound September last year. I've seen the endo consultant twice, but I'm still waiting for the mri and they won't operate...

I had a 14cm cyst discovered by ultrasound September last year. I've seen the ...

BlueGiraffe9

•3 years ago

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IVF with endometriosis

Hi any advice on what to ask the Dr about the drugs given for ivf. Will it make my endo a lot worse? Does it depend how bad your endo is already? Can anyone...

Hi any advice on what to ask the Dr about the drugs given for ivf. Will it make...

JenRow7

•3 years ago

7 Replies

Anyone tried quercetin?

Hello all, Read some really promising studies recently about quercetin, saying not only does it inhibit the growth of endo it actually shrinks the lesions....

Hello all, Read some really promising studies recently about quercetin, saying n...

charlatan

•3 years ago

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Embarrassing bowel question 🫣

Hi, so this is a bit of an embarrassing one and I've been egging myself on to ask others. So when I'm on my period, or in the week of my period where the flare...

Hi, so this is a bit of an embarrassing one and I've been egging myself on to as...

HolsBamboozledwomb

•3 years ago

4 Replies

Should I try something else?

Havent been diagnosied yet awaiting lap For years ive struggled with left sided pelvic pain and always fobbed off with constipation ibs etc. Periods were...

Havent been diagnosied yet awaiting lap For years ive struggled with left sided...

Crazycatladyjones

•3 years ago

9 Replies

Which foods have made your endometriosis better/ worse?

I'm hoping to manage my symptoms through diet. For me personally, it's all trial and error. Still figuring out what works/ what doesn't. I'm just curious as...

I'm hoping to manage my symptoms through diet. For me personally, it's all trial...

EndoRabbit08

•3 years ago

13 Replies

Pain after eating?

I have started getting severe cramps in my lower abdomen every time I eat. The cramps are not “normal cramps” they are so sore. It is in both my left and right...

I have started getting severe cramps in my lower abdomen every time I eat. The c...

Sky342

•3 years ago

6 Replies

Pain worse after coil fitted

Hi everyone, I had the Mirena coil fitted in November to help with my Endo pain and bleeding. They did say it can take 6 months before it starts to work but...

Hi everyone, I had the Mirena coil fitted in November to help with my Endo pain ...

Millsmom

•3 years ago

1 Reply

Pointless to chase hospital re cancelled surgery?

Hi, my surgery for 8-Feb was cancelled the day before. A bit gutting. Anyway I was told they’d call when another date is available. So far there’s been...

Hi, my surgery for 8-Feb was cancelled the day before. A bit gutting. Anyway I ...

gettingusedtoendo

•3 years ago

4 Replies

Wait times for Sheffield BSGE

Hi all, I have been referred to Dr Baxter by my surgeon at Doncaster after two failed attempts at removing endo. After the second Laponinwas told both my...

Hi all, I have been referred to Dr Baxter by my surgeon at Doncaster after two...

Bec411

•3 years ago

9 Replies

Is HRT so bad?

I told a friend yesterday that I might need a hysterectomy (for Endo), and she said ‘oh I do hope not as you will be put on a very strong dose of HRT - surely...

I told a friend yesterday that I might need a hysterectomy (for Endo), and she s...

Hidden

•3 years ago

22 Replies

How long do I take Rigevidon for??

I’m new to taking the pill, and my doctor told me to take it for 3 months then have a week break then carry on however the packet days take for 21 days then 7...

I’m new to taking the pill, and my doctor told me to take it for 3 months then h...

Bella099

•3 years ago

4 Replies

Stage 4 endometriosis

Hi everyone I'm wanting some advise, I went in for keyhole surgery to check for endo and when they have went in they found I am covered in it, they got rid of...

Hi everyone I'm wanting some advise, I went in for keyhole surgery to check for ...

Bry1991

•3 years ago

5 Replies

Does anyone get really bad headaches with zoladex?

Just had my 4th injection and my headaches are horrible. Really struggling with them and insomnia.

Just had my 4th injection and my headaches are horrible. Really struggling with...

Jako1982

•3 years ago

2 Replies

Focal adenomyosis fertility

Does anyone know about focal adenomyosis? I've got my MRI results and that's one of the things it mentions. I havent got an appointment with my consultant...

Does anyone know about focal adenomyosis? I've got my MRI results and that's one...

femacrae

•3 years ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for February 2022

Waiting to be tested for endometriosis. Any advice on pain while I wait to be seen by a gynaecologist please.

Decapeptyl and norethisterone together

Menopause injections

Has anyones Endometriosis pain returned 5 months after treatment

Brown bleed

Access to names of experts in imaging of deep endometriosis which hopefully will expedite referrals to endo centres

Laparoscopy on Friday

NIGHTMAREEE

Pain 7 months post lap

Periods post op

Lower Back Pain. Both Side of Stomach and Pelvic Cramping

Is it normal to wait 9 months for an emergency operation stage 4 Endrometriosis

Did you ovulate straight after first period following laparoscopy and excision of endo?

Severe pain but clear ultrasound?

Conceiving after prostap 3

Should I be chasing?

IVF with endometriosis

Anyone tried quercetin?

Embarrassing bowel question 🫣

Should I try something else?

Which foods have made your endometriosis better/ worse?

Pain after eating?

Pain worse after coil fitted

Pointless to chase hospital re cancelled surgery?

Wait times for Sheffield BSGE

Is HRT so bad?

How long do I take Rigevidon for??

Stage 4 endometriosis

Does anyone get really bad headaches with zoladex?

Focal adenomyosis fertility

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