Urgency card for endo: Just wondering of... - Endometriosis UK

Endometriosis UK

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Urgency card for endo

Bedishome profile image
8 Replies

Just wondering of anyone knows where or if there is an urgency card available for endometriosis? I've seen them for crohns and colitis and I've seen endo cards explaining you're in pain and need to sit down but I have extreme urgency /painful bowl movements and if I hold anything it makes my endo pain unbearable. I've been told I can't use toilets in public places before or waited in long queues in extreme pain and was hoping to find a card that could help avoid this situation. Maybe this is something endometriosis UK could produce? I'm sure a lot of us could benefit from this. Any advice would be welcome

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Bedishome profile image
Bedishome
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8 Replies
AllthatGlitters profile image
AllthatGlitters

You will find them on Etsy. I purchased an adenomyosis one. X

Bedishome profile image
Bedishome in reply to AllthatGlitters

Thank you! Will check it out

x_emily_x profile image
x_emily_x

You will need a radar key

theendometriosisfoundation....

shop.disabilityrightsuk.org...

bcpcouncil.gov.uk/Communiti...

Here is some information that should answer a lot of your questions.

The easiest way for you from the sounds of it, if you are not in receipt of disability payments, is a letter/referral from your GP. You will have to explain to them or possibly better to get it in writing to them and complain if its causing you a lot of difficulty in your life. I hope these links help x

Here is one for a hidden disability sunflower lanyard hdsunflower.com/uk/catalogs...

EndoSuckss profile image
EndoSuckss

You can get a card from the Bladder and Bowel society - I have a physical card in the purse, and a digital card on my phone so never out without it!

It doesn't specifically say anything about endo or adeno on it, but it doesn't need to.

Linley profile image
Linley

Suggest you also get a Radar key to access disabled toilets.

Lily1986 profile image
Lily1986

Hi, I got a free ‘just can’t wait’ card from :-bladderandbowel.org/help-in...

Unfortunately suffer very badly too with bowel and bladder due to Endometriosis.

Best wishes to you xx

Lily1986 profile image
Lily1986 in reply to Lily1986

Oh yes and the radar keys are brilliant, you can order them on the above site or Amazon.

Sunset-lady profile image
Sunset-lady

Oh my goodness I feel like this is an entire world I know nothing about!! You can get a card! I need this. Genius. I need it for flooding and bowel issues x

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