Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

74,153 members•53,790 posts

Sort posts by:

Feeling stuck!

Hi! Any advice would be greatly appreciated. I am 18 & have been having periods since I was 12, they are ridiculously painful (vomiting, fainting & have had...

Hi! Any advice would be greatly appreciated. I am 18 & have been having period...

strawberry48

•5 hours ago

Be the first to reply

can’t wee

New to this doctor thinks I have endo but from about 3 pm I feel like I need to wee but only like a table spoon full ish is coming out each time I don’t know...

New to this doctor thinks I have endo but from about 3 pm I feel like I need to ...

Caitlove

•16 hours ago

4 Replies

Gnrh agonist

Hi brief summary Stage 1 yet severe pain Coil is a no go causes so much pain itself Have nexplanon Flares are awful Nurse has suggested gnrh agonist...

Hi brief summary Stage 1 yet severe pain Coil is a no go causes so much pain i...

BETSY1925

•18 hours ago

2 Replies

Want to take advantage of all our features? Just log in!

Stage 4 endometriosis in bowel

Hi I was diagnosed with stage 4 endometriosis 8 years ago. It was found in the iliem, the small part of my intestine. I was getting a lot of blood from my back...

Hi I was diagnosed with stage 4 endometriosis 8 years ago. It was found in the i...

Doolittle4

•19 hours ago

2 Replies

Specialist centre won't help me

Hi, This is complicated so I will try to keep it brief and use pseudonym for the Dr's as I don't want to scare anyone under them. I've had 8 surgeries for...

Hi, This is complicated so I will try to keep it brief and use pseudonym for th...

Ash24601

•22 hours ago

3 Replies

Ovaries stuck behind uterus and low, can I conceive naturally?

Does anyone have any good news on conceiving naturally while having both ovaries stuck with adhesions behind your uterus? I just had a scan and was told it...

Does anyone have any good news on conceiving naturally while having both ovaries...

Em0000

•23 hours ago

Be the first to reply

Endo- Laparoscopy and Mirena Coil

Hi, new to this group! I had my gynaecologist appointment after years of endo symptoms and they have put me on the wait list for a laparoscopy to diagnose and...

Hi, new to this group! I had my gynaecologist appointment after years of endo s...

Smileymiles

•1 day ago

10 Replies

hysterectomy?

hi Had another lap done last Thursday consultant said no endo spread to other organs which is great news, removed some adhesions and treated an infection...

hi Had another lap done last Thursday consultant said no endo spread to other ...

RJane83

•1 day ago

1 Reply

PMS worse because of endometriosis?

Anyone else feel they suffer horrendous PMS which feels like it’s for a prolonged period of time? I have been having my natural cycle back for around 4-5...

Anyone else feel they suffer horrendous PMS which feels like it’s for a prolonge...

Bagel96

•2 days ago

11 Replies

Sick of everyone thinking I'll be cured after hysterectomy.

Hi all. Was hoping to get some feedback on how any of you have been since getting a hysterectomy.I'm due to get a total clearance at the end of the year for...

Hi all. Was hoping to get some feedback on how any of you have been since gettin...

KM1986

•2 days ago

11 Replies

need to rant

Hi ladies, I just need to rant. I’ve been on my current care pathway for 75 weeks now, referred from GP in September 2023 after a TVU showed adenomyosis and...

Hi ladies, I just need to rant. I’ve been on my current care pathway for 75 we...

Cbol82

•2 days ago

5 Replies

help me

Does anyone know of any grants to help go private my doctor has told me that I could have a consultation with a gynaecologist privately and they could add me...

Does anyone know of any grants to help go private my doctor has told me that I c...

Caitlove

•2 days ago

4 Replies

worried mum

Hi, I just wondered if anyone might be able to give me some advice?? My 14 year old daughter has suffered from incredibly heavy, painful periods since she...

Hi, I just wondered if anyone might be able to give me some advice?? My 14 year ...

weetabixfringe

•2 days ago

14 Replies

still waiting

I have had symptoms of endo probably since my periods first started, constantly back and forth to the GP for a long as I can remember had a referral to be told...

I have had symptoms of endo probably since my periods first started, constantly ...

Blacklab2021

•3 days ago

3 Replies

Random pain/bleeding

So I have been suffering with Endometriosis for the last 21 years now! I hadn’t been diagnosed 21 years ago though, more like 14 years ago! I have had such...

So I have been suffering with Endometriosis for the last 21 years now! I hadn’t ...

zanyv

•3 days ago

1 Reply

Support return to work, Unchanged syptoms post lap...

I recently had my lap, removed endometriosis from peritoneal cavity and pelvic . The fatigue and mentally anxiety are not going anywhere. I am still not able...

I recently had my lap, removed endometriosis from peritoneal cavity and pelvic ....

injimomo

•3 days ago

3 Replies

Ovarian cyst, lower back pain and burning sensations + opinions on Visanne

Hello (I apologise for the long text), I was diagnosed a year ago after severe lower back pain. An endovaginal ultrasound revealed an endometriotic cyst...

Hello (I apologise for the long text), I was diagnosed a year ago after severe ...

Srh_dvt

•3 days ago

Be the first to reply

personal discovery: don't curl into a ball/fetal position!!!

Hi all, I've previously only made one post here and since then I've made a really important discovery about my personal pain. Usually I experience intense...

Hi all, I've previously only made one post here and since then I've made a rea...

Shroomish

•3 days ago

1 Reply

Kidney problems from triptorelin/decapytyl?

had three months of injections and this is the first month I’ve not had period. Bladder urgency was a bit better but GSM symptoms got worse. I took a10 day...

had three months of injections and this is the first month I’ve not had period. ...

PeriMenoEndo

•3 days ago

Be the first to reply

Contraceptive Injection

hello, I’m wondering if anyone else has had issues with the injection? I was told it was one of my last options for contraceptive and it should help with my...

hello, I’m wondering if anyone else has had issues with the injection? I was t...

Rabbit95

•3 days ago

1 Reply

First Date

Really dumb and it’s probably because I’m a bit nervous but it crossed my mind so I will ask. I have been asked to dinner by an old college friend, it is...

Really dumb and it’s probably because I’m a bit nervous but it crossed my mind s...

Lunaloo123

•3 days ago

27 Replies

Feel so hopeless and guilty like I’m letting everyone down. This disease is ruining not just my life but my family’s lives too :-(

I’m 32 and was officially diagnosed with endometriosis in May 2024, I had a laparoscopy privately after years of fighting with medical professionals and being...

I’m 32 and was officially diagnosed with endometriosis in May 2024, I had a lapa...

BlueElephant_25

•4 days ago

8 Replies

Waterloo Road -Endometriosis storyline

I've just watched the recent series of Waterloo Road which included an endometriosis storyline. I did end up in tears at some parts. It's good to see it...

I've just watched the recent series of Waterloo Road which included an endometri...

1purplepiano

•4 days ago

Be the first to reply

Embarrassing question about going to the toilet.

I apologise in advance for the TMI in this post. For years now, when I’m due on my period, I almost always get intense pain in my lower left abdomen when I...

I apologise in advance for the TMI in this post. For years now, when I’m due on...

LoveThyGuineaPig

•4 days ago

8 Replies

Different Pains

I’ve now been on my period for 4 days, surprisingly the last 3 were only mild and manageable cramps. However today, I experienced sharp shooting and squeezing...

I’ve now been on my period for 4 days, surprisingly the last 3 were only mild an...

ArcticMonkeys

•4 days ago

2 Replies

How to proceed? "no fibroids or growths" during abdominal ultrasound - severe pains during ovulation and sex

Hi all - First time here. I have had severe ovulation pain and pain during sex for several years. I started having severe cramping and shooting pains up...

Hi all - First time here. I have had severe ovulation pain and pain during s...

GreenOtter900

•4 days ago

8 Replies

Private hysterectomy

My last lap in November only showed 3 small areas of endo but my uterus was bulky from adenomyosis. I'm having a period at the moment that's excruciating, I...

My last lap in November only showed 3 small areas of endo but my uterus was bulk...

Hannah27

•4 days ago

7 Replies

Endo and guilt with a partner

Hi, I'm in the process of being diagnosed with endometriosis, which I'm hoping will bring some validation to all of the pain and other symptoms I've been...

Hi, I'm in the process of being diagnosed with endometriosis, which I'm hoping w...

Echocoast

•4 days ago

6 Replies

Pain four months post hysterectomy & oophectomy

I had this in sept started earlier in the week with low period type pains which got much worse hurting when I went to the toilet awful pain had to take...

I had this in sept started earlier in the week with low period type pains which ...

1Poppy1234

•5 days ago

18 Replies

Menopause post hysterectomy and fainting

Hello my lovelies, I wasn't sure how to even post this. Long story short, I've had hysterectomy August last year where ovaries, uterus and tubes were removed...

Hello my lovelies, I wasn't sure how to even post this. Long story short, I've h...

ChicaPixie

•5 days ago

12 Replies

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Feeling stuck!

can’t wee

Gnrh agonist

Stage 4 endometriosis in bowel

Specialist centre won't help me

Ovaries stuck behind uterus and low, can I conceive naturally?

Endo- Laparoscopy and Mirena Coil

hysterectomy?

PMS worse because of endometriosis?

Sick of everyone thinking I'll be cured after hysterectomy.

need to rant

help me

worried mum

still waiting

Random pain/bleeding

Support return to work, Unchanged syptoms post lap...

Ovarian cyst, lower back pain and burning sensations + opinions on Visanne

personal discovery: don't curl into a ball/fetal position!!!

Kidney problems from triptorelin/decapytyl?

Contraceptive Injection

First Date

Feel so hopeless and guilty like I’m letting everyone down. This disease is ruining not just my life but my family’s lives too :-(

Waterloo Road -Endometriosis storyline

Embarrassing question about going to the toilet.

Different Pains

How to proceed? "no fibroids or growths" during abdominal ultrasound - severe pains during ovulation and sex

Private hysterectomy

Endo and guilt with a partner

Pain four months post hysterectomy & oophectomy

Menopause post hysterectomy and fainting

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive