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Endometriosis UK

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desogestrel for suspected endo

been told that the desogestrel should help my period related issues… i bleed tons and its painful… apparently if i switch from my combined pill to the mini...

been told that the desogestrel should help my period related issues… i bleed ton...

Bamboopanda

•15 hours ago

2 Replies

Severe Hip Pain during Menstruation

Please please help! I had excision surgery in January where the specialist said he had removed a large amount of endometriosis on my right side. Before the...

Please please help! I had excision surgery in January where the specialist said ...

Beckyhicks2594

•1 day ago

1 Reply

Dienogest

I have been prescribed Dienogest.I am seriously struggling to get hold of it at any pharmacy? The hospital said, they don't have any in and won't order any?...

I have been prescribed Dienogest.I am seriously struggling to get hold of it at ...

Endo8701

•1 day ago

4 Replies

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Newly diagnosed

Recent referral for laparoscopy. Laparoscopy was completed yesterday in hospital, now been diagnosed with endometriosis with no follow up. Feel like I need...

Recent referral for laparoscopy. Laparoscopy was completed yesterday in hospital...

Blackitty

•2 days ago

2 Replies

Is Hormonal Contracpetion my only option?

Hi All, would really appreciate some advice about this as i feel very lost right now! I was diagnosed with Endo back in August 2024 - but was gaslit and the...

Hi All, would really appreciate some advice about this as i feel very lost righ...

bagelgal

•2 days ago

3 Replies

Trust yourself and keep pushing

Hi all, I apologise in advance for the long post but I feel I have something to share that could help other people and I want to return the favour to all...

Hi all, I apologise in advance for the long post but I feel I have something...

Bektimhaz

•2 days ago

5 Replies

Ryeqo and The Never Ending Period! (Mounjaro?)

Hi all, I am in week 6 of taking Ryeqo and so far have had a 21 day period, followed by 6 blissful days of no bleeding… and then my period started again! 😩 I...

Hi all, I am in week 6 of taking Ryeqo and so far have had a 21 day period, fol...

JLB_

•2 days ago

3 Replies

bleeding doesn’t stop

hi all, I’ve been dx with endo years ago and had it confirmed (and also some tissue removed) during my c-section. I’m now on my first period since giving birth...

hi all, I’ve been dx with endo years ago and had it confirmed (and also some tis...

SamsonRocks

•2 days ago

1 Reply

Heart palpertations or low iron

Ive been diagnosed with endo and adeo last jan. Been on zoledex 14 months and had 9 months on tiberlone before i got gastrisitis so 3 weeks ago i started half...

Ive been diagnosed with endo and adeo last jan. Been on zoledex 14 months and ha...

Chartolfrey

•2 days ago

3 Replies

Ryeqo

Hi everyone! I have just had an appointment with the consultant which completed my excision surgery July last year, due to having on going pain in one area...

Hi everyone! I have just had an appointment with the consultant which completed ...

Bagel96

•2 days ago

4 Replies

Mirena or Hysterectomy?

Hello, this is my first time ever posting so this is probably going to be too long. I’m 45 I’ve had endo since I was 24, though only diagnosed in 2018. I...

Hello, this is my first time ever posting so this is probably going to be too lo...

AJenn

•3 days ago

8 Replies

Advice for newby

Hiya, I had my MRI results back after a week where they said my bowel is attached to my right ovary/ posterior wall and I got free fluid in my right tube and...

Hiya, I had my MRI results back after a week where they said my bowel is attache...

Chelsea012

•3 days ago

1 Reply

Recovery after exercise

Hi everyone, Ever since I started suffering with endo (both pre and post surgery/diagnosis), I have found that after exercise my body feels like it really...

Hi everyone, Ever since I started suffering with endo (both pre and post surger...

UpandUp

•3 days ago

5 Replies

Upper abdominal pain

Hi everyone, I’m currently suffering with severe upper abdominal pain. It’s making me feel so so nauseous that even just walking to the kitchen makes me...

Hi everyone, I’m currently suffering with severe upper abdominal pain. It’s m...

Rainbow987

•3 days ago

14 Replies

Advice please for upcoming appt!

Hi everyone! I've recently joined this forum after years of struggling with (suspected) endometriosis and would love some advice for an upcoming Gynaecology...

Hi everyone! I've recently joined this forum after years of struggling with (...

EndoEllis

•4 days ago

2 Replies

Open MRI scanner

I’ve recently been diagnosed with two endometriomas (so suspected endometriosis) and adenomyosis at my local hospital. I wanted to be referred to a BSGE centre...

I’ve recently been diagnosed with two endometriomas (so suspected endometriosis)...

robinhoodsbay

•4 days ago

4 Replies

To keep my ovaries or not?!

Hi everyone Thanks in advance for any help you may have. I have endometriosis and adenomyosis and have recently found out (following a laparoscopy and mri)...

Hi everyone Thanks in advance for any help you may have. I have endometriosis ...

LauraSW

•4 days ago

12 Replies

Prolonged heavy menstrual bleeding

Hie ,I have been prescribed Norestitherone and tranexamic acid to stop prolonged having bleeding ,but I've noticed two days after not taking those pills ,the...

Hie ,I have been prescribed Norestitherone and tranexamic acid to stop prolonged...

StellaCathrine

•5 days ago

3 Replies

Exercise

I have adenomyosis & endometriosis and It's recommended to do pelvic exercises for few reasons but I'm finding that most exercise I try will make my symptoms...

I have adenomyosis & endometriosis and It's recommended to do pelvic exercises f...

Plants4eva

•5 days ago

8 Replies

Hysterectomy, BSO and severe insomnia

Hi Does anyone have any tips for helping with insomnia? I haven’t slept well since my surgery 9 years ago and it became even worse after I tried HRT...

Hi Does anyone have any tips for helping with insomnia? I haven’t slept well s...

Elaine91

•5 days ago

9 Replies

Surgery preparation

Hello, I have my wide excision surgery and removal of cysts in 8 weeks time. Does anyone have any tips on how best to prepare my body for it in advance?...

Hello, I have my wide excision surgery and removal of cysts in 8 weeks time. ...

Bolt2018

•6 days ago

10 Replies

Hrt and heart rate

Ive been on the combi patch 3 weeks and in the last 5 days my heart feels faster and i can feel it beating just sat around.I cut the patch in half as a couple...

Ive been on the combi patch 3 weeks and in the last 5 days my heart feels faster...

Chartolfrey

•6 days ago

19 Replies

NHS & Private Specialist fobbed me off

So, I have had ongoing issues for 3 years! I have had MRI scans, Transvaginal Ultrasound, Ultrasound, Laparoscopy and multiple A&E trips due to severe pain -...

So, I have had ongoing issues for 3 years! I have had MRI scans, Transvaginal ...

ZombieHunter99

•6 days ago

10 Replies

Is it worth it?

Hello. I have always assumed I have endo (painful and heavy periods, debilitated each month, PMDD, fatigue and my mum has it). My question is, is it worth...

Hello. I have always assumed I have endo (painful and heavy periods, debilitated...

LunaTakaya82

•6 days ago

8 Replies

MRI misdiagnosis?

Hi everyone. I was diagnosed with endometriosis last year following an mri after many years of struggling. It was discovered during a scan for something else....

Hi everyone. I was diagnosed with endometriosis last year following an mri after...

TandE

•6 days ago

2 Replies

Advice post lap

Hey everyone, hope everyones okay today! I was hoping for some advice after feeling very depressed and lost at what to do next. I had my 3rd laparoscopy last...

Hey everyone, hope everyones okay today! I was hoping for some advice after feel...

mermaidcupcakes

•7 days ago

1 Reply

Cystoscopy

Hi all. I had a cystoscopy due to some bad infections that wouldn't clear up. There was a large bulge in my bladder which he stated was my womb pushing into my...

Hi all. I had a cystoscopy due to some bad infections that wouldn't clear up. Th...

Lornalost89

•7 days ago

4 Replies

Skin sensitivity, is it linked to endometriosis?

I'm wondering if anyone else has a similar experience. I have stage 4 endometriosis the past few weeks I've had a really sensitive skin on a particular area...

I'm wondering if anyone else has a similar experience. I have stage 4 endometrio...

Welliewacker

•7 days ago

4 Replies

finally getting laparoscopy

hi everyone just wanted to say I’m finally getting a laparoscopy can I please have some advice on what to research on and what to expect , I’m not diagnosed...

hi everyone just wanted to say I’m finally getting a laparoscopy can I please ha...

Chopper7

•7 days ago

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Endo & IVF

hey there, I’ve recently been diagnosed with endometriosis I’ve had the operation in November, was told my tubes are blocked she removed as much as the...

hey there, I’ve recently been diagnosed with endometriosis I’ve had the operatio...

Claire8871

•7 days ago

7 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

desogestrel for suspected endo

Severe Hip Pain during Menstruation

Dienogest

Newly diagnosed

Is Hormonal Contracpetion my only option?

Trust yourself and keep pushing

Ryeqo and The Never Ending Period! (Mounjaro?)

bleeding doesn’t stop

Heart palpertations or low iron

Ryeqo

Mirena or Hysterectomy?

Advice for newby

Recovery after exercise

Upper abdominal pain

Advice please for upcoming appt!

Open MRI scanner

To keep my ovaries or not?!

Prolonged heavy menstrual bleeding

Exercise

Hysterectomy, BSO and severe insomnia

Surgery preparation

Hrt and heart rate

NHS & Private Specialist fobbed me off

Is it worth it?

MRI misdiagnosis?

Advice post lap

Cystoscopy

Skin sensitivity, is it linked to endometriosis?

finally getting laparoscopy

Endo & IVF

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