Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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Endometriosis pain post laparoscopy

Hi all I had a lap and dye at the start of May where I was diagnosed with stage 3/4 endometriosis. I had a 7cm endometrioma cyst removed along with the...

Hi all I had a lap and dye at the start of May where I was diagnosed with stage ...

SC1996

•4 hours ago

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Had mri but no buscopan as originally planned

On the way to the hospital, had problems with my bladder, stopped twice on the way there and still felt like I needed a wee. Went twice when we got to the...

On the way to the hospital, had problems with my bladder, stopped twice on the w...

pinkie25

•5 hours ago

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high ca125 with endometrioma

hello guys I had a high ca125 last year and I was told after scans that it was due to endometriosis and it can be common . I have been in chronic pain...

hello guys I had a high ca125 last year and I was told after scans that it wa...

SRD91

•7 hours ago

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Leftover laxatives, peppermint oil capsules and compression stockings

Can anyone with up and coming surgery make use of remaining unopened laxative sachets (I think there are 14 left), an almost full bottle of H&B Peppermint oil...

Can anyone with up and coming surgery make use of remaining unopened laxative sa...

MontsJ

•14 hours ago

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New endo diagnosis

It’s a bit of a long story… I guess my question is can you have endo without the chronic pain? A month ago I had laparoscopic surgery to remove an ovarian...

It’s a bit of a long story… I guess my question is can you have endo without the...

Pugparent

•18 hours ago

2 Replies

medical menopause.

Hi, I'll be having a hysterectomy along with both ovaries removed soon. I wondered two thinsg 1: any tips for post operative recovery? 2: any advice about...

Hi, I'll be having a hysterectomy along with both ovaries removed soon. I wonder...

Foodman500

•1 day ago

4 Replies

post Endo support.

I’m struggling, I need some kind of support or advice just someone to hear me out and listen! i am 8 months post operation, my pains aren’t easing if not...

I’m struggling, I need some kind of support or advice just someone to hear me ou...

SMAIB

•1 day ago

3 Replies

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have endometriosis. At the appointment, the doctor she saw (I'll call...

My sister saw one of the GPs at her surgery a few days ago because she believes ...

Twin4Life

•1 day ago

14 Replies

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question is the last paragraph so feel free to skip to the end🙈A...

Hello, this post is longer than I intended but I wanted to give some context - m...

Clio135

•2 days ago

9 Replies

What to expect after Decapeptyl and Tibolone - Any advice

Hi All Following excision of Endometriosis , I started Decapeptyl and Tibolone for 4 months. The aim was to give body a reset and to see how things are after...

Hi All Following excision of Endometriosis , I started Decapeptyl and Tibolone ...

Pcosandendo

•2 days ago

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Help pls!!

hi does anyone have any advice with prolonged bleeding from adenomyosis ! It’s driving me insane :(

hi does anyone have any advice with prolonged bleeding from adenomyosis ! It’s d...

Sara0102

•2 days ago

8 Replies

grade 4 endo pouch of Douglas

hello everyone I was diagnosed last year at the age of 32( 20 years after onset of symptoms ). At this point I was diagnosed with stage 4 endo , with...

hello everyone I was diagnosed last year at the age of 32( 20 years after ons...

SRD91

•2 days ago

10 Replies

Myoovi - has anyone tried this and what do you think?

I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X

I've looking at getting the myoovi tens machine for my awful endo pain - has any...

AFC007

•2 days ago

15 Replies

Ladies, any help/advice to help me with my crazy hormones and endometriosis?

I was diagnosed with endometriosis this year, although I have been suffering from non-diagnosed endometriosis for over a decade along with PMDD. Since my...

I was diagnosed with endometriosis this year, although I have been suffering fro...

rachanafen

•3 days ago

2 Replies

Anyone feel like they need to wee more often before and during cycle? Even though you dont need it?

Title says it all really. Diagnosed with endo nearly two years ago. Every cycle just before my period and during it I feel like I need to see more often even...

Title says it all really. Diagnosed with endo nearly two years ago. Every cycle ...

Pennyheart1

•3 days ago

2 Replies

Decapeptyl and pain

Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9...

Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 y...

Snowwhite2207

•3 days ago

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please can anyone help with how to manage the excruciating pain with endo?

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tabs) but the gp said there is nothing else. They barely touch the sides and I'm...

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tab...

AFC007

•3 days ago

19 Replies

Water works during endo flare - help!!!

Hey everyone, I'm in need of your fantastic advice again! It's a strange situation, but I'll take literally any suggestions, because I feel so stuck. A bit of...

Hey everyone, I'm in need of your fantastic advice again! It's a strange situati...

GrouchoSparx

•4 days ago

3 Replies

Severe left pain/adhesions/adhesiolysis rant. Tired and confused.

Recap: Laparoscopy and TV Ultrasound both "clear" for endo, but severe/deep/widespread adhesions. Also "clinically insignificant" cysts and fibroids. Awaiting...

Recap: Laparoscopy and TV Ultrasound both "clear" for endo, but severe/deep/wide...

TallulaShark

•4 days ago

5 Replies

officially diagnosed

so I had my endo uss with a endo specialist which lasts 1 hour On my scan I have adhesions, Adenomyosis, and my ovaries are stuck to my uterus… she said endo...

so I had my endo uss with a endo specialist which lasts 1 hour On my scan I hav...

Sara0102

•5 days ago

3 Replies

Anyone had costochondritis with endometriosis

Just wondering if anyone has had costochondritis and also has endometriosis? costochondritis is apparently inflammation of the chest and considering...

Just wondering if anyone has had costochondritis and also has endometriosis? cos...

me94

•5 days ago

3 Replies

awaiting first gynaecology appointment- inhomogenous texture of uterus

Hi. I’ve just had my first ultrasound results which has showed a fibroid but also an inhomogenous texture of uterus. My GP has said because of this (not the...

Hi. I’ve just had my first ultrasound results which has showed a fibroid but als...

LRLR

•5 days ago

2 Replies

stuck on what to do

hi, I had my diagnostic keyhole for endo 2 weeks ago but they didn’t find any endometriosis apart from cysts in my ovaries. I have had excruciating pain for...

hi, I had my diagnostic keyhole for endo 2 weeks ago but they didn’t find any en...

Ella_21

•5 days ago

3 Replies

Pelvic pain after laparoscopy

Hi all. I had my laparoscopy 2 weeks ago, with nodular endometriosis being vaporised and my ovary being unstuck from my abdominal wall. However, I am still...

Hi all. I had my laparoscopy 2 weeks ago, with nodular endometriosis being vapor...

Cazarooni30

•6 days ago

1 Reply

long periods and bleeding out bottom while on this long period

Hi all need some help I keep bleeding out my bottom I had a ct scan in January which given me the all clear it was with dye aswell does anyone else...

Hi all need some help I keep bleeding out my bottom I had a ct scan in January w...

Sara0102

•6 days ago

5 Replies

help advice on treatment route - nhs lap stage 4+

Hi there, I have been diagnosed with Endo a few weeks ago now with 2 cysts and ‘sticking’ kissing ovaries and bowel symptoms for years, currently in a lot of...

Hi there, I have been diagnosed with Endo a few weeks ago now with 2 cysts and...

Els123456

•6 days ago

3 Replies

Protrusion in right upper abdomen

Has anyone experienced a mass / protrusion in their upper abdomen (right side) that was endo, fibroids or ovarian cysts? Or a mis-placed uterus or ovaries due...

Has anyone experienced a mass / protrusion in their upper abdomen (right side) t...

K-Bear88

•6 days ago

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Should I keep pushing to be tested? Or are the doctors right?

Hi there, I am really struggling. I have always felt like something was not right about my menstrual cycle. I’m now 22, and have been bleeding consistently...

Hi there, I am really struggling. I have always felt like something was not r...

PrueyBug

•6 days ago

13 Replies

Your story - MA Research

Hello, I hope this is okay to post! I am an endometriosis myself and am very passionate about the Gender Health Gap. As many women I have spoken too that have...

Hello, I hope this is okay to post! I am an endometriosis myself and am very pa...

ClementimeClock

•6 days ago

1 Reply

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Endometriosis pain post laparoscopy

Had mri but no buscopan as originally planned

high ca125 with endometrioma

Leftover laxatives, peppermint oil capsules and compression stockings

New endo diagnosis

More potential POP problems...

medical menopause.

post Endo support.

Should I complain about doctor?

Feeling Undermined and Overwhelmed

What to expect after Decapeptyl and Tibolone - Any advice

Help pls!!

grade 4 endo pouch of Douglas

Myoovi - has anyone tried this and what do you think?

Ladies, any help/advice to help me with my crazy hormones and endometriosis?

Anyone feel like they need to wee more often before and during cycle? Even though you dont need it?

Decapeptyl and pain

please can anyone help with how to manage the excruciating pain with endo?

Water works during endo flare - help!!!

Severe left pain/adhesions/adhesiolysis rant. Tired and confused.

officially diagnosed

Anyone had costochondritis with endometriosis

awaiting first gynaecology appointment- inhomogenous texture of uterus

stuck on what to do

Pelvic pain after laparoscopy

long periods and bleeding out bottom while on this long period

help advice on treatment route - nhs lap stage 4+

Protrusion in right upper abdomen

Should I keep pushing to be tested? Or are the doctors right?

Your story - MA Research

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