Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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It seems like we are being fought for!

Have you all seen it? All over the news, the absolute outrage of gynaecological wait lists and misdiagnosis. I watched footage of it being discussed in the...

Have you all seen it? All over the news, the absolute outrage of gynaecological ...

Bumblebee11

•2 hours ago

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Endo on the gallbladder?!

Recent MRI reveals "Adenomyomatosis of the gallbladder". I've experienced upper abdominal pain for years. I thought it was thoracic endo. Or SIBO. Of course,...

Recent MRI reveals "Adenomyomatosis of the gallbladder". I've experienced upper ...

LME5

•13 hours ago

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questions about Laparotomy

hey guys , I don’t really know where to start and have never posted before but always read on here for help and advice ! But I’m unsure where to turn now...

hey guys , I don’t really know where to start and have never posted before but a...

Aj1223

•18 hours ago

1 Reply

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Awaiting 45 minute internal scan

Hi everyone, I have recently been diagnosed with deep infiltrating endometriosis via an internal scan, my bowel and ovaries have merged together and my...

Hi everyone, I have recently been diagnosed with deep infiltrating endometriosi...

moodeng

•21 hours ago

5 Replies

First period post lap

After 16 years of period problems I finally had laparoscopy on 1st November. I had diagnostic laparoscopy, excision of endometriosis from the back of my...

After 16 years of period problems I finally had laparoscopy on 1st November. I h...

Racheyt

•1 day ago

8 Replies

MRI found an adhesion

This is more of a vent if anything tbh, so sorry! I had my MRI results 2 weeks ago and they found my uterus and bowel are fused, not sure of the severity...

This is more of a vent if anything tbh, so sorry! I had my MRI results 2 weeks ...

Pastaislife93

•1 day ago

4 Replies

Advice please! To surgery or not to surgery!?

Hi all, So sorry to post, I'll try my best to keep as brief as possible. Heavy painful periods since about 16 that was getting progressively worse. Painful...

Hi all, So sorry to post, I'll try my best to keep as brief as possible. Heav...

LUCY001

•2 days ago

4 Replies

First cs nurse app

I have my first appointment in December with the clinical specialist nurse. Has anyone had an appointment with one before? Just want to know what to expect at...

I have my first appointment in December with the clinical specialist nurse. Has ...

RedCat24

•2 days ago

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Endo/hysterectomy specialists in SE England?

I've been having ongoing issues with my care from a local hospital and getting messed around so much, having to continually chase my care and getting told...

I've been having ongoing issues with my care from a local hospital and getting m...

Cheesecrackers

•2 days ago

6 Replies

suspected endometriosis…doubting myself

Hi guys, Im really just looking for advice as I’m stuck in limbo waiting for a laparoscopy. My GP and Gyne have been great, both saying I tick all the boxes...

Hi guys, Im really just looking for advice as I’m stuck in limbo waiting for a l...

Dirty_dancing26

•2 days ago

15 Replies

Post Lap & Moving forward Help.

I have been fortunate enough, well at least I see it as such to have made my way through the waitlist more quicky than I anticipated and I will be having an...

I have been fortunate enough, well at least I see it as such to have made my way...

danmels

•3 days ago

2 Replies

Has anyone had unusually severe hormone fluctuations with adenomyosis??

Hi. I was diagnosed with adenomyosis around 2021 after suffering from such pain down below for 3 years. Very long story short, within 10 mins of seeing a...

Hi. I was diagnosed with adenomyosis around 2021 after suffering from such pai...

Kimple123

•3 days ago

4 Replies

BSGE Centre Northern Ireland

Hello, just wondering if anyone has any experience of the BSGE Centre in Northern Ireland and has anyone been referred from Belfast? Is that even possible?

Hello, just wondering if anyone has any experience of the BSGE Centre in Norther...

Lina2

•3 days ago

5 Replies

Trying to conceive with endometriosis here. Looking for a good accupuncturist/chinese medicine specialist in London

I'm 34 yo, diagnosed with severe endometriosis and trying to conceive naturally. I met with a consultant from UCLH (Dimitrios Mavrelos) and he suggested IVF....

I'm 34 yo, diagnosed with severe endometriosis and trying to conceive naturally....

QuirkyQuarter

•4 days ago

4 Replies

Severe back pain despite widespread excision and Hysterectomy!

Hi everyone. Having a bad day and feeling very lost. Over the last 3 years I have had a couple of operations, first to remove ovaries and Fallopian tubes...

Hi everyone. Having a bad day and feeling very lost. Over the last 3 years I ha...

Sandygirl6697

•4 days ago

4 Replies

My eyes are burning

I'm 30 years. 6 years ago I had laproscopy surgery for my chocolate cyst with 3rd stage of endometriosis. I'm taking continuous birth control pills for...

I'm 30 years. 6 years ago I had laproscopy surgery for my chocolate cyst with 3r...

Nikilll

•4 days ago

1 Reply

First lap with a BSGE surgeon - still in pain

So this is my first lap and I’ve been diagnosed with widespread endometriosis. Quite a lot was done in my lap, all visible endometriosis was excised apparently...

So this is my first lap and I’ve been diagnosed with widespread endometriosis. Q...

Wildfire_

•4 days ago

4 Replies

first period post Endo surgery tips?

Hello all I’ve just had my second laparoscopic endometriosis surgery. First was 15 years ago and said mild endometriosis. This one found significant...

Hello all I’ve just had my second laparoscopic endometriosis surgery. First was...

HannahElsie

•4 days ago

8 Replies

Post lap orgasms

I know we are supposed to avoid sex for at least 6 weeks post op but what about clitoral stimulation? I have had extensive endometriosis removed and still...

I know we are supposed to avoid sex for at least 6 weeks post op but what about ...

Wildfire_

•4 days ago

2 Replies

Lots of questions after first gynae appointment

Hi all, I had my first gynaecology appointment today after experiencing endometriosis symptoms (specifically rectal bleeding during period and intense pelvic,...

Hi all, I had my first gynaecology appointment today after experiencing endomet...

ElephantJuice500

•5 days ago

5 Replies

diagnosis help!

If anybody can explain this to me in simple terms I would be very grateful! After my lap I had a follow up appointment where I was told I had endo in pouch of...

If anybody can explain this to me in simple terms I would be very grateful! Afte...

Kateos81

•5 days ago

6 Replies

Deep infiltrating endometriosis

Newly diagnosed at 38 (been searching for the reason for my symptoms since 17. How many of the below could be related to endo? -Heavy periods -months without...

Newly diagnosed at 38 (been searching for the reason for my symptoms since 17. H...

Lotti2024

•5 days ago

2 Replies

Support

Hey everyone, i am a co-admin on an instagram page that brings women with chronic illness together Endo, adeno & PCOS to name a few. It is completely free to...

Hey everyone, i am a co-admin on an instagram page that brings women with chron...

Beaugirl89

•5 days ago

2 Replies

worsening pain just feel lost

I’m in such agony again . I had excision surgery about 6 months ago to remove severe endo and unstick everything . Pain was constant and then I have had a scan...

I’m in such agony again . I had excision surgery about 6 months ago to remove se...

Cocoacupid

•6 days ago

10 Replies

Follow-up appointment cancelled three times

Hi everyone. I hope you are all doing as well as possible. Is anyone else is having issues with Colchester hospital? I had an initial appointment earlier...

Hi everyone. I hope you are all doing as well as possible. Is anyone else is h...

CitizenErased

•6 days ago

5 Replies

why can’t I have surgery!!!!

Sorry I just need to have a rant. I’m 45 and been suffering badly with endometriosis since I was 14. I finally had at a laparoscopy at aged 28 where...

Sorry I just need to have a rant. I’m 45 and been suffering badly with endom...

maestrogirl-79

•6 days ago

12 Replies

Post hysterectomy sleep issues

Hi, I had a radical hysterectomy 4weeks ago and knew that I'd be straight into menopause afterwards. The hot flushes I can deal with but the difficulty...

Hi, I had a radical hysterectomy 4weeks ago and knew that I'd be straight into m...

BlueMocktail

•6 days ago

5 Replies

Anyone any advice taking Tibolone after 1st injection of Prostap?

Had my 1st injection in February for endometriosis and PMD but severe form called PMDD. I was normal for 2 weeks and 2 weeks before my period, I turned into a...

Had my 1st injection in February for endometriosis and PMD but severe form calle...

Sin80

•6 days ago

2 Replies

prostap injections

Hello, i was wondering if anyone had a similar experience, ive been on prostap injections 3monty ones, for coming up to 1 year, recently maybe 2 months go...

Hello, i was wondering if anyone had a similar experience, ive been on prostap...

Rashid-89

•6 days ago

5 Replies

any advice on how to help girlfriend with endometriosis ?

Hi everyone my girlfriend has endometriosis and she is in a lot of pain and I try to help her but she pushes me away, I’ve given her space but I am worried...

Hi everyone my girlfriend has endometriosis and she is in a lot of pain and I tr...

Allyoucaneatcheese64

•6 days ago

4 Replies

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

It seems like we are being fought for!

Endo on the gallbladder?!

questions about Laparotomy

Awaiting 45 minute internal scan

First period post lap

MRI found an adhesion

Advice please! To surgery or not to surgery!?

First cs nurse app

Endo/hysterectomy specialists in SE England?

suspected endometriosis…doubting myself

Post Lap & Moving forward Help.

Has anyone had unusually severe hormone fluctuations with adenomyosis??

BSGE Centre Northern Ireland

Trying to conceive with endometriosis here. Looking for a good accupuncturist/chinese medicine specialist in London

Severe back pain despite widespread excision and Hysterectomy!

My eyes are burning

First lap with a BSGE surgeon - still in pain

first period post Endo surgery tips?

Post lap orgasms

Lots of questions after first gynae appointment

diagnosis help!

Deep infiltrating endometriosis

Support

worsening pain just feel lost

Follow-up appointment cancelled three times

why can’t I have surgery!!!!

Post hysterectomy sleep issues

Anyone any advice taking Tibolone after 1st injection of Prostap?

prostap injections

any advice on how to help girlfriend with endometriosis ?

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