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Endometriosis UK

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Severe Endo diagnosis

hello everyone, I was diagnosed with endo in November last year - before then I was told I had PCOS and have been going through scans for 2/3 years as my...

hello everyone, I was diagnosed with endo in November last year - before then ...

•2 hours ago

Possible endo/rejected referrals

Hi everyone. I'm new here but wondered whether anyone has had a similar experience to me. A few years ago I was on the contraceptive pill, when I noticed that...

Hi everyone. I'm new here but wondered whether anyone has had a similar experien...

•17 hours ago

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Spotting while on the pill to stop periods - cancer risks??😱

After taking the pill for 5 months, I have spotted for a month and had to stop taking the pill for a week (triggered periods). Then, again four months later,...

After taking the pill for 5 months, I have spotted for a month and had to stop t...

•1 day ago

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How to navigate your career with endo.

Hello lovely ladies. I'm really struggling at work just now and wondering how you all cope. I'm in a high pressured management role working 50-70 hours a week....

Hello lovely ladies. I'm really struggling at work just now and wondering how yo...

•1 day ago

Endo, Mini pill and symptoms!!

Hi all! I have been taking the mini pill (desogestrel) for 3/4 years now, it stops my periods completely and worked wonders at the start but for the past...

Hi all! I have been taking the mini pill (desogestrel) for 3/4 years now, it ...

•2 days ago

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Pain relief: First period after lap

Hi what pain relief is good please. First period after lap and the usual ibuprofen and tranexamic acid ain't cutting it. Tried mefanamic acid too but...

Hi what pain relief is good please. First period after lap and the usual ibuprof...

•2 days ago

First specialist appointment

Hey hey, hope everyone is doing ok. Can anyone advise what info is best to take to a first appointment with a specialist? I have tracked my symptoms for...

Hey hey, hope everyone is doing ok. Can anyone advise what info is best to tak...

anonymousunicorn

•2 days ago

Endometriosis diagnosis

Hi everybody, I have used this forum to look for information for a while but never posted on here.I have suffered with severe pain in my stomach and other...

Hi everybody, I have used this forum to look for information for a while but n...

•2 days ago

weight loss after coil

hi all, I am having my coil removed this week. Since having it I’ve gained around 7lbs that will not shift, even though I exercise a lot and eat very well....

hi all, I am having my coil removed this week. Since having it I’ve gained aro...

•2 days ago

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loosing weight

any tips loosing stubborn belly weight I have tried cutting out dairy and gluten it didn't help i am back to calorie counting I need help as I have tried...

any tips loosing stubborn belly weight I have tried cutting out dairy and glute...

•3 days ago

Pain every day

Hello all, this is regarding pain as I had my surgery last year but since that time I am in constant pain every single day,I can't move from bed ,now I have...

Hello all, this is regarding pain as I had my surgery last year but since that t...

•3 days ago

Does anyone has healed endometriosis with a holistic approach?

Hi beautiful souls! I got a diagnosis of endometriosis and a 5cm cyst in one of the ovaries. I started having unusually painful periods but they were not in...

Hi beautiful souls! I got a diagnosis of endometriosis and a 5cm cyst in one of ...

•3 days ago

combined pill

How long does it take for the combined pill to calm endometriosis pain? Unfortunately have become intolerant to progesterone only.

How long does it take for the combined pill to calm endometriosis pain? Unfortun...

•3 days ago

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Consultant recommendations

Hi, I'm having a bit of a dreadful time with Endo - pain and loads of associated symptoms (fatigue, migraine, faintness) getting so much worse I have made...

Hi, I'm having a bit of a dreadful time with Endo - pain and loads of associat...

•3 days ago

endometriosis book

just a recommendation of a book ive found incredibly useful’ heal endo katie edmonds’ its the first book ive come across that goes into so much detail...

just a recommendation of a book ive found incredibly useful’ heal endo katie edm...

•4 days ago

Pain tools?

hey guys, I saw someone online recently use something that looks like a big plaster across their belly to help with pain. Anyone know what that is ? Or have...

hey guys, I saw someone online recently use something that looks like a big plas...

•4 days ago

Tired and miserable

Hey guys, am 24 just wanted to ask, does it get better?, I had a laparoscopy on January that confirmed how severe the endo is, my gyna said it has spread to...

Hey guys, am 24 just wanted to ask, does it get better?, I had a laparoscopy on...

•4 days ago

Prostap wearing off

Hi, has anyone had experience of the Prostap 3 month injection wearing off earlier than 3 months? I had a light period with period pain 3 weeks ago and now I'm...

Hi, has anyone had experience of the Prostap 3 month injection wearing off earli...

•4 days ago

Endo back so soon after surgery?

Hi everyone, I had my first excision surgery in January this year, it ended up being a big op with me having to have part of my bowel removed and large...

Hi everyone, I had my first excision surgery in January this year, it ended up...

•4 days ago

alone and hopeless

I just can’t help but wonder does this ever truly get better. I’ve always had painful periods but over the last 2 years, I’ve got worse to the point where I...

I just can’t help but wonder does this ever truly get better. I’ve always had p...

Endowarrior1807

•4 days ago

Endometriosis and menopause l

hi I suffered a lot with endometriosis since younger didn’t get diagnosis with it till I years later and as I had 4 children and didn’t want any more I was...

hi I suffered a lot with endometriosis since younger didn’t get diagnosis with i...

•4 days ago

when can you remove laparoscopy bandages?

hi I’m just wondering when I can take my bandages off as I forgot what the nurse said and have been sweating today quite a lot should I take off the bandages...

hi I’m just wondering when I can take my bandages off as I forgot what the nurs...

•5 days ago

Looking for Adenomyosis resources

Hi all, I have my 2nd lap yesterday for endo excision and was diagnosed with Adenomyosis which was a surprise. I spoke to the surgeon briefly after surgery and...

Hi all, I have my 2nd lap yesterday for endo excision and was diagnosed with Ade...

•5 days ago

Bleeding with HRT

I have recently gone back on decapeptyl injections after coming off of them for a few months. I had 4 injections last year but no HRT alongside them. I came...

I have recently gone back on decapeptyl injections after coming off of them for ...

•5 days ago

Article on endometriosis

I liked this article, it's a couple of days old, I'm glad endo is in the press. We really deserve new treatments and need earlier diagnosis....

I liked this article, it's a couple of days old, I'm glad endo is in the press. ...

•5 days ago

DIAGNOSIS SURVEY 2023

For further information about the survey and how it will help us, please follow the below link. It takes approximately 15 minutes, so grab a brew!...

For further information about the survey and how it will help us, please follow ...

TogetherWeAreStrong

Endometriosis UK•5 days ago

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MDT recommends...

Update...seeing consultant next Thursday but I recieved a letter from hospital today outlining MDT outcome. Their recommendation was Total Abdominal...

Update...seeing consultant next Thursday but I recieved a letter from hospital t...

•6 days ago

Anyone know what to do with leftover POP (Hana)?

I was on Hana progesterone only pill (75mcg) before surgery and now am on dienogest. So I have three and a bit weeks left in this pack. I heard it’s best not...

I was on Hana progesterone only pill (75mcg) before surgery and now am on dienog...

•6 days ago

In-active endometriosis

I had laproscopy 4 days ago, they removed a chocolate cyst and found in-active endometriosis by my ovary. They didn't remove this inactive endometriosis, what...

I had laproscopy 4 days ago, they removed a chocolate cyst and found in-active e...

•6 days ago

Preparing myself for a full hysterectomy, bowel resection and stents in bladder......

Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality...

Has anyone been through this or similar? I'm desperate for support and I'm terr...

•6 days ago

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