Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,900 members•53,259 posts

All posts for September 2022

Fear of finding nothing

After over a year on the waiting list, I finally signed my consent forms for surgery last week and I’m just awaiting a date now! I’m SO excited to finally take...

After over a year on the waiting list, I finally signed my consent forms for sur...

310717

•2 years ago

5 Replies

extreme fatigue making me ill

So have been suffering with endometriosis for 21 years now and was diagnosed 10 years ago. I have many symptoms; frequent urine and kidney infections, ibs,...

So have been suffering with endometriosis for 21 years now and was diagnosed 10 ...

Kaylo0481

•2 years ago

4 Replies

Tea, Endo, Cake, Talk, Open, Free, Community

https://www.endometriosis-uk.org/tea-endo

TogetherWeAreStrong

Endometriosis UK•2 years ago

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Getting constantly dismissed and still under investigations

Been suffering on and off for years but last three years have been horrendous, finally got referred by my gp to see Gynae who blamed all my symptoms on Gastro....

Been suffering on and off for years but last three years have been horrendous, f...

Kermit1975

•2 years ago

2 Replies

Sciatica

Hi, I’m suspected of having endo (it was found back in 2016 and burnt off but this happened privately so my GP disputes it and very little was found so...

Hi, I’m suspected of having endo (it was found back in 2016 and burnt of...

WanderingFox

•2 years ago

6 Replies

Any help/advice/tips please?!

Hi all, this is my first time coming to a forum like this and I’m just hoping to get some advice.. Sorry it might be a bit of a long one.. For roughly 8...

Hi all, this is my first time coming to a forum like this and I’m just hoping to...

ShibaInu7

•2 years ago

4 Replies

Travel Insurance

Has anyone else here been on holiday while waiting for treatment for endometriosis? I had a laparoscopy in May and booked the holiday in early June only to...

Has anyone else here been on holiday while waiting for treatment for endometrios...

Wilsoc1

•2 years ago

2 Replies

severe pain

Hi All I ve not rote on here for a while as things were stable. However August I decided to stop the Zoladex injection due to the bone pain, moods and hair...

Hi All I ve not rote on here for a while as things were stable. However Augus...

Bassem1979

•2 years ago

4 Replies

How long after excision surgery before you felt improvement of endometriosis symptoms?

It’s been 10 weeks since diagnostic laparoscopy where some areas of endometriosis were found and excised. So far no improvement in previous pain. Also the 2...

It’s been 10 weeks since diagnostic laparoscopy where some areas of endometriosi...

ang001

•2 years ago

6 Replies

Expidited Surgery

Hi everyone, hope you're all well. I was just wondering if anyone else has been told that their operation has been "expidited"? I was initially referred...

Hi everyone, hope you're all well. I was just wondering if anyone else has bee...

RueBlu3

•2 years ago

4 Replies

I've got my Laparoscopy date

I got a call from the hospital this morning telling my appointment for my Laparoscopy. I didn't expect them to come back this soon, I was told I would mostly...

I got a call from the hospital this morning telling my appointment for my Laparo...

Iszabella

•2 years ago

2 Replies

How do you manage?

Hi everyone, this is a long one, so thank you in advance for reading this. So, I had a laparoscopy last September through private care as I was in too much...

Hi everyone, this is a long one, so thank you in advance for reading this. So, ...

MeggyCharlie

•2 years ago

3 Replies

Too young for laparoscopy? (22)

Hello everyone, i have been suffering from painful (agonising) periods since i was 18. I am now 22. After multiple doctors appointments and a few trips to A&E...

Hello everyone, i have been suffering from painful (agonising) periods since i w...

Hermi_t

•2 years ago

7 Replies

Flare ups and acid reflux

Hi, I’m new here. Was just wondering does anyone else get bad acid reflux when having an endo flare up? It’s been so bad lately and nothing is working to get...

Hi, I’m new here. Was just wondering does anyone else get bad acid reflux when h...

Lafleur2020

•2 years ago

17 Replies

Diagnosed with Dysfunctional Uterine Bleeding

Hello everyone, I am new here. I am looking for any advice or if anyone has had a similar experience - I started bleeding heavily May 2021 after 20 years of no...

Hello everyone, I am new here. I am looking for any advice or if anyone has had ...

Kittie5117

•2 years ago

2 Replies

Thoracic Endometriosis

I feel like I’m living in some nightmare today. I spoke to my consultant yesterday who called me saying ‘good news your CT was clear…I replied with ‘and what...

I feel like I’m living in some nightmare today. I spoke to my consultant yester...

BlueTit98

•2 years ago

11 Replies

never ending period

Bleeding day 21 today and next period due on Monday 😫 have done two rounds of tranaxemic acid but kept coming back and now I’ve been given norithisterone....

Bleeding day 21 today and next period due on Monday 😫 have done two rounds of t...

MSLMQ

•2 years ago

1 Reply

haemochromatosis

Anyone with info on this please. This has now appeared on my blood test results. ferritin, Iron, now 800. make one completely fatigued and this is on top of...

Anyone with info on this please. This has now appeared on my blood test result...

giraff123

•2 years ago

2 Replies

laparoscopy and periods

I have a laparoscopy booked for tomorrow, however I have come on my period first time in 6 months, will they still do the surgery?

I have a laparoscopy booked for tomorrow, however I have come on my period first...

Roxy0

•2 years ago

1 Reply

Benefits

Not sure if this will be useful. If you are claiming benefits with a fit note but being asked to go in weekly or on any regular basis, you don’t have to. The...

Not sure if this will be useful. If you are claiming benefits with a fit note bu...

Moon_maiden

•2 years ago

12 Replies

CBD oil

Hello all, Has an on tried CBD oil for serve pain management , any recommendations thank you

Hello all, Has an on tried CBD oil for serve pain management , any recommendati...

Faithstar

•2 years ago

3 Replies

IVF with stage 4 Endometriosis

hello guys, I’m new here and I’m just about to undergo ivf with stage 4 Endometriosis diagnosis. I had some scans done, tubes looked okay hopefully, one...

hello guys, I’m new here and I’m just about to undergo ivf with stage 4 Endometr...

Micasmum

•2 years ago

15 Replies

First monthly Prostap injection - side effects two weeks in…

Hi lovely people! Not really a question, but let me know if your experience was similar to mine… Had my first monthly Prostap injection at my GP surgery two...

Hi lovely people! Not really a question, but let me know if your experience was ...

Purple_Badgers

•2 years ago

15 Replies

Mirena coil, pain and bleeding

hi, How long did everyone bleed for and did the pain ever stop? Was it just spotting or like a long period? I have been bleeding since i had it nearly 2...

hi, How long did everyone bleed for and did the pain ever stop? Was it just sp...

Sapphire2021

•2 years ago

5 Replies

Low vitamin D diagnosis?

Could anyone explain to me where gp could determine that I have vitamine D deficiency from this blood test. I can clearly see that my numbers are to high on 2...

Could anyone explain to me where gp could determine that I have vitamine D defic...

Aggie85

•2 years ago

5 Replies

I have no idea on what I am doing

So I have endometriosis, will be having my lap surgery next week. I am a uni student, 20 years old. My endo is really bad to the point I lost my job and I've...

So I have endometriosis, will be having my lap surgery next week. I am a uni stu...

leila875

•2 years ago

9 Replies

Endo documentary recommendation!

Hello all Endo heroes, I just wanted to share a couple of research films on Endometriosis that I've discovered recently. One is called Endo What? and although...

Hello all Endo heroes, I just wanted to share a couple of research films on End...

Sunflower6758

•2 years ago

2 Replies

painful spotting

I get really painful cramps in my pelvic and back when I’m it on my period alongside spotting. Sometimes the pain is so bad it’s like my cervix spasms with...

I get really painful cramps in my pelvic and back when I’m it on my period along...

Littlebug77

•2 years ago

7 Replies

what do I need for a laparoscopy?

I have my first laparoscopy in the next couple of months and I was just wondering what i need to bring with me to the hospital. And also what I need to have in...

I have my first laparoscopy in the next couple of months and I was just wonderin...

Sky342

•2 years ago

4 Replies

pros and cons of hysterectomy vs decapeptyl injections for fibroids

Hi- wondering if anyone else had to make a decision between continuing decapeptyl injections (simulate menopause to control fibroids) or having open...

Hi- wondering if anyone else had to make a decision between continuing decapept...

Jlg-

•2 years ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2022

Fear of finding nothing

extreme fatigue making me ill

Tea, Endo, Cake, Talk, Open, Free, Community

Getting constantly dismissed and still under investigations

Sciatica

Any help/advice/tips please?!

Travel Insurance

severe pain

How long after excision surgery before you felt improvement of endometriosis symptoms?

Expidited Surgery

I've got my Laparoscopy date

How do you manage?

Too young for laparoscopy? (22)

Flare ups and acid reflux

Diagnosed with Dysfunctional Uterine Bleeding

Thoracic Endometriosis

never ending period

haemochromatosis

laparoscopy and periods

Benefits

CBD oil

IVF with stage 4 Endometriosis

First monthly Prostap injection - side effects two weeks in…

Mirena coil, pain and bleeding

Low vitamin D diagnosis?

I have no idea on what I am doing

Endo documentary recommendation!

painful spotting

what do I need for a laparoscopy?

pros and cons of hysterectomy vs decapeptyl injections for fibroids

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