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Endometriosis UK

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Endometriosis UK posts

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Awaiting 45 minute internal scan

Hi everyone, I have recently been diagnosed with deep infiltrating endometriosis via an internal scan, my bowel and ovaries have merged together and my...

Hi everyone, I have recently been diagnosed with deep infiltrating endometriosi...

moodeng

•1 day ago

17 Replies

MRI found an adhesion

This is more of a vent if anything tbh, so sorry! I had my MRI results 2 weeks ago and they found my uterus and bowel are fused, not sure of the severity...

This is more of a vent if anything tbh, so sorry! I had my MRI results 2 weeks ...

Pastaislife93

•2 days ago

4 Replies

any advice on how to help girlfriend with endometriosis ?

Hi everyone my girlfriend has endometriosis and she is in a lot of pain and I try to help her but she pushes me away, I’ve given her space but I am worried...

Hi everyone my girlfriend has endometriosis and she is in a lot of pain and I tr...

Allyoucaneatcheese64

•7 days ago

4 Replies

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Partial vaginectomy from endometriosis nodules

Hello all! I have found out that I have stage 4 endo with pcos, chocolate cysts...the lot! My surgeon has said in his plan that I'll need a partial...

Hello all! I have found out that I have stage 4 endo with pcos, chocolate cysts....

RooLouise

•9 days ago

1 Reply

Post op swelling

Just after a little bit of advice sorry for the questions recently but feel like it’s 1 step forward and 95 back at the moment 😭 How long did people suffer...

Just after a little bit of advice sorry for the questions recently but feel like...

Joely21

•10 days ago

7 Replies

Bowel Endo Treatment

hi everyone! I found out earlier this year from a laparoscopy and further mri that my endo is in my bowel, as my surgeon felt and then imaged a nodule on my...

hi everyone! I found out earlier this year from a laparoscopy and further mri t...

spiritbox

•11 days ago

8 Replies

First Lap - No Endo, Slow Bowel?

Hello ladies, I had a 'diagnostic' lap yesterday (6/11) and was fitted with the Mirena coil. When I woke up my consultant told me that they found no evidence...

Hello ladies, I had a 'diagnostic' lap yesterday (6/11) and was fitted with the...

Snootypup

•14 days ago

1 Reply

Negative lap after 'positive' MRI

I'm a few days post lap surgery. I've had symptoms of endo since I was about 17. I also have PCOS. I had a transvaginal ultrasound by a gynae consultant in...

I'm a few days post lap surgery. I've had symptoms of endo since I was about 17....

Horsegal2612

•14 days ago

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First Gynecologist Appointment

After over 6 months of being on the waiting list I had my first gynecologist appointment today where I was met with a endo specialist who claims that I do not...

After over 6 months of being on the waiting list I had my first gynecologist app...

rfb1928

•14 days ago

9 Replies

laparoscopy - what shall I ask my consultant?

I’ve got an NHS consultant appointment tomorrow following my MRI scan which has shown endo. I think he’s going to list me for surgery on the NHS based on what...

I’ve got an NHS consultant appointment tomorrow following my MRI scan which has ...

Regblue

•22 days ago

4 Replies

Anyone had MRI without contrast or buscopan?

Hi has anyone had a gynae pelvic mri without contrast dye and buscopan and it actually show your endometriosis or adenomyosis? I had one this morning but they...

Hi has anyone had a gynae pelvic mri without contrast dye and buscopan and it ac...

mistygrey

•29 days ago

21 Replies

MRI & Diazepam

has anyone took Diazepam for an mri and how was it - did you feel spaced out or uncomfortable with it or did it help anxiety and claustrophobia?

has anyone took Diazepam for an mri and how was it - did you feel spaced out or ...

mistygrey

•30 days ago

1 Reply

Combined Pill Vs Mirena Coil

Would the combined pill, specifically microgynon 30, work just as well as the Mirena coil in slowing tissue growth/ lessening symptoms? The Mirena coil was...

Would the combined pill, specifically microgynon 30, work just as well as the Mi...

Elsa150

•1 month ago

2 Replies

Advice please

I’m 25 from the Uk, I’ve always suffered from bad painful/heavy periods from young (I started when I was 9) I was put on the pill when I was 14 and was on it...

I’m 25 from the Uk, I’ve always suffered from bad painful/heavy periods from you...

Ilovecats13

•1 month ago

4 Replies

Private surgery is so expensive! What should I do?

Hi all, Sorry this is a long post, I haven’t spoken to anyone who can relate before. I started my period at around 10/11 years old and have been in and out...

Hi all, Sorry this is a long post, I haven’t spoken to anyone who can relate be...

Mimikon

•1 month ago

4 Replies

Endo flare up

Hello (first time posting) I’m due to have a pre op assessment on Tuesday the 15th for laparoscopy surgery to confirm endometriosis, I have been having...

Hello (first time posting) I’m due to have a pre op assessment on Tuesday the 1...

Hick20

•1 month ago

8 Replies

advice needed

I had my laparoscopy in July 2024 and was told no endometriosis was found. I still believed that this diagnosis was wrong and 11 weeks later phoned up for my...

I had my laparoscopy in July 2024 and was told no endometriosis was found. I sti...

eb197309

•2 months ago

3 Replies

Mini pill made things worse

After finally being diagnosed with adenomyosis (kind of similar to endo except it's inside the uterus) I was put on the mini pill (desogestrel). It made my...

After finally being diagnosed with adenomyosis (kind of similar to endo except i...

16yearsofpainsofar

•2 months ago

28 Replies

Tissue damage post excision.

Hi. Hope everyone's doing well. I had an excision in 2020, as I live on Wales I was transferred to North of England as there were no specialist in North...

Hi. Hope everyone's doing well. I had an excision in 2020, as I live on Wales ...

filous

•2 months ago

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Pain returns

Hi all I feel like it's silly of me to ask as I'm 100% certain people have experienced this however I will ask anyways. I was wondering if anyones had a...

Hi all I feel like it's silly of me to ask as I'm 100% certain people have expe...

Lornalost89

•2 months ago

6 Replies

Unsure fainting episode

Hello, I have provisionally been diagnosed with endometriosis, currently waiting on MRI then surgery to diagnose. My period started this morning, I had high...

Hello, I have provisionally been diagnosed with endometriosis, currently waiting...

Ilbc

•2 months ago

2 Replies

Diet advice

Hello all, I have been diagnosed via laparoscopy just last week. I burst into tears, tears of relief that I am not going mad! I know this is a life long...

Hello all, I have been diagnosed via laparoscopy just last week. I burst into te...

Peaches45

•2 months ago

15 Replies

Referred to a different hospital! Don't know what to do?! Please help :(

I've just received a call from N&N Hospital where I have been on the waitlist for surgery since June 2023 (after being told my case was urgent). I spoke to...

I've just received a call from N&N Hospital where I have been on the waitlist fo...

always_asleep

•2 months ago

11 Replies

MRI scan results back - what now??

I got my scan results back via the NHS trust app last Thursday. From what I can decipher, they have said signs indicative of deep infiltrative endometriosis...

I got my scan results back via the NHS trust app last Thursday. From what I can ...

Regblue

•2 months ago

7 Replies

Getting diagnosed - GP Referral

My mother told me a few months ago that she had been diagnosed with endometriosis a few years ago as well as my auntie and my nanny. This came as a mild shock...

My mother told me a few months ago that she had been diagnosed with endometriosi...

EmyrLouNB

•2 months ago

9 Replies

Absolutely terrible experience with a gynecologist (in Portugal not UK)

I hope this is allowed as it's not about the UK. I recently moved to Portugal and needed to see a gynecologist to discuss next steps. I've never had an...

I hope this is allowed as it's not about the UK. I recently moved to Portugal an...

Elsa150

•2 months ago

3 Replies

unhelpful consultation

hi everyone. I’ve never posted before, but I am very upset following a consultation with somebody who will be doing my laparoscopy. I’ve have suspected endo...

hi everyone. I’ve never posted before, but I am very upset following a consultat...

Paigeyb

•2 months ago

8 Replies

endometrioma / chocolate cyst help

hi there, I am seeing advice and previous experiences on women who have suffered with large (4cm+) chocolate cysts on their ovaries and if anyone r was able...

hi there, I am seeing advice and previous experiences on women who have suffer...

MRBO

•2 months ago

11 Replies

I just want to be heard

Hi, never done this before. Sorry in advance if it doesn't make sense. So I started my period at age 12. Suffered with them really bad and they were heavy. I...

Hi, never done this before. Sorry in advance if it doesn't make sense. So I sta...

Teeflyers

•2 months ago

54 Replies

Post-lap medical suggestions

Hi everyone! I had a laproscopy just over 4 weeks ago and got an endo diagnosis. I got the written report from my surgeon on Friday with recommendations for...

Hi everyone! I had a laproscopy just over 4 weeks ago and got an endo diagnosis....

velowatching

•2 months ago

6 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Endometriosis UK posts

Awaiting 45 minute internal scan

MRI found an adhesion

any advice on how to help girlfriend with endometriosis ?

Partial vaginectomy from endometriosis nodules

Post op swelling

Bowel Endo Treatment

First Lap - No Endo, Slow Bowel?

Negative lap after 'positive' MRI

First Gynecologist Appointment

laparoscopy - what shall I ask my consultant?

Anyone had MRI without contrast or buscopan?

MRI & Diazepam

Combined Pill Vs Mirena Coil

Advice please

Private surgery is so expensive! What should I do?

Endo flare up

advice needed

Mini pill made things worse

Tissue damage post excision.

Pain returns

Unsure fainting episode

Diet advice

Referred to a different hospital! Don't know what to do?! Please help :(

MRI scan results back - what now??

Getting diagnosed - GP Referral

Absolutely terrible experience with a gynecologist (in Portugal not UK)

unhelpful consultation

endometrioma / chocolate cyst help

I just want to be heard

Post-lap medical suggestions

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