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Endometriosis UK

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Abdominal wall endometriosis help

Suspected endometriosis in several areas, including my bowel, abominal wall, pocket of douglas, was supposed to have a diagnostic laparascopy but it was...

Suspected endometriosis in several areas, including my bowel, abominal wall, poc...

ceilidht

•6 days ago

2 Replies

Is motherhood possible with endo?

Hi all, I'm 30y/o and was diagnosed with endo last year after a lap op and have been in debilitating pain ever since. I have tried numerous pain relief and...

Hi all, I'm 30y/o and was diagnosed with endo last year after a lap op and hav...

SonnySunflower

•7 days ago

8 Replies

Endometriosis diagnosis and dienogest

Hi, So I had a diagnostic laparoscopy yesterday and the surgeon found endo between my uterus and rectum in the pouch of Douglas. They weren't able to remove it...

Hi, So I had a diagnostic laparoscopy yesterday and the surgeon found endo betwe...

ForestChase

•11 days ago

7 Replies

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advice wanted pls!

I’ve suffered with painful periods for years, to the point I’d be on the floor crying in agony etc. I’ve had different medications, contraceptive pills and was...

I’ve suffered with painful periods for years, to the point I’d be on the floor c...

minimoo26

•11 days ago

1 Reply

Advice on my Endo journey and symptoms

Firstly, apologies if this has been asked, but i couldn’t find anything specific in the search options. bit of a summary of my journey: *have had period...

Firstly, apologies if this has been asked, but i couldn’t find anything specific...

selkie83

•13 days ago

7 Replies

Shortness of breath?

In short I have endometriosis and adenomyosis. Full story can be read on my last post attached to my profile. My question is, does anyone else suffer with...

In short I have endometriosis and adenomyosis. Full story can be read on my last...

Mia843

•13 days ago

5 Replies

calcium and prostap

hey team, I’m starting prostap whilst awaiting colorectal input for bowel endo. I’ve been advised to start taking Calcium, vit D and start strength training...

hey team, I’m starting prostap whilst awaiting colorectal input for bowel endo...

PotatoSalad

•17 days ago

1 Reply

Anyone got on with Noriday? Desogestel making me bleed on and off and fed up

Hi I’ve been on Desogestrel for the past 5 months via Gynae consultant whilst I wait for an mri and possible lap. I’ve had irregular bleeding and still...

Hi I’ve been on Desogestrel for the past 5 months via Gynae consultant whilst I ...

mistygrey

•17 days ago

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please can anyone help with how to manage the excruciating pain with endo?

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tabs) but the gp said there is nothing else. They barely touch the sides and I'm...

I'm currently prescribed mefenamic acid (250mg tabs) and cocodamol (30/500mg tab...

AFC007

•23 days ago

19 Replies

Water works during endo flare - help!!!

Hey everyone, I'm in need of your fantastic advice again! It's a strange situation, but I'll take literally any suggestions, because I feel so stuck. A bit of...

Hey everyone, I'm in need of your fantastic advice again! It's a strange situati...

GrouchoSparx

•23 days ago

7 Replies

Prostap help!

I wondered if anyone else experienced this and if so how they managed it. Since the birth of my second child 9 months ago I have continuously bled and have...

I wondered if anyone else experienced this and if so how they managed it. Sin...

DanniLou

•1 month ago

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Period pain after surgery

Hi everyone, looking for some advice. I had surgery to remove endo on my uterosacral ligament in Feb this year. My usual horrendous period pain seemed to be...

Hi everyone, looking for some advice. I had surgery to remove endo on my uterosa...

Jessieb92

•1 month ago

1 Reply

Rectovaginal endometriosis

I had a subtotal hysterectomy due to a fibroid 3 months ago, keeping my ovaries and cervix.I have just found out that during the surgery, that my surgeon found...

I had a subtotal hysterectomy due to a fibroid 3 months ago, keeping my ovaries ...

Lizziem20

•1 month ago

1 Reply

thickening of uterosacral ligament

hello! I have been struggling with my period for years, with a lot of pain during it but also during ovulation, bowel movements etc. i was finally referred...

hello! I have been struggling with my period for years, with a lot of pain dur...

Yols2024

•1 month ago

4 Replies

Suspicion of endometrioma / symptoms

Hi everyone, I have finally decided to join and post... I had lower back pain around 8 months ago and thought I had injured myself. It passed but came back...

Hi everyone, I have finally decided to join and post... I had lower back pain ...

Srh_dvt

•1 month ago

21 Replies

Laparoscopy with amenorrhea

Hello - I'm wondering if anyone can help me figure something out about my laparoscopy. I have my first surgery to diagnose endometriosis in July after being...

Hello - I'm wondering if anyone can help me figure something out about my laparo...

ecj123

•1 month ago

2 Replies

I think I have Endometriosis

I have been on the progestogen only pill for about 15 years. I am not in a relationship and decided I don't want to take it anymore. I stopped about 6 months...

I have been on the progestogen only pill for about 15 years. I am not in a relat...

SleepyK

•1 month ago

2 Replies

Endo Specialists in Yorkshire?

Hi I am 24 and live in Yorkshire and am trying to get diagnosed with endo. I was referred to Leeds gynecology in Feb last year and was told that all of my...

Hi I am 24 and live in Yorkshire and am trying to get diagnosed with endo. I was...

LailaP1911

•1 month ago

2 Replies

Endometriosis advice !!

Hi everyone, I have been diagnosed with stage 4 endometriosis and I have had the surgery to get it lasered off however that has not worked… I am...

Hi everyone, I have been diagnosed with stage 4 endometriosis and I have had t...

Ellie445

•2 months ago

3 Replies

dienogest - shivers and cold

Hi everyone. Am on day 3 of taking dienogest and since yesterday I have been feeling freezing cold and shivery, also getting numb hands, and the veins on my...

Hi everyone. Am on day 3 of taking dienogest and since yesterday I have been fee...

TandE

•2 months ago

4 Replies

UTI caused flare up

Hello, I’ve always suffered with recurring UTIs, and UTI symptoms. On diagnosis endo was left around bladder due to concerns in removal. I’m feeling a...

Hello, I’ve always suffered with recurring UTIs, and UTI symptoms. On diagnosi...

NatAlex29

•2 months ago

4 Replies

Private care?

Hi everyone, I'm in a desperate situation which I am sure a lot of you can relate to. Quickly, my story: At 24 years old, I have had severe period pains...

Hi everyone, I'm in a desperate situation which I am sure a lot of you can rela...

mousemeb

•2 months ago

5 Replies

what is this black thing on my ovary? Just had a lap to remove tubes

as above

Vivibeatris

•2 months ago

7 Replies

adenomyosis

Hey Just looking for some advice I had an MRI and it showed focal uterine adenomyosis. I haven’t had an appointment with my gynaecologist yet ( it’s in a few...

Hey Just looking for some advice I had an MRI and it showed focal uterine adenom...

Zbluee

•2 months ago

1 Reply

appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seeing im not alone as im shitting bricks for my upcoming appointment following an...

tldr (summary) 1 - im looking for any advice/ some reassuring/ validating/ seein...

velvetonion

•2 months ago

11 Replies

referral to gynaecologist rejected?

Suspected endo - referral rejected? UK Hi just posting here as I have been investigated via X-rays scans bloods etc over the last couple of months with my...

Suspected endo - referral rejected? UK Hi just posting here as I have been in...

Forestgreen90

•2 months ago

3 Replies

Endo detection after surgery

Hi. I was just wondering when/how people who had surgery realised they still had endo in their bodies? I just had a laproscopy on May 3 and recovering fairly...

Hi. I was just wondering when/how people who had surgery realised they still had...

sha_pow_

•2 months ago

7 Replies

Not sure of next steps after recent endometriosis diagnosis

Hi, I have suffered with heavy periods and pain during sex for years but I was told it was due to fibroids. In December 2020 I had emergency surgery to for a...

Hi, I have suffered with heavy periods and pain during sex for years but I was t...

Sazcoops

•2 months ago

4 Replies

Stomach swelling

Hello! I have been diagnosed with endometriosis now for around 8 years, following the usually long winded process. Things back then were managed with...

Hello! I have been diagnosed with endometriosis now for around 8 years, follo...

TIAHRHIANNE1

•2 months ago

13 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

Endometriosis UK posts

Abdominal wall endometriosis help

Is motherhood possible with endo?

Endometriosis diagnosis and dienogest

advice wanted pls!

Advice on my Endo journey and symptoms

Shortness of breath?

calcium and prostap

Anyone got on with Noriday? Desogestel making me bleed on and off and fed up

More potential POP problems...

please can anyone help with how to manage the excruciating pain with endo?

Water works during endo flare - help!!!

Prostap help!

Period pain after surgery

Rectovaginal endometriosis

thickening of uterosacral ligament

Suspicion of endometrioma / symptoms

Laparoscopy with amenorrhea

I think I have Endometriosis

Endo Specialists in Yorkshire?

Endometriosis advice !!

dienogest - shivers and cold

UTI caused flare up

Private care?

what is this black thing on my ovary? Just had a lap to remove tubes

adenomyosis

appointment with consultant soon, possibly surgery, and im terrified because of my ptsd and i dont know what to expect <3

referral to gynaecologist rejected?

Endo detection after surgery

Not sure of next steps after recent endometriosis diagnosis

Stomach swelling

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