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Endometriosis UK

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All posts for February 2024

Constant nausea and upset tummy?

I have experienced a constant nausea that ranges from faintly queasy to ‘I’m going to be sick’, as well as abdominal cramping and poor digestion since my...

I have experienced a constant nausea that ranges from faintly queasy to ‘I’m goi...

mythh64

•2 months ago

2 Replies

Adenomyosis struggle

Hi everyone, I’m new here and I really need support as the specialists are throwing my mental health to the bin, in particular -ironically- gynaecologists....

Hi everyone, I’m new here and I really need support as the specialists are thro...

Taikaei

•2 months ago

8 Replies

Alternative to lapaoscopy

Hi everyone, I know the only way to manage endometriosis is surgical. I had a laposcopy in 2020 and the pain returned within 6 months. My weight has increased...

Hi everyone, I know the only way to manage endometriosis is surgical. I had a la...

stephersb

•2 months ago

2 Replies

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Feeling poorly after eating

Hi everyone. I'm really struggling recently. My last flare up was absolutely awful to the point I thought I was dying (I know that seems dramatic)Everytime I...

Hi everyone. I'm really struggling recently. My last flare up was absolutely awf...

KB08

•2 months ago

24 Replies

mri didn’t show deep infiltrated endo

hi I’ve been in absolute agony for years was diagnosed with endo about 8 years ago. Was put in temporary menopause then given mirena coil. I have pain...

hi I’ve been in absolute agony for years was diagnosed with endo about 8 years a...

Saha1

•2 months ago

3 Replies

After surgery

Hi Found this today on what could explain continuous pain after Endo surgery, it was on a research site. Makes for interesting reading but hope they are......

Hi Found this today on what could explain continuous pain after Endo surgery, i...

Moon_maiden

•2 months ago

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ectopic experiences?

Following lap excision (13 weeks ago) of rectovaginal and pelvic (including around left ovary) endo, and years of infertility with many rounds of IVF/FETs, we...

Following lap excision (13 weeks ago) of rectovaginal and pelvic (including arou...

Endofitall

•2 months ago

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Advice on egg freezing and hysterectomy for severely heavy bleeding

Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to...

Hi everyone, I'm doing a little bit of research so I can take a huge stack of no...

GrouchoSparx

•2 months ago

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Advice Welcome.

Hello, I am new to this so please forgive me of any mistakes regarding medical jargon etc. I have suffered pain for many years and have always been fobbed off...

Hello, I am new to this so please forgive me of any mistakes regarding medical j...

LDSH2407

•2 months ago

10 Replies

Had my surgery - query!

Hi all, Finally had my surgery & they found so much more endometriosis than any scan found. It feels very validating. They also confirmed I had...

Hi all, Finally had my surgery & they found so much more endometriosis than an...

BlueLabrador2702

•2 months ago

6 Replies

Adhesions and eating

Hi I had a recent laposcopy to remove a large abcess on my left ovary from a previous episode of PID caused by a bust abcess. When they got in there they found...

Hi I had a recent laposcopy to remove a large abcess on my left ovary from a pre...

Busy23

•2 months ago

4 Replies

Anyone had adhesions removed to then be told it isn’t endometriosis?

Hello, I am so confused and just need to know if anyone has been in the same situation/ advice on where to go next. Had my lap on the 28th dec and the...

Hello, I am so confused and just need to know if anyone has been in the same s...

Tiff22

•2 months ago

18 Replies

Doubts about Lap in 4 days..Help!

Having major anxiety and wobble about my first lap in a few days after my pre op today. I wasn't given bowel prep or any advice for low fibre diet. I have DIE...

Having major anxiety and wobble about my first lap in a few days after my pre op...

DarkStar85

•2 months ago

8 Replies

Bladder symptoms with Endo

Has anyone suffered with bladder pain or symptoms? Do you have any advice on how to ease the pain / symptoms? I'm currently getting bladder instillations but...

Has anyone suffered with bladder pain or symptoms? Do you have any advice on how...

allym92

•2 months ago

6 Replies

Dichloroacetate for Endo

There is currently a clinical trial going on to see if Dichloroacetate could be used to treat Endo, has anyone participated in the trials? Have you found it...

There is currently a clinical trial going on to see if Dichloroacetate could be ...

allym92

•2 months ago

10 Replies

Pregnancy with Endo

Hiya I'm just wondering has anyone fell pregnant with endo or after the laprscopy surgery. I have fallen pregnant 8 months after surgery they state I'm high...

Hiya I'm just wondering has anyone fell pregnant with endo or after the laprscop...

D2594

•2 months ago

6 Replies

please help

Hello everybody. I was just wondering if any of you on your journey discovering that you had endometriosis had any uncommon symptoms that were a tell tale...

Hello everybody. I was just wondering if any of you on your journey discovering ...

Littleladymomma

•2 months ago

3 Replies

Urology appointment - Flexible Cystoscopy

Hi all Has anyone been referred to urology for a flexi cystoscopy that turned out fine? I have been having symptoms since November and eventually the GP said...

Hi all Has anyone been referred to urology for a flexi cystoscopy that turned o...

ThinkitsEndo

•2 months ago

8 Replies

laproscopy found nothing after MRI showed endo

I’ve just had laparoscopic surgery. I was told after my MRI that they could see some endo behind my cervix which is where I have a lot of pain. I know I have a...

I’ve just had laparoscopic surgery. I was told after my MRI that they could see ...

Ringo2312

•2 months ago

19 Replies

22yr old Decapeptyl

hi I’m a 22 yr old who got diagnosed with endometriosis stage 2 in November 2022 through a laproscapy ablation. I had a terrible month after surgery and was...

hi I’m a 22 yr old who got diagnosed with endometriosis stage 2 in November 2022...

Jellybelly32

•2 months ago

8 Replies

Bowel endo and prolapse

Hello I wondered if anyone knows who I go to about this. I have stage 4 endometriosis. It’s impacted my bowel. I have a 5cm mass in my bowel. My last...

Hello I wondered if anyone knows who I go to about this. I have stage 4 endome...

Siothew12

•2 months ago

9 Replies

Anyone seen the endometriosis specialist In Bath?

Hey. I saw Dr Russel luker in bath the endometriosis "specialist" I was just looking to see has anyone else had dealings with him weather good or bad?....

Hey. I saw Dr Russel luker in bath the endometriosis "specialist" I was just loo...

En89

•2 months ago

1 Reply

Endometriosis Injection

I'm about to start a course of injections to bring on early menopause as I've just been diagnosed with endometriosis. I am just wondering if anyone on here has...

I'm about to start a course of injections to bring on early menopause as I've ju...

Missfifij

•2 months ago

6 Replies

Hi, can anyone help?

Do you have any advice for managing endo pain, nothing has worked and I'm in agony

Do you have any advice for managing endo pain, nothing has worked and I'm in ago...

Rustydo

•2 months ago

7 Replies

ovary stuck to uterus

Tw - ttc after months of telling hospitals and doctors something else was wrong I kept getting told my endo wouldn’t go back to its pre surgery state from...

Tw - ttc after months of telling hospitals and doctors something else was wrong ...

Rex196

•2 months ago

2 Replies

Multiple periods while on the PO pill

Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 weeks now to try and control my pain and bleeding while I wait for my excision...

Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 we...

endo_the_stigma

•2 months ago

7 Replies

Rigevidon and migranes

Hello. I am wondering if anyone experienced migraines while on combined oral pill? I am into my third month of taking Rigevidon but noticed that I started...

Hello. I am wondering if anyone experienced migraines while on combined oral pil...

Axolotl23

•2 months ago

6 Replies

endo specialists at Oxford

please PM me if you’ve seen endo specialists at Oxford and what you thought? Thank you

please PM me if you’ve seen endo specialists at Oxford and what you thought? ...

RoseStar

•2 months ago

2 Replies

Left rib,stomach and back pain with endo

Hello lovely people.I have 8cm right ovarian endometriosis for over 10 years now which never really caused me any problems ( thats why its still not out as...

Hello lovely people.I have 8cm right ovarian endometriosis for over 10 years now...

LaylaBarbs

•2 months ago

4 Replies

Hello - any suggestions ?

I'm Madeline, I have stage 3 endometriosis with history of endometriomas on my ovaries. I was diagnosed formally in 2023 with MRI and laparoscopy. After...

I'm Madeline, I have stage 3 endometriosis with history of endometriomas on my o...

Madeline_

•2 months ago

2 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for February 2024

Constant nausea and upset tummy?

Adenomyosis struggle

Alternative to lapaoscopy

Feeling poorly after eating

mri didn’t show deep infiltrated endo

After surgery

ectopic experiences?

Advice on egg freezing and hysterectomy for severely heavy bleeding

Advice Welcome.

Had my surgery - query!

Adhesions and eating

Anyone had adhesions removed to then be told it isn’t endometriosis?

Doubts about Lap in 4 days..Help!

Bladder symptoms with Endo

Dichloroacetate for Endo

Pregnancy with Endo

please help

Urology appointment - Flexible Cystoscopy

laproscopy found nothing after MRI showed endo

22yr old Decapeptyl

Bowel endo and prolapse

Anyone seen the endometriosis specialist In Bath?

Endometriosis Injection

Hi, can anyone help?

ovary stuck to uterus

Multiple periods while on the PO pill

Rigevidon and migranes

endo specialists at Oxford

Left rib,stomach and back pain with endo

Hello - any suggestions ?

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