Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for March 2021

Feeling sad.. advice please

Hi everyone, So I was meant to have a follow up appointment today with a nurse, and it all from the get go went horribly wrong! I got lost, and then I ended up...

Hi everyone, So I was meant to have a follow up appointment today with a nurse, ...

Ruralquirks

•4 years ago

9 Replies

What checks are needed before IVF?

Hello, I'm new here:) I have just started my second IVF cycle and I'm feeling nervous. I have endometriosis and have just had my first Prostap injection to...

Hello, I'm new here:) I have just started my second IVF cycle and I'm feeling n...

Louise543

•4 years ago

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Doctors need educating

Having read what so many of you have written here, reading these columns should be mandatory for specialists!

Having read what so many of you have written here, reading these columns should ...

MaggieSylvie

•4 years ago

4 Replies

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Ruptured cysts.

I’m pretty sure I get ruptured cysts alongside my endometriosis. I’m surprised at how often they seem to happen. It can happen monthly usually around...

I’m pretty sure I get ruptured cysts alongside my endometriosis. I’m surprised ...

Salz10

•4 years ago

2 Replies

What's next after my laparoscopy and follow up appointment?

Hey guys, a few weeks ago I had a laparoscopy to remove an ovarian cyst and to try to remove all the endometriosis I had. I just had follow up appointment with...

Hey guys, a few weeks ago I had a laparoscopy to remove an ovarian cyst and to t...

greenleaf1997

•4 years ago

8 Replies

Amitriptyline - Does it help?

Hi, I asked my GP what I could do for pain management for endometriosis (I have stage IV, now awaiting MRI scan before next steps). He gave me a prescription...

Hi, I asked my GP what I could do for pain management for endometriosis (I have ...

Hidden

•4 years ago

26 Replies

Treatments, pain and crying

Hi, it took me quite a few years to be diagnosed, I saw quite a few people and was just told that I was female and it was probably just period pain or I was...

Hi, it took me quite a few years to be diagnosed, I saw quite a few people and w...

Chocolateymouse64

•4 years ago

9 Replies

Ignorant husband

How can I get my husband to understand how ill I feel when having a flare up? Does anyone else’s husband/partner think because we get on with it and still go...

How can I get my husband to understand how ill I feel when having a flare up? Do...

Dachy32

•4 years ago

3 Replies

Ignorant husband

How can I get my husband to understand how ill I feel when having a flare up? Does anyone else’s husband/partner think because we get on with it and still go...

How can I get my husband to understand how ill I feel when having a flare up? Do...

Dachy32

•4 years ago

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Hysterectomy questions

Hi everyone, I’ve been told that (finally) I’ll be allowed to have a hysterectomy for adenomyosis. I was wondering if anyone could share their stories so I...

Hi everyone, I’ve been told that (finally) I’ll be allowed to have a hysterect...

Jasmineleah

•4 years ago

23 Replies

Prostap failing possibility??

Hi.. so I have a strange one.. has anyone had the prostap successfully where it does its job no pain moods subside side-effects are well and truly kicked in...

Hi.. so I have a strange one.. has anyone had the prostap successfully where it ...

Beki2244

•4 years ago

13 Replies

What to say to my GP?

Hi all. I am new here. I am four years into investigations for abdominal and shoulder pain and horrendous IBS like symptoms. My GP has ruled out a whole host...

Hi all. I am new here. I am four years into investigations for abdominal and sho...

kfairbairn

•4 years ago

4 Replies

Hormonal treatment

Hi I hope you’re well! Has anyone been prescribed cerazette as part of their treatment? I’ve been on it since November last year and have been suffering...

Hi I hope you’re well! Has anyone been prescribed cerazette as part of their tre...

Emk83

•4 years ago

2 Replies

What if my GP won't refer me?

Hi guys! :) I have a telephone appointment with my GP on Thursday. I am getting really nervous about it. I am going to ask to be referred but I don't want to...

Hi guys! :) I have a telephone appointment with my GP on Thursday. I am getting...

Dachshundlover1

•4 years ago

8 Replies

Surgery in August?

Hi all, Since my last post I’ve changed my gynaecologist to a BSGE accredited endometriosis excision specialist. That was honestly the best advice and I got...

Hi all, Since my last post I’ve changed my gynaecologist to a BSGE accredited ...

HMinnie4

•4 years ago

1 Reply

Do you challenge doctors?

Hey all, Bit of a random question but I am intrigued so thought I'd ask. We all know there seems to be an issue with understanding of endometriosis within the...

Hey all, Bit of a random question but I am intrigued so thought I'd ask. We all...

TennisAM

•4 years ago

53 Replies

Endo and orgasms

Hi all, First time writing here but do not know where else to go. I have been seen my different docs that have all suspected that I have endo. I eventually got...

Hi all, First time writing here but do not know where else to go. I have been se...

Orange244

•4 years ago

6 Replies

Numbness in legs

Does any endo girls get like numbness in their legs feels like dead leg ? I can't explain the feeling but been having it for over a week now and it's driving...

Does any endo girls get like numbness in their legs feels like dead leg ? I can'...

Xxlouise25xx

•4 years ago

2 Replies

Near diagnosis, lack of support and a whole lot of questions!

I got a near diagnosis this year after 5 years of pestering and demanding help from the doctors (I still need the surgery to 100% confirm but we're pretty...

I got a near diagnosis this year after 5 years of pestering and demanding help f...

ArtyPal

•4 years ago

5 Replies

Personal Independent Payments Tribunal

Hi everyone I have the hearing for my tribunal next week to try and show that my endometriosis prevents me from being able to carry out daily activities. Has...

Hi everyone I have the hearing for my tribunal next week to try and show that m...

Melon365

•4 years ago

15 Replies

Zoldex for more than the advised 6 months ??

Prescribed zoldex for endometriosis and hyperplasia age 27 .......Anyone else been on zoldex 3.6 for more than the 6 months advised ... I was originally told...

Prescribed zoldex for endometriosis and hyperplasia age 27 .......Anyone else be...

elizal

•4 years ago

4 Replies

Surgery or medication ?

Is there a best way to treat endo ? I am 21 and have suspected deep Infiltrating endo and ovary stuck to uterus (shown in an mri). I had a call with a...

Is there a best way to treat endo ? I am 21 and have suspected deep Infiltrating...

mayfe123

•4 years ago

7 Replies

Mini-Pill working wonders!

I came off my contraceptive implant to see how my period was doing and it turned out to be irregular and very very very painful as well as a surprising symptom...

I came off my contraceptive implant to see how my period was doing and it turned...

Decode

•4 years ago

2 Replies

Laparoscopic ablation on uterosacral ligaments?

Hi, Am due to have my second surgery next week to try to remove the endo on my uterosacral ligaments. I have just had another read over my hospital letter and...

Hi, Am due to have my second surgery next week to try to remove the endo on my ...

Ejrn

•4 years ago

1 Reply

Please HELP!

Hi just wondering during if anybody can help im 29 I have a 6 year old about 4 years ago I underwent an operation on my stomach what went critically wrong...

Hi just wondering during if anybody can help im 29 I have a 6 year old about 4 y...

NikHeidi

•4 years ago

2 Replies

Anyone had hysterectomy at young age?

I’m 20 but considering one. Would love to hear other women’s experiences of having a hysterectomy, regardless of age x x

I’m 20 but considering one. Would love to hear other women’s experiences of havi...

joniblue

•4 years ago

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Post-surgery bleeds

Hi there, I'm sure this has been asked a million times, so apologies for that! I had my first laparoscopy 10 days ago, removing a large endometriotic cyst from...

Hi there, I'm sure this has been asked a million times, so apologies for that! I...

Tinks21

•4 years ago

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Endometriomas and endometriosis

Hello, In January I had a ruptured 4cm endometrioma and had to have emergency surgery to treat this. The endometrioma could not be removed completely due to...

Hello, In January I had a ruptured 4cm endometrioma and had to have emergency ...

Em_wilkinson96

•4 years ago

1 Reply

Counsellors/psychotherapists with knowledge of endometriosis? Looking for recommendations.

Hello, After 3 failed attempts at finding a therapist who doesn’t just think endo is simply psychosomatic, I’m really struggling. Having suicidal ideations...

Hello, After 3 failed attempts at finding a therapist who doesn’t just think end...

Mmb45

•4 years ago

3 Replies

Implant for endo?

Hello, After a year of tests it is looking likely I have endometriosis—though the dr I am assigned to is reluctant to perform a laparoscopy despite cysts and...

Hello, After a year of tests it is looking likely I have endometriosis—though th...

gettingusedtoendo

•4 years ago

11 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for March 2021

Feeling sad.. advice please

What checks are needed before IVF?

Doctors need educating

Ruptured cysts.

What's next after my laparoscopy and follow up appointment?

Amitriptyline - Does it help?

Treatments, pain and crying

Ignorant husband

Ignorant husband

Hysterectomy questions

Prostap failing possibility??

What to say to my GP?

Hormonal treatment

What if my GP won't refer me?

Surgery in August?

Do you challenge doctors?

Endo and orgasms

Numbness in legs

Near diagnosis, lack of support and a whole lot of questions!

Personal Independent Payments Tribunal

Zoldex for more than the advised 6 months ??

Surgery or medication ?

Mini-Pill working wonders!

Laparoscopic ablation on uterosacral ligaments?

Please HELP!

Anyone had hysterectomy at young age?

Post-surgery bleeds

Endometriomas and endometriosis

Counsellors/psychotherapists with knowledge of endometriosis? Looking for recommendations.

Implant for endo?

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