Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

All posts for January 2024

Pain relief. How do advocate for myself?

Hello lovely people. Wishing you a peaceful pain free day.I need some support on how to advocate for myself as I'm pretty useless. I'm currently on the waiting...

Hello lovely people. Wishing you a peaceful pain free day.I need some support on...

KM1986

•4 months ago

6 Replies

Pain in back after bowel movement

I've got stage 4 endo and over last few months I've noticed a pattern of really painful lower back pain before and after bowel movements lasting hours and now...

I've got stage 4 endo and over last few months I've noticed a pattern of really ...

Theodora2016

•4 months ago

4 Replies

I need of advice please

Hi everyone, stage 4 Endo here. I really am after some Advice please…. Over the last few months I’ve noticed my stomach making very loud gurgling sounds...

Hi everyone, stage 4 Endo here. I really am after some Advice please…. Over t...

Silkthrow

•4 months ago

2 Replies

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Worried about spotting

Hi everyone, I’m looking for some help and advice as I’ve not really experienced this and I’m unsure as to what to do. I have adenomyosis and endometriosis...

Hi everyone, I’m looking for some help and advice as I’ve not really experienced...

KittyCatRockstar

•4 months ago

1 Reply

25 years old POI patient

Hi everyone I was hesitant to share this but this time I need support I am turning 26 this month, at the end of the last year I was diagnosed with POI, and...

Hi everyone I was hesitant to share this but this time I need support I am tu...

Emy_M

•4 months ago

5 Replies

Sciatica

I have stage 4 deep bowel endo. I keep getting really bad sciatica about once every couple of months. My physio says she treats 5 women who also have sciatica...

I have stage 4 deep bowel endo. I keep getting really bad sciatica about once ev...

Katiahead

•4 months ago

1 Reply

Tilted Uterus and Mirena Coil

Just wondering how many of you have been told you have a tilted uterus and that it'll be hard to fit the mirena coil. Saw my gyne back in November, he has...

Just wondering how many of you have been told you have a tilted uterus and that ...

PunkyPeanutButterCup

•4 months ago

11 Replies

Feeling fed up.

Feeling very low today and I just need to vent. My bowels have flared up again, from my bowel movement this morning there has been a constant pain in my...

Feeling very low today and I just need to vent. My bowels have flared up again, ...

KB1987

•4 months ago

7 Replies

5 weeks post laparoscopy and pain is creeping back

A week after my laparoscopy where they found and ablated endo from around my left and right ovary I was feeling great was pain free and full of energy. Now I'm...

A week after my laparoscopy where they found and ablated endo from around my lef...

Dellz1996

•4 months ago

2 Replies

Coil during sex

Hi all, !!!! TMI !!! Firstly please let me apologise. I've googled and looked up answers before having to come on here and ask for answer/advice. 😭 I had a...

Hi all, !!!! TMI !!! Firstly please let me apologise. I've googled and looked ...

AMJ88

•4 months ago

2 Replies

Post diagnosis limbo

Hi everyone,I had my lap in September last year and the surgeon said they found endometriosis, cysts, adhesions etc and removed them. This was all said to me...

Hi everyone,I had my lap in September last year and the surgeon said they found ...

YellowDahlia

•4 months ago

5 Replies

Fatigue and restless

I feel very tired and restless all day,feel like I am a useless person, can't even do my normal routine tasks as waking up in the morning is very hard but have...

I feel very tired and restless all day,feel like I am a useless person, can't ev...

Kamna1

•4 months ago

5 Replies

All getting too much...

This isn't gonna be much of a question, just needed somewhere to vent because I am in struggle town right now. Currently on day 6 of my period which, as...

This isn't gonna be much of a question, just needed somewhere to vent because I ...

endo_the_stigma

•4 months ago

13 Replies

Periods with HRT

Last Sept I had extensive excision surgery and the removal of one ovary. I was given utrogestan capsules and evorel 50 patches. However, I have had two bleeds...

Last Sept I had extensive excision surgery and the removal of one ovary. I was g...

Reddog8

•4 months ago

2 Replies

Cyst, not endometrioma

I had an endometrioma removed a few years ago. It helped greatly. A cyst (full of water, not an endometrioma) has now developed on the other side (over ovary...

I had an endometrioma removed a few years ago. It helped greatly. A cyst (full o...

Bellebell

•4 months ago

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Attempting to conceive

hi everyone. In September last year I was diagnosed with stage 4 endo and slight adeno. We have just started trying for a baby, I am 29 and am wondering if...

hi everyone. In September last year I was diagnosed with stage 4 endo and slight...

Rosiehannah1

•4 months ago

25 Replies

How To Get.Stage Diagnosis

I have been diagnosed with endometriosis and Adenomyosis after years and years of painful periods and feeling very unwell. I have had an internal ultrasound...

I have been diagnosed with endometriosis and Adenomyosis after years and years o...

1Poppy1234

•4 months ago

4 Replies

temporary menopause

I’ve recently started the injections for menopause. I have been suffering really badly with extremely achy bones. Does anyone have any advice of things to help...

I’ve recently started the injections for menopause. I have been suffering really...

Red476

•4 months ago

9 Replies

Dianogest/Zalkya, dry mouth and throat, sore throat.

Hi ladies, I have been taking Zalkya/Dianogest for 8 months post stage 3 endometriosis surgery. Around 5 months ago, I started to have a sore throat, with...

Hi ladies, I have been taking Zalkya/Dianogest for 8 months post stage 3 endome...

Ayesfreen

•4 months ago

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memory loss prostap hell

my life is a living hell at the min I have been on prostap injections now for 2 1/2 years. I was meant to be having a hysterectomy but because I have a...

my life is a living hell at the min I have been on prostap injections now for...

Cheesychips

•4 months ago

19 Replies

Face to face vs zoom consult

Does everyone feel a zoom consult is equal to a face to face appointment? I need a follow up consult having had an MRI to investigate pelvic pain, all private....

Does everyone feel a zoom consult is equal to a face to face appointment? I need...

MontsJ

•4 months ago

4 Replies

Feeling worse after period

does anyone else feel worse once their period is coming to an end/ ended? I have significant stage 4 Endo and adeno and in constant pain, tried multiple...

does anyone else feel worse once their period is coming to an end/ ended? I hav...

Lily1986

•4 months ago

7 Replies

Addback HRT or Antidepressants?

Hi, I'm currently on zoladex week 3 of my first injection. I'm on addback HRT of estrogen gel 2 pumps per day and body identical utrogestan progesterone- one...

Hi, I'm currently on zoladex week 3 of my first injection. I'm on addback HRT of...

Sunset-lady

•4 months ago

10 Replies

Combined pill severely affecting mood

Hi there, I am trying to find a combined pill which doesn’t severely affect my mood - any advice? So far I’ve tried Yasmin and Millinette and both have led...

Hi there, I am trying to find a combined pill which doesn’t severely affect my ...

BlueAlligator

•4 months ago

4 Replies

Received my Diagnosis

After years of being pushed around and told by the NHS that I have ‘Severe Period Pains’ that require Pain Medication, I’ve finally received my Diagnosis from...

After years of being pushed around and told by the NHS that I have ‘Severe Perio...

Silvell

•4 months ago

4 Replies

Endometrioma means Endometriosis?

Hello, I wondered if anyone could help me. I have been going through infertility and failed IVF cycles for 3 years now. I had an MRI to check my womb and they...

Hello, I wondered if anyone could help me. I have been going through infertilit...

Naevo

•4 months ago

7 Replies

medication

progesterone any experience of hallucination? Not orally inserted! When the time of month comes they aren’t able to be absorbed… any experience please?

progesterone any experience of hallucination? Not orally inserted! When the time...

Prowarrior1

•4 months ago

1 Reply

Zoladex- Being told too young

Hi lovelies This is a bit of a frustrating one and long so sorry in advance- my consultant has request that I try Zoladex for 3 months before having surgery,...

Hi lovelies This is a bit of a frustrating one and long so sorry in advance- m...

p1xcv123

•4 months ago

10 Replies

Period pain with endometriosis on bladder and rectum

Happy New year to you all endowarriors and apologies for the TMI but I started my period yesterday and I was so sore and bloated, I looked pregnant and stomach...

Happy New year to you all endowarriors and apologies for the TMI but I started m...

Escapologygirl

•4 months ago

8 Replies

When did you wear normal clothes post lap??!

I’m really finding normal trousers/leggings (forget jeans entirely!!) uncomfortable to wear still and am now 6 weeks post op. I just feel I am easily bloating...

I’m really finding normal trousers/leggings (forget jeans entirely!!) uncomforta...

Endofitall

•4 months ago

9 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2024

Pain relief. How do advocate for myself?

Pain in back after bowel movement

I need of advice please

Worried about spotting

25 years old POI patient

Sciatica

Tilted Uterus and Mirena Coil

Feeling fed up.

5 weeks post laparoscopy and pain is creeping back

Coil during sex

Post diagnosis limbo

Fatigue and restless

All getting too much...

Periods with HRT

Cyst, not endometrioma

Attempting to conceive

How To Get.Stage Diagnosis

temporary menopause

Dianogest/Zalkya, dry mouth and throat, sore throat.

memory loss prostap hell

Face to face vs zoom consult

Feeling worse after period

Addback HRT or Antidepressants?

Combined pill severely affecting mood

Received my Diagnosis

Endometrioma means Endometriosis?

medication

Zoladex- Being told too young

Period pain with endometriosis on bladder and rectum

When did you wear normal clothes post lap??!

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