Feeling fed up.

[KB1987]

Feeling very low today and I just need to vent. My bowels have flared up again, from my bowel movement this morning there has been a constant pain in my rectum. It's feels as if there is glass stuck up it, under my ribs have flared up from I had that sharp shooting pain down my GI tract while having a bowel movement. This happens like clockwork every time im approaching my period and I've to wait another 5 years for my lap on the NHS. I had clear ultrasound and pelvic scan back in November apart from small cyst on ovary, she did really struggle to find 1 off my ovarys as my bowel was covering it which I though should be a red flag. This really affects your mental health as well as you just feel like your getting nowhere with drs etc

[AllthatGlitters]

Hello I couldn’t read and not reply to you 💛you are so right when you say it also affects your mental health. I had to have counselling and CBT to help me cope with my health, illness, surgeries, job losses, being treated like crap from employers and also how to cope every day with pain and bleeding. I feel for you - I have been there.

I have adeno and endo and also have new symptoms which effect my bowels 🤢

Please feel free to PM me if you like xx

[KB1987 in reply to AllthatGlitters]

Thank you so much for the reply. I'm sorry to hear your struggling too. It's horrible isn't it. I always joke it wouldn't take you to be dieing as the NHS really don't seem to care about our gyno problems. I hope you get your answers soon and please feel free to pm me anytime as well xx

[Bubble-z]

I feel you, you are very right about endo affecting mental health. It’s affected my mental health so badly that I started taking antidepressants a few days ago. I’m in constant pain, I can’t sleep without my electric pads, I can’t poo without pain, I fee fatigue all the time and I have a stressful full time job that requires me to be very focused but I can’t because I’m in pain and feel so tired all the time. Sometimes I wish I could resign and stay at home and sleep all the time but it’s not possible! And the worst thing is that I can’t take any medication or can’t have any treatment plans because I’m trying to get pregnant with IVF! I also have fibroids and adenomyosis that also cause infertility so they’ll have to be removed from my uterus then we can transfer our little embryo! I’m already stressed and thinking about the possible miscarriage along with other issues that I mentioned above. I also feel very insecure at work as I’ve been on sick leave a lot due to my pain so I feel they are gonna dismiss me soon!

[KB1987 in reply to Bubble-z]

Sorry to hear your struggling as well. It's an awful disease and your right about the lack off support out there. I really hope your pain eases up for you and you get the relief you need. Feel free to PM me anytime xx

[JOSANDY40]

Poor you. I know how you feel. Endo is a hugh struggle without the help quickly you need answers to. The years haven't changed little for me either. This disease so many more women are getting.

Impact on day to life. I muster myself. For me I feel I lost my confidence, myself and finally my relationship.

We have to stay strong, few understand. The drugs get us by. We certainly need more understanding and support from the system. Even family tire of worrying.

Over the years I have built inner muster, me verses it! Talk to myself in the mirror telling myself I'm in control of you Endo so butt out! Mindset is important to keep positive, push down feelings away. I do my smiling excerise in the mirror, always telling myself I'm lovely, always check in on a plant or blue sky. Tell myself its a great day! It is amazing how when you reinforce positive thought how much better you feel. It's interesting what a different it makes when you take the control away of how your brain feels and what it tells you about your body's behaviour. The brain informs us, tells us we are ill, so we are. I have learnt to step up against pain and over the years found coping methods to achieve what could be a down week into a better wk than expected. So might say girlpower.

Anyway stay positive cos your special.

x

[KB1987 in reply to JOSANDY40]

Aww that's a lovely reply. It actually made me emotional reading it, very supportive message. I really appreciate it. Your so right about trying to stay strong as its the only option really as we don't have much choice to be strong xx

[JOSANDY40]

Poor you. I know how you feel. Endo is a hugh struggle without the help quickly you need answers to. The years haven't changed little for me either. This disease so many more women are getting.

Impact on day to life. I muster myself. For me I feel I lost my confidence, myself and finally my relationship.

We have to stay strong, few understand. The drugs get us by. We certainly need more understanding and support from the system. Even family tire of worrying.

Over the years I have built inner muster, me verses it! Talk to myself in the mirror telling myself I'm in control of you Endo so butt out! Mindset is important to keep positive, push down feelings away. I do my smiling excerise in the mirror, always telling myself I'm lovely, always check in on a plant or blue sky. Tell myself its a great day! It is amazing how when you reinforce positive thought how much better you feel. It's interesting what a different it makes when you take the control away of how your brain feels and what it tells you about your body's behaviour. The brain informs us, tells us we are ill, so we are. I have learnt to step up against pain and over the years found coping methods to achieve what could be a down week into a better wk than expected. So might say girlpower.

Anyway stay positive cos you're special.

x