Received my Diagnosis

[Silvell]

After years of being pushed around and told by the NHS that I have ‘Severe Period Pains’ that require Pain Medication, I’ve finally received my Diagnosis from a Private Specialist. Adenomyosis / Significant Endometriosis.

To finally find out that I’m not just in pain because I have ‘Bad Periods’ has a lifted a weight off my shoulders.

They will be shortly scheduling a Laparoscopic Surgery, as I have been told, due to the migration of my Scar Tissue from the Endometriosis, I have a significantly distorted Ureter on my right side (Tube that leads from your Kidney to your Bladder).

I would really appreciate some support from the community, as despite this Diagnosis, I am quite scared of what’s to come!

[16yearsofpainsofar]

I've been fobbed off since I was 11 😭 how did the specialist diagnose you without a laparoscopy?

[endo_the_stigma in reply to 16yearsofpainsofar]

Quite often (but not all the time) endo and adeno can be picked up on a pelvic MRI scan if the radiologist and specialist know what they are looking for. My endometriosis and adenomyosis were both picked up on an MRI straight away even though I was told 'your ultrasound came back normal so you won't have endo'. Laparoscopy is no longer the gold standard for diagnosis as they are developing better, more detailed techniques on MRIs now, however some still doesn't get picked up until laps so its dependant on each case I think x

[16yearsofpainsofar in reply to endo_the_stigma]

Interesting. I've had many ultrasounds and endo has never been picked up. I've had an MRI before but that was just for my head. A laparoscopy sounds scary but I thought this is the only way I'll be diagnosed.

[endo_the_stigma in reply to 16yearsofpainsofar]

Yep, all my ultrasounds came back 'clear & normal' but my MRI did not and they confirmed both endo and adeno from it. I am still waiting for my laparoscopy