Fatigue and restless

[Kamna1]

I feel very tired and restless all day,feel like I am a useless person, can't even do my normal routine tasks as waking up in the morning is very hard but have too when my daughter asks for school uniform but I can awake till 11:30 am and after that I feel like so tired that I can't even make my bed , it feels very difficult to get up till afternoon to bring my daughter from school,I am gaining so much weight even my body is out of track, sitting, standing and pushing hard to use my body but I don't feel like doing anything,if I try have to put weight on my feets and lower back which is making me more miserable, with pain mentally and physically I am not doing anything as if I do I get so tired as if I did tracking on a long route, making breakfast is like climbing Everest.I don't know when will all this end and others in my age still working and having social life and I am just house bound,if I push my body hard I left weeks on bed.i don't know what to do and think about my body,weight or my physical activity with this fatigue.Pain,fear, weight gain and unable to do anything is my life,I know I feel like a mad person but yes I am getting mad day by day,I can't even have enough energy to wash my face and change my clothes.Anyone else feels the same?as people make rude comments on my body even at school why i am a fat mum but in reallity I can't do anything for it.As have a lot to do but I no mind and no better body.

[Hooplove00]

All those people making rude comments can F off!! They couldn’t handle a day in your shoes. Give yourself some grace ♥️ weight gain is a common thing with this disease. The fatigue that comes with it is awful.Have you had a lap at all or recently? Before my lap I couldn’t even walk my dog some days. I get being housebound, as I’ve been in the same boat. It’s really important to connect with people(like on this forum) and other women who go through the same thing. Others won’t get it , no matter how much you try to explain, and it’s not worth your energy trying to convince others how debilitating your symptom are.

[Kamna1 in reply to Hooplove00]

Yes I am in horrible pain, suffering a lot last night I asked my husband to beat my feets and lower back with a stick as I was crying in pain ,it took him one hour of beating me with a hard object to make me sleep,he was beating me and the pain was so bad i was not getting relief nor feeling his beating as the pain was much more.I have to sleep like this.This is how i am managing my pain but to be honest no painkillers are helping me.

[Hooplove00 in reply to Kamna1]

I am so sorry😢 hoping you can get the help that you need very very soon ❤️‍🩹

[PrettyRainbows]

I feel your pain! Have you recently had a blood test ? I felt exactly the same, turns out I'm aneamic with low ferritin on top of the general endo fatigue! Since being on iron tablets I have deffo noticed improvements! Might be something to consider or get checked if not already done so

[Kamna1 in reply to PrettyRainbows]

I really don't know what is going on,but this is the truth that I am in horrible pain every single day.I am crawling not walking, unable to sleep until someone make my bed.Fatigue on the top of pain has made everything worse.it has been two weeks since I had a shower as I am not feeling like taking bath and changing my clothes.I don't remember when I wore full clothes at home,I prefer to stay without pants and trousers,I wear only t-shirt as my lower body is in discomfort