Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,257 members • 21,034 posts

All posts for November 2019

MS Pain Anyone? Anyone?

No? I don't blame you! So please don't tell me how to deal with it. Or what I should do about it. 😊 Cause a long soak Ina tub isn't going to fix it! 😂🤣...

No? I don't blame you! So please don't tell me how to deal with it. Or what I sh...

Jesmcd2

CommunityAmbassador•5 years ago

19 Replies

Post 563 You are not promised anything 12 Nov 2019

Perhaps that is not exactly true. "YOU" were promised upon your birth that "YOU" will die. That is about all I can think that was ever promised. Lots of...

Perhaps that is not exactly true. "YOU" were promised upon your birth that "YO...

RoyceNewton

•5 years ago

2 Replies

Your favorite resources

Would anyone care to post links to resources you rely on for credible information related to MS in some way? There is a wealth of information out there, but...

Would anyone care to post links to resources you rely on for credible informatio...

greaterexp

•5 years ago

11 Replies

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Veterans Day

Thank you for your service to our country & the other areas you have defended. We have family members currently in the service. My daughter & her husband both...

Thank you for your service to our country & the other areas you have defended. W...

CalfeeChick

CommunityAmbassador•5 years ago

7 Replies

Happy Veterans Day

To all who may have served or have family members who gave so unselfishly; blessings and many thank you's! My dad would have been 97 years old and among the...

To all who may have served or have family members who gave so unselfishly; bless...

stepsforNeeC

•5 years ago

29 Replies

Hello everyone, I have a question. Is anyone taking the medicine Ampyra to help with walking?

My doctor wants me to start taking Ampyra to help me walk better. This medicine cost around $2,000. My local pharmacy can not fill my prescription because my...

My doctor wants me to start taking Ampyra to help me walk better. This medicine ...

Cutefreckles72

•5 years ago

35 Replies

About Gratitude

It's early November, and I read a lot about gratitude since Thanksgiving is just around the corner. Being grateful does so much for our own hearts and minds....

It's early November, and I read a lot about gratitude since Thanksgiving is jus...

greaterexp

•5 years ago

18 Replies

Finally Good News!!!

My MRI of my brain came back with no new or active lesions!!! First good news I have had in a flipping yr! And I am going to take it and run with it!!!...

My MRI of my brain came back with no new or active lesions!!! First good news I ...

Jesmcd2

CommunityAmbassador•5 years ago

29 Replies

New chair coming!

I just got the approval from Kaiser for a new electric wheelchair that will fit me. I bought one on my own some time back that is very convenient to travel...

I just got the approval from Kaiser for a new electric wheelchair that will fit ...

CraigS

•5 years ago

13 Replies

unnumbered post 9 Nov 2019

I said this to one of us today and thought I should share it. Relapsing Remitting ms(RRms) do all that you can do to slow it and accept that it will find...

I said this to one of us today and thought I should share it. Relapsing Remit...

RoyceNewton

•5 years ago

2 Replies

“Why aren’t you taking DMDs?” “That depends,What pharmaceutical company do you represent?”

New doctor asked me this. She didn’t like my response and said, “I would be remiss as a physician if I didn’t tell you all your options.” I replied, “So of...

New doctor asked me this. She didn’t like my response and said, “I would be remi...

deedeedah

•5 years ago

32 Replies

Hospitals discriminate

Arrived at the facility for a 4 hour MRI an hour early. Parking was a building next door, fourth floor and far from the elevator (no handicap spaces...

Arrived at the facility for a 4 hour MRI an hour early. Parking was a building n...

deedeedah

•5 years ago

29 Replies

Of Rivers and Friends

I've written about how much I love rivers, the peace, the power, the magic. What would the river, or anyplace be without friends. I didn't know anyone in this...

I've written about how much I love rivers, the peace, the power, the magic. What...

Equitube

•5 years ago

11 Replies

Here is my Cookie

Hi Friends-here is my cat Cookie I said I would post. I wrote about my other cat Moby before and this is his Sister. They love to play together and are good...

Hi Friends-here is my cat Cookie I said I would post. I wrote about my other cat...

nicoly3467

•5 years ago

11 Replies

Lipoic acid

Greetings everyone! I am curious to find out if anyone has tried taking 1200 mg of lipoic acid daily. I am reading a SPMS magazine about it. Thanks for...

Greetings everyone! I am curious to find out if anyone has tried taking 12...

positiveness

•5 years ago

16 Replies

Mayzent

Has anyone tried Mayzent? I finally got a confirmation of having a progressive form of MS. Now my doc wants me to try this new drug after seeing I have 2 new...

Has anyone tried Mayzent? I finally got a confirmation of having a progressive f...

cljones

•5 years ago

5 Replies

Friday Dance party Part II

https://youtu.be/kqa-HYihaZo After you get done chicken yodeling, tune in for some fine Casio keyboard music.

https://youtu.be/kqa-HYihaZo After you get done chicken yodeling, tune in for s...

greaterexp

•5 years ago

15 Replies

Post 562 Give yourself a goal 8 Nov 2019

No, nothing impossible like me winning the Powerball, lottery. Or "YOU" finding that miracle cure for your Relapsing-Remitting ms (RRms). Unless that is...

No, nothing impossible like me winning the Powerball, lottery. Or "YOU" findin...

RoyceNewton

•5 years ago

8 Replies

I know you do this to!

Do you get UTI's after steroids? Cause once again, tyvm! I have another, after having a dose of of them. I'm about done being sick! (They gave me the roids for...

Do you get UTI's after steroids? Cause once again, tyvm! I have another, after h...

Jesmcd2

CommunityAmbassador•5 years ago

23 Replies

Something to add to your Christmas list!

The Apple 4 and above have fall indicators! If you fall, your watch will ask you if Siri should call your pre-programmed emergency contact or 911. If you do...

The Apple 4 and above have fall indicators! If you fall, your watch will ask yo...

MaryAZ

•5 years ago

20 Replies

Thanks for your posts and replies

You all make my day! Coming here every day to read your thoughtful comments does much more than merely inform me. You make me laugh (a lot!), which lightens...

You all make my day! Coming here every day to read your thoughtful comments doe...

greaterexp

•5 years ago

18 Replies

I keep forgetting to breathe

Over the past few months I have had issues where I felt like I was out of breath. Docs checked out my lungs and cardio, all was good. After another month or...

Over the past few months I have had issues where I felt like I was out of breath...

jorrell

•5 years ago

5 Replies

Rivers and Trees

Today is one of those days. Nothing going right, snipping back & forth with RJ, having a hard time doing the treatments I'm supposed to. I know what I'm gonna...

Today is one of those days. Nothing going right, snipping back & forth with RJ, ...

Equitube

•5 years ago

8 Replies

Nerve test and it's eye opening!

I had a nerve test yesterday, this after being DXED a year and half ago. Was very eye opening. My Vagus nerve is badly damaged and wonder why it took this...

I had a nerve test yesterday, this after being DXED a year and half ago. Was ve...

Juliew19673

•5 years ago

11 Replies

New Symptoms

Hi everybody. Fell and broke my hip about 6 weeks ago and ever since I have new symptoms. My mouth quivers constantly and it's hard to talk. Have a problem...

Hi everybody. Fell and broke my hip about 6 weeks ago and ever since I have new...

Ikeeptrying

•5 years ago

11 Replies

Post 561 Congratulations 7 Nov 2019

Congratulations, for what "YOU" may ask. Congratulations because "YOU" have got a handle on this. "YOU" have accepted that strange and sometimes painful...

Congratulations, for what "YOU" may ask. Congratulations because "YOU" have go...

RoyceNewton

•5 years ago

6 Replies

Take the time to find something new every day.

Life will always be an adventure and you'll never get old. Remember, The supernatural is within us all, naturally. The best part of having MS & not working...

Life will always be an adventure and you'll never get old. Remember, The supern...

Equitube

•5 years ago

18 Replies

Great appt with the neuro today

He ran through the same old tests. Everything is stable. Ocrevus is doing its job - no new lesion, no active lesion. I feel much better than prior to DX 18...

He ran through the same old tests. Everything is stable. Ocrevus is doing its jo...

anaishunter

•5 years ago

9 Replies

Anyone else relate?

🤗💕 J🌠

Jesmcd2

CommunityAmbassador•5 years ago

19 Replies

Post 560 I make mistakes and your Fears 9 Nov 2019

Nobody caught me. I just noticed that I saw 10000+ posts and 5000+ members and I miswrote them, and nobody found my mistake. I am a little upset that "YOU"...

Nobody caught me. I just noticed that I saw 10000+ posts and 5000+ members and...

RoyceNewton

•5 years ago

6 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for November 2019

MS Pain Anyone? Anyone?

Post 563 You are not promised anything 12 Nov 2019

Your favorite resources

Veterans Day

Happy Veterans Day

Hello everyone, I have a question. Is anyone taking the medicine Ampyra to help with walking?

About Gratitude

Finally Good News!!!

New chair coming!

unnumbered post 9 Nov 2019

“Why aren’t you taking DMDs?” “That depends,What pharmaceutical company do you represent?”

Hospitals discriminate

Of Rivers and Friends

Here is my Cookie

Lipoic acid

Mayzent

Friday Dance party Part II

Post 562 Give yourself a goal 8 Nov 2019

I know you do this to!

Something to add to your Christmas list!

Thanks for your posts and replies

I keep forgetting to breathe

Rivers and Trees

Nerve test and it's eye opening!

New Symptoms

Post 561 Congratulations 7 Nov 2019

Take the time to find something new every day.

Great appt with the neuro today

Anyone else relate?

Post 560 I make mistakes and your Fears 9 Nov 2019

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