Mayzent

[cljones]

Has anyone tried Mayzent? I finally got a confirmation of having a progressive form of MS. Now my doc wants me to try this new drug after seeing I have 2 new lesions on my spine at T2-3. They aren't active at this point thank goodness. But I would like to know if anyone can give me their opinion about it. She said it has only been out for 6 months, so I don't know much about it.

[jimeka]

I have only googled it and for me it would not be a candidate as the common side effects are not pleasant. Let us know how you get on, please. Blessings Jimeka 🤗

[cljones in reply to jimeka]

Thanks. I am thinking there isn't anyone out there who has tried it. I guess I am a guinea pig. This will be my third dmt since 2014.

[LorenzoOilMom]

Mayzent crosses the blood/brain barrier, so my fears of PML go up immediately. The trial was only against one placebo group & it was not long enough to identify PML. The scariest of all side affects. Also, there are heart risks, which I don't totally understand. My daughter (14 years old- diagnosed back in March, 2019) is on Ocrevus (just had her 6 month dose), fyi: it was her first DMD & it has eliminated her fatigue & headaches. Her blurry vision is gone (went away before Ocrevus even started). Best of luck! There is no perfect drug out there.

[cljones in reply to LorenzoOilMom]

I worry about pml also since I am mcg positive. The doc I don't think knows to much about it either. Only what the drug rep told them. I hope it works. We will see I guess.

[cljones in reply to cljones]

Sorry autocorrect. Jcv positive.