MS Pain Anyone? Anyone?: No? I don't blame... - My MSAA Community

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MS Pain Anyone? Anyone?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’19 Replies

No? I don't blame you! So please don't tell me how to deal with it. Or what I should do about it. 😊 Cause a long soak Ina tub isn't going to fix it! πŸ˜‚πŸ€£

What about you guys? I know you deal with it! Do you curl up on the couch and watch movies? Or walk it off? (I have been known to do both) Just to try?

Chime in! πŸ€—πŸ’•

J🌠

positivelivingwithms.com TY! 😊

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Jesmcd2 profile image
Jesmcd2
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19 Replies
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erash profile image
erash

If achey enough, ibuprofen and work through it. If neuropathy, ignore it. If spasms, stretch, stretch, more stretching. My biggest pain is my not accepting my MS 😬

I’m so stubborn and push myself until I crash and burn.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to erash

Quit doing that erash ! πŸ˜”

Cutefreckles72 profile image
Cutefreckles72

I feel and look just like her on a lot of days. I try to walk around a little and sometimes that help. But the pain comes right back. πŸ€ͺ

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Cutefreckles72

I was going to ask if your cane was set at the right hight for you Cutefreckles72 ? It might help with your walking πŸ™„ πŸ˜‰ no promises tho! πŸ€—πŸ’•πŸŒ 

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Jesmcd2

Here is a slideshow from the Mayo Clinic for sizing 😊 mayoclinic.org/healthy-life...

Cutefreckles72 profile image
Cutefreckles72 in reply to Jesmcd2

It is at the right height. But my right knee locks back when I walk. I have to swing it out to walk because I can't bend my right knee. When I sit down it bends, but when I standup, it is crazy.

rjoneslaw profile image
rjoneslaw

I will start at a pain clinic n January. It will involve pt and counseling on how to deal with it. No drugs involved

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to rjoneslaw

Good for you rjoneslaw !! πŸ€žπŸ€—πŸ’•πŸŒ 

greaterexp profile image
greaterexp

I'm so fortunate not to have the deep, chronic pain so many have. For my little bouts, I can usually do well enough with distraction by physically doing something I like, such as quilting, or an old movie to divert my attention. It doesn't cure the pain, but helps me get to the other side of it.

Kenu profile image
Kenu

Pain Pump works for me to take the edge off πŸ‘πŸ™ Ken 🐾🐾

CraigS profile image
CraigS

There’s a drug for that!

I’m considering myself very lucky that I’m not in constant pain. (At least not physical pain) what I find fascinating is how my toes can be completely left off the radar most of the time until I want to sleep. Then the fireworks begin. Just touching the damn sheets can be excruciating.

Gotta love MS and all it’s quirky outcomes.

And BTW, I get it, no one else will and I really shouldn’t expect them to.

Craig

Goldilockssearching profile image
Goldilockssearching in reply to CraigS

I hear ya! Come later evening, there are some days when I’m trying to transition to bedtime, my calves and/or feet & toes start acting up. I have found that TheraWorks magnesium foam does help. If I feel the twitching/uncomfortableness is upon me, I will put it on the area(s) and it will stop it in its tracks.

pamgarner profile image
pamgarner

I just keep moving, I am afraid if I stop I won't get up,or worse I won't be able to

pamgarner profile image
pamgarner

also,I do have pain, I usually can deal with it but what ticks me off is fatigue!it is always the winner

leking1 profile image
leking1

Yes, and my neuro has run out of pain meds that my body will tolerate. I've been going to a pain clinic for several months now. We've tried steroid injections into my spine, but that didn't help, we discussed another " procedure" where the Dr. would go in and "burn" the nerve endings in my lower spine, so that they could not transmit pain signals...I voted NO on that one! All my Dr's keep saying take Tylenol....I QUIT taking any of it! It did not help, so I saw no need to put it in my body! Have another appt. at the Pain Clinic next month...can't afford PT, as my co-pay is $40 per visit!

carolek572 profile image
carolek572CommunityAmbassador

Like greaterexp , I am never in constant pain, and activities such as quilting, and reading, help me manage my occasional pain. I don't think that I would be able to manage constant pain, though. :-D

mrsmike9 profile image
mrsmike9

I'm glad to see others not suffering with much like me. I thought I just have an odd kind of MS! All I get are occasional spasms in one foot or the other. Always when I'm in bed. Have to stretch it out.

hairbrain4 profile image
hairbrain4

I take naproxen for pain when I have it. Stretch for spasms when they happen. For the most part I just tell myself to "suck it up buttercup" & ignore it.

anaishunter profile image
anaishunter

When I get neuro pain in my legs (it's never too bad), I go to see my friends and by the 2nd oe 3rd drink (maybe it's more, I rarely count), it's either gone or I've forgotten about it.

The OTC drugs, tylenol, naproxen or others do nothing about it.

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