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My MSAA Community

9,211 members • 20,958 posts

All posts for November 2019

Brain Frog

I was sent this this yesterday. It’s actually from a post on a CMT (Charcot Marie-Tooth) site. I responded by asking if brain fog was also a symptom of CMT,...

I was sent this this yesterday. It’s actually from a post on a CMT (Charcot Mari...

•5 years ago

Follow up today

Hi all! Hope you are all doing well. I go for my first follow up after my first two half doses today. Every time i go to my ms specialist i always get nervous...

Hi all! Hope you are all doing well. I go for my first follow up after my first ...

•5 years ago

Prayers and fingers crossed for peer to peer review

Praying that my doctor can make a strong argument and advocate for me when she has the peer to peer review this afternoon with insurance as they denied my...

Praying that my doctor can make a strong argument and advocate for me when she h...

•5 years ago

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So proud!

My wife has my kids, life, job, personal life, and myself on her shoulders. When someone thinks I am being selfish or over dramatic about life or to...

My wife has my kids, life, job, personal life, and myself on her shoulders. Whe...

•5 years ago

Really Scary Incident Yesterday

I had a really scary incident yesterday. I'd finally arranged to have the city waste department collect a large object on garbage day (today). I had a...

I had a really scary incident yesterday. I'd finally arranged to have the...

•5 years ago

Post 559 Not every day has to be hard 5 Nov 2019

"YOU" and I have Relapsing-Remitting ms (RRms). I am not sure why, nobody is. I am sure that I can not make it go away, nobody can. We have to live with...

"YOU" and I have Relapsing-Remitting ms (RRms). I am not sure why, nobody is. ...

•5 years ago

Animals view on time change 😃

Totally agree 😖😊😉🙏🐾🐾 Ken

Totally agree 😖😊😉🙏🐾🐾 Ken

•5 years ago

Unnumbered post 4 Nov 2019

Hello (Relapsing-Remitting) RRms family. I am working on post 559, it has not come ye. But' if it is meant to it will come eventually. Maybe tomorrow....

Hello (Relapsing-Remitting) RRms family. I am working on post 559, it has not...

•5 years ago

What's wrong?

How's your MS day going? Let's talk symptoms today? What is your most annoying MS symptom? And how do you deal with it? 🤗💕 J🌠

How's your MS day going? Let's talk symptoms today? What is your most annoying ...

CommunityAmbassador•5 years ago

Still learning to adapt to the changes MS brings.

I was diagnosed 3 1/2 years ago with RRMS (Relapsing Remitting) after an attack that began with numbness in one foot, spread up to my chest and left me with...

I was diagnosed 3 1/2 years ago with RRMS (Relapsing Remitting) after an attack ...

•5 years ago

New here

HI, I'm Steven. Diagnosed with R/RMS about 3 yrs ago. My biggest challenges are neurogenic bladder and bowel, visual, and cognitive difficulties.

HI, I'm Steven. Diagnosed with R/RMS about 3 yrs ago. My biggest challenges are ...

•5 years ago

Rituxan? Week after?

Hey all. Anyone else do Rituxan infusions? How are you the week after? I feel like I hit a wall the week after. I just feel a bit “off”. I always worry about...

Hey all. Anyone else do Rituxan infusions? How are you the week after? I feel li...

•5 years ago

November Artist of the Month - Congratulations Deborah C. Of Marysville, WA

Deborah C. Red Sky at Morning About the Artist: "When I was 26 years old, was when I first heard the words multiple sclerosis from an optician. I still...

Deborah C. Red Sky at Morning About the Artist: "When I was 26 years old, w...

CommunityAmbassador•5 years ago

Birthday!

Since yesterday was my birthday I gave myself a wonderful gift. I used my Elliptical Trainer. It was great! Best Wishes, Leslie

Since yesterday was my birthday I gave myself a wonderful gift. I used my Ellip...

•5 years ago

Dealing with Health Insurance companies

Sometimes it works without a blink, but more often than not you have to go through many loops to get pre-authorization, claims approved, payment from other...

Sometimes it works without a blink, but more often than not you have to go throu...

•5 years ago

how do you measure how MS impacts your cognitive abilities?

MS can impact every aspect of our "being". I feel that physical symptoms whether visible or not are something we can learn to gauge over time as we learn about...

MS can impact every aspect of our "being". I feel that physical symptoms whether...

•5 years ago

Holiday and Weekend!

How was everybody's Halloween? We had around 50 Kids! It was a lot of fun. I hope everyone has a fantastic weekend. Best Wishes, Leslie

How was everybody's Halloween? We had around 50 Kids! It was a lot of fun. I h...

•5 years ago

Art therapy

Well a little happy books i made last week..a little happiness!!

Well a little happy books i made last week..a little happiness!!

•5 years ago

Vumerity™ Oral Capsules Approved by the FDA for Adults with Relapsing Forms of MS, Including Active SPMS

This was FDA approved just a couple of days ago. It's good to know that research continues. Hope that one of these days a cure for MS Is announced!...

This was FDA approved just a couple of days ago. It's good to know that research...

CommunityAmbassador•5 years ago

Correction

Sorry everybody I mistaken wrote that my cycst camera check is Dec 4 th not November 4 th. Sorry about that. God bless. Donnie

Sorry everybody I mistaken wrote that my cycst camera check is Dec 4 th not Nov...

•5 years ago

Sleep & health: now we know how sleep helps the brain

It's been known for a long time than sleep is needed for good health including the brain. This article goes one step further in explaining how sleep can help...

It's been known for a long time than sleep is needed for good health including t...

•5 years ago

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