Post 562 Give yourself a goal 8 Nov ... - My MSAA Community

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Post 562 Give yourself a goal 8 Nov 2019

RoyceNewton profile image
8 Replies

No, nothing impossible like me winning the Powerball, lottery. Or "YOU" finding that miracle cure for your Relapsing-Remitting ms (RRms). Unless that is what "YOU" do. I do think that "YOU" may not be able to cure RRms but live very well within its constraints is entirely possible. I am sure that she who must be obeyed does, and I most certainly do. It takes some adjustment, letting go of some dreams, but most certainly "YOU" can live within RRms's limits.

With this illness, things change. With life, things change. We face change everywhere we turn. I think that quite possibly we live in a continually changing environment ( think about that for a minute and think BIG). With that being the case, why would our RRms not change? It is going to change, expect it, whether it, allow it to happen. Do not fear it, adjust to it. Like somebody in a maze, they do not give up when they hit a wall. They take a step back, think for a moment and go a different way. If "YOU" have given yourself a flexible goal if one roadblock faces "YOU". It is possible to stop take a breath and find another way to get where "YOU" want to be. Even change directions entirely and go somewhere else. Be like bamboo, bend in the storms of RRms but when they ease bring yourself back up to standing and keep moving. It may take a little time and some serious effort, but without a doubt, it can be done.

I understand your fear and apprehension, RRms is a big disease. There is nothing that we can do to make it go away, we have to adjust ourselves to it, and keep adjusting. For RRms, most certainly will adjust to us and our actions. Give yourself a long term way out there goal and begin moving towards it. Wear your protective underwear, take your Disese Modifying Therapy (DMT) eat right, drink less and stop smoking. Find your goal and work towards it, always. RRms is not a fluffy clouds type of life, RRms is serious. Is it time that "YOU" wiped away those tears for a few minutes and started moving forward in your RRms life. Relax, "YOU" can cry again later, "YOU" very well might. Now is the time though to pull yourself together, stand straight with your head up and shoulders back for there is work to be done. "YOU" have many years ahead of "YOU" to shed a tear and that is okay, we are only human and there is a lot ofRRms moments ahead of us.

I would recommend reading some stories about overcoming adversity. Have "YOU" ever heard of the hiker who got trapped in a gully in a Utah desert. He had to cut his arm off with a penknife to free himself or die. I am not suggesting we are like that, but "YOU" need to start being willing to do what has to be done to live a good life "WITH RRms", not just sit in the cold dark corner crying wailing why me? RRms is the life we have to live right now. Perhaps next time it will be easier. Perhaps there is no next time, I do not know. What I do know is that "YOU" and I must make every effort to make today, one in which we are happy to have lived.

Royce (the ms writer)

I can, and I will be strong why do you not join us?

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RoyceNewton profile image
RoyceNewton
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8 Replies
carolek572 profile image
carolek572CommunityAmbassador

Your last sentence, after your salutation, I would rather join 'us' than 'ms', just saying. I can accept that I have 'ms'. Then, and only then can you move forward and do what it takes to be the best self that you can be. :-D

RoyceNewton profile image
RoyceNewton in reply tocarolek572

adjusted, I think I was thinking of something else

carolek572 profile image
carolek572CommunityAmbassador in reply toRoyceNewton

There is still time to adjust, Royce :-D

carolek572 profile image
carolek572CommunityAmbassador in reply toRoyceNewton

Perfect :-D

Midgey_Midge06 profile image
Midgey_Midge06

Oh u have no idea how much i needed to hear just what u said. It was perfect. Thank u so much for being the MS writer! 😘💜💜🤗

RoyceNewton profile image
RoyceNewton in reply toMidgey_Midge06

my pleasure glad I could help somebody

twooldcrows profile image
twooldcrows

so well said ....just enjoy your writings for they are the way i feel and yes we will have those down times but it just takes us to pick up and keep going ...i have had this since i am not sure but diagnosed in 2004 and i have had some ups and downs but i will not let it stop me ....

RoyceNewton profile image
RoyceNewton

the story of life ups and downs everywhere

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