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All posts for November 2019

Experimental migraine drug shows promise - Ubrogepant

This small article was in our local news yesterday. There was no other links or info: An experimental drug is showing promise in the treatment of migraines....

This small article was in our local news yesterday. There was no other links or ...

bxrmom

•5 years ago

4 Replies

End dmt prior to infusion

How many days prior to your infusion of ocrevus or Rituxan did you stop taking your dmt ?

How many days prior to your infusion of ocrevus or Rituxan did you stop taking y...

Wnmaddox123

•5 years ago

17 Replies

just unfo that is new to me

I have been using healthwell foundation.org to pay my co pay for my ocrevus and called them because it expires in december and I have an ocrevus in january so...

I have been using healthwell foundation.org to pay my co pay for my ocrevus and ...

pamgarner

•5 years ago

11 Replies

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Post 566 Yesterday I said.... 19 Nov2019

Okay, it is a juggling act and some of us have only one hand to juggle with. I am metaphorically speaking, not literally. We have Relapsing-Remitting ms...

Okay, it is a juggling act and some of us have only one hand to juggle with. I a...

RoyceNewton

•5 years ago

6 Replies

Hair Loss

I've had 2 half doses and my hair is coming out in wads. My scalp itches horribly. I went to the Dermatologist to see if there was a skin problem -- or even...

I've had 2 half doses and my hair is coming out in wads. My scalp itches horribl...

bshiggins

•5 years ago

8 Replies

Bloodwork update & MRI scheduled

I went in to have my bloodwork done today and the lady that checked me in last time even had a note on her computer about what was going on when I came back...

I went in to have my bloodwork done today and the lady that checked me in last t...

bxrmom

•5 years ago

8 Replies

Post 565 Push yourself 18 Nov 2019

Seriously push yourself, harder. Harder than that. Do "YOU" realize what "YOU" just did. Exceeded your limits, drove yourself to a new boundary. Did it...

Seriously push yourself, harder. Harder than that. Do "YOU" realize what "YO...

RoyceNewton

•5 years ago

9 Replies

Ocrevus denial

My insurance just approved Ocrevus. I have been on it for 2 years. Today I got a call from the doctors office saying that the insurance has now denied Ocrevus....

My insurance just approved Ocrevus. I have been on it for 2 years. Today I got a...

Wizardsmom

•5 years ago

21 Replies

Thank You!

Hey Everyone!! Thank you so much for all of the great advice and heart felt genuineness! I am so afraid of being on meds and now I am also afraid of being off...

Hey Everyone!! Thank you so much for all of the great advice and heart felt genu...

Jozzi

•5 years ago

9 Replies

Let's review! 😊

Hi and Welcome to all of our new and wonderful friends! We love having you here at My MSAA Community! And it's true, the more you chat, the more everyone chats...

Hi and Welcome to all of our new and wonderful friends! We love having you here ...

Jesmcd2

CommunityAmbassador•5 years ago

1 Reply

New eye pain

I have woke up with eye pain for 3 days now. I am also fighting a cold. Pain goes away throughout the day but i wake like someone punched me in the eye. Only...

I have woke up with eye pain for 3 days now. I am also fighting a cold. Pain go...

jkdavid99

•5 years ago

10 Replies

I’m I in the clear

Hi I started about last October get tingling and numbness down my whole right side. My lips and tongue were also having bouts of numbness like I had been to...

Hi I started about last October get tingling and numbness down my whole right si...

Hidden

•5 years ago

23 Replies

New Neuro update

Saw my new Neuro Monday. He is a nice guy and very knowledgable. He didn't like that my last neuro had me taking 10mg of Baclofen every 2 hours, he told me to...

Saw my new Neuro Monday. He is a nice guy and very knowledgable. He didn't like ...

bxrmom

•5 years ago

16 Replies

UdeM researchers find molecule to block multiple sclerosis progression

A team of researchers at the Université de Montréal has identified a potential drug target that could safely slow down the progression of multiple sclerosis, a...

A team of researchers at the Université de Montréal has identified a potential d...

bxrmom

•5 years ago

5 Replies

If you Need a Laugh...

Click here! 🤣 🤗💕🌠

Jesmcd2

CommunityAmbassador•5 years ago

11 Replies

Laugh!

What's your laugh today? 🤣 🤗💕 J🌠

Jesmcd2

CommunityAmbassador•5 years ago

10 Replies

Unnumbered post Do not be scared 16 Nov 2019

Do not be scared, cry I highly recommend it. This is a lifelong illness but I know that "YOU" can live with it, and if "YOU" are smart live well. There is...

Do not be scared, cry I highly recommend it. This is a lifelong illness but I ...

RoyceNewton

•5 years ago

2 Replies

New Meds Pleeeeeze!

Hello All!! First I would like to say I am so thankful for this forum and all of you, ppl who don’t misconstrue the smile on my face and yet know what I am...

Hello All!! First I would like to say I am so thankful for this forum and all of...

Jozzi

•5 years ago

22 Replies

Does anyone body feel worst off taking your MS medication vs. before you even started?

Not to say its the meds but you wish things could be as steady as your MRI reflects in terms of your MS! I don't get how I am literally in pain everyday! My...

Not to say its the meds but you wish things could be as steady as your MRI refle...

Diva1976

•5 years ago

20 Replies

Update Results of JCV Test - Positive

Well it’s Friday and I have been on pins and needles all week. The waiting game is horrible and when it comes to my health I’m NOT very patient. After making...

Well it’s Friday and I have been on pins and needles all week. The waiting game ...

KrittyKat60

•5 years ago

27 Replies

Almost got it😐😶😑

He inclined, to recline, shakey legs and a quaking, trembling spine. Elementary task for the median mind. A thought for a penny but two bits clung inside....

He inclined, to recline, shakey legs and a quaking, trembling spine. Elementary ...

Fattius

•5 years ago

5 Replies

unnumbered post You are much more capable than you think 14 Nov 2019

The sentence says, "YOU" are much more capable than "YOU" think. Take that inside "YOU" let it roll around and stick to every call in your body. Let it...

The sentence says, "YOU" are much more capable than "YOU" think. Take that ins...

RoyceNewton

•5 years ago

Be the first to reply

My Frustrating VF

VF? My Vibrating Flipper, formerly known as my right hand. My VF was how my MS woke up from its nap. MS stretched and tapped me on the shoulder (or in this...

VF? My Vibrating Flipper, formerly known as my right hand. My VF was how my MS ...

CrazyCatWom

•5 years ago

5 Replies

What it feels like to live with Neuro-Fatigue

Just sharing this article because it describes well the fatigue I felt before diagnosis. It's different than lack of sleep or physical exertion. My husband had...

Just sharing this article because it describes well the fatigue I felt before di...

anaishunter

•5 years ago

8 Replies

Hummingbird Happy Day

Hi-here’s a pic I took of a Red Throated Hummingbird. I have a liquid bird feeder that hangs in the backyard and is close to my bedroom window. Any time of...

Hi-here’s a pic I took of a Red Throated Hummingbird. I have a liquid bird feede...

nicoly3467

•5 years ago

4 Replies

Post 564 In case you do not get it yet 13 Nov 2019

Not everything is obvious to everybody the first time. We "ALL" have some form of ms and because we all do not get it, whatever it is, it needs to be...

Not everything is obvious to everybody the first time. We "ALL" have some form...

RoyceNewton

•5 years ago

2 Replies

Perplexed!?!?!?

Read pain posts a min ago. If " a lot " of the things I have looked into, with all of the "go get em'" speeches keep u in a comfortable bubble of complacency,...

Read pain posts a min ago. If " a lot " of the things I have looked into, with a...

Fattius

•5 years ago

9 Replies

Stay warm everyone!

With this arctic blast, it is pretty cold here in MI today (19 feels like 9 right now). Yesterday, we received 8" of HEAVY snow with rain. I shoveled the first...

With this arctic blast, it is pretty cold here in MI today (19 feels like 9 righ...

bxrmom

•5 years ago

5 Replies

Symposium this Saturday, Nov. 16

There are links on that page for more information and to register for this free webinar:...

There are links on that page for more information and to register for this free ...

greaterexp

•5 years ago

5 Replies

BTW..

Whoever ordered this deep freeze BS the 2nd week of November? Is fired! Just saying! The high today here is 9* someone reach out my door and get the...

Whoever ordered this deep freeze BS the 2nd week of November? Is fired! Just say...

Jesmcd2

CommunityAmbassador•5 years ago

40 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for November 2019

Experimental migraine drug shows promise - Ubrogepant

End dmt prior to infusion

just unfo that is new to me

Post 566 Yesterday I said.... 19 Nov2019

Hair Loss

Bloodwork update & MRI scheduled

Post 565 Push yourself 18 Nov 2019

Ocrevus denial

Thank You!

Let's review! 😊

New eye pain

I’m I in the clear

New Neuro update

UdeM researchers find molecule to block multiple sclerosis progression

If you Need a Laugh...

Laugh!

Unnumbered post Do not be scared 16 Nov 2019

New Meds Pleeeeeze!

Does anyone body feel worst off taking your MS medication vs. before you even started?

Update Results of JCV Test - Positive

Almost got it😐😶😑

unnumbered post You are much more capable than you think 14 Nov 2019

My Frustrating VF

What it feels like to live with Neuro-Fatigue

Hummingbird Happy Day

Post 564 In case you do not get it yet 13 Nov 2019

Perplexed!?!?!?

Stay warm everyone!

Symposium this Saturday, Nov. 16

BTW..

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