heartbroken

[ande922]

first post and probably the last. my wife sadly past away from M S A june 6 2024. first diagnosed end of 2021 initially parkinsons but after rapid decline changed to M S A. she was plagued with pressure sores and after a spell in hospital lost all her muscle mass, head drop never realy recovered but coping then suddenly within a week lost her ability to swallow then it was just staying with her and watching her fade away. the most awful time of my life not being able to do anything for her . so helpless and now heartbroken. i still cannot comprehend where this came from so out of the blue. i miss her everyday

[Jolanes]

So sorry for what you have been through and are going through. It’s so unfair.

My sister passed away in February and the only comfort I have is that she is at peace now xx

[ande922 in reply to Jolanes]

thank you

[AMBD]

I'm so sorry. It's an awful journey ❤️

[ande922 in reply to AMBD]

thankyou

[Yanno]

Hello, I know so well what you are going through. My Jackie passed away in April and I miss her every day. Hold on to your memories and know that you did everything you could for your beloved wife. Take care, Ian

[ande922 in reply to Yanno]

thankyou

[Gallowglass]

🥲🙏🏼💕

[ande922 in reply to Gallowglass]

thankyou

[Niknak74]

It's a truly awful journey for all involved and I'm so sorry you're going through this. My husband passed away in September 2021 after 7 years living with MSA and although I miss him terribly, it does get easier. My comfort like Jolanes post is he's at peace and not having to live with such a horrendous condition. Hold onto the good memories and that your wife had you by her side throughout it all.

Look after yourself as best you can and don't lose hope for your own life xx

[Monkeyfeet1]

m my sincerest condolences xx

[Derkie54]

Sorry to hear that news.

Our thoughts are with you at this sad time.

Take care

Derek

[Fatwallet]

so sorry to hear this sad news. Take care x

[Lassie1331]

So sorry your loss and that your wife had such a rapid decline. My husband was diagnosed initially with atrophy of the cerebellum but a year later confirmed he has MSA c. His decline is slow but steady. I have to deal with him saying every day “ I wish I could just go”. We know what’s ahead of us and dread every day which stops us living any kind of life. I hope in time you can take some comfort from her being at peace.

[Whitefeather1]

I'm so sorry for your loss and completely understand how you're feeling. Take one day at a time and allow yourself to heal x