BBC radio Nottingham interview

[5456partner]

Hi, just listened to this interview with MSA sufferer, Paul Ord and his MSA consultant at St Benedict's Hospice Dr Mark Lee. The MSA Trust has a link to it on their Facebook page. We found this a really honest and helpful interview and didn't want others to miss it. (My husband suffers from MSA).

[Janeyl]

Here’s the link for anyone not on FB:

bbc.co.uk/sounds/play/p0j2jxwt

[5456partner in reply to Janeyl]

Thanks Janeyl, didn't quite know how to do that!!

[diyducky]

My husband has MSA and yesterday he was in tears listening to this interview.

I have just had a listen and found it interesting and informative but a little scary as I had no idea about the "sudden death" element of MSA.

Thank you both for putting this information on.

[5456partner in reply to diyducky]

We were also scared about the 'sudden death' element and asked my husband's consultant about it when we saw him today. He reassured us that that is something pretty rare and said that more usually people who suffer from MSA are more likely to decline over a period and often suffer from chest infections from which eventually they are unable to recover.