Posts - MPN Voice | HealthUnlocked

MPN Voice

10,588 members • 14,633 posts

All posts for June 2024

Chronic Venous Insufficiency

Hi all Have regularly read your posts which are extremely helpful and have posted occasionally. I have recently been diagnosed with CVI, has anyone else had...

Hi all Have regularly read your posts which are extremely helpful and have post...

•19 days ago

Getting admitted to hospital, why is it so bloody difficult in Wales?

My now long suffering wife, had another blood test this morning, and told to go home afterwards and await the results. The results were Hgb 79 platelets 4 yes...

My now long suffering wife, had another blood test this morning, and told to go ...

•20 days ago

Breathing and standing!

Hello. A disparate couple of questions for you with longer term experience of PV please? I'm having a slightly uncomfortable breathing symptom. Have had it...

Hello. A disparate couple of questions for you with longer term experience of PV...

•20 days ago

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Advice please from those post SCT about dentistry

Hi everyone, thank you for reading. I'm now 2.5 years post transplant for myelofibrosis. My treatment was very intense which had left me with alot of long...

Hi everyone, thank you for reading. I'm now 2.5 years post transplant for myel...

•20 days ago

ET Jak2 . Low iron

I’m reaching out to the knowledgeable members of this incredible community from whom I have learned so much… to maybe give me some further insight…. I was...

I’m reaching out to the knowledgeable members of this incredible community from ...

•20 days ago

Jak2 V617F Positive

Good morning everyone! My name is Melis. I'm a 38-year-old female who found out I'm Jak 2 positive. I have an appointment with the hematologist on 06/11. Does...

Good morning everyone! My name is Melis. I'm a 38-year-old female who found out ...

•22 days ago

It pays to chat

Following my last post re shingles vaccine and that I had not had a face to face consultation since pre covid I have had a telephone consultation and I thought...

Following my last post re shingles vaccine and that I had not had a face to face...

•22 days ago

Blood in syringe

Hi all Just a quick question to those who self inject please. I've just given myself my peg shot, and when I removed the syringe, I noticed that there was...

Hi all Just a quick question to those who self inject please. I've just given...

•22 days ago

shingrix

I am nearly 79 and have been dx with ET since 2021 and on hydroxycarbamide and low dose aspirin. I got shingles in June 2022 and it was pretty awful for about...

I am nearly 79 and have been dx with ET since 2021 and on hydroxycarbamide and l...

•23 days ago

Operation

Well had my bowel resection 8 weeks ago my concerns about general anaesthetic because of ET and never had operation before was unfounded surgeon said I woke...

Well had my bowel resection 8 weeks ago my concerns about general anaesthetic b...

•23 days ago

MPN specialist Dr. Josef Prchal out of Salt Lake City Utah

I was wondering if anyone is seeing him? I am out of Las Vegas, and am currently loosing my hematologist/oncologist. He was not a specialist even though his...

I was wondering if anyone is seeing him? I am out of Las Vegas, and am currently...

•24 days ago

Eye Supplement Concern

Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and...

Eye doctor highly recommended taking supplement Preservision. I cleared with he...

•24 days ago

Parvovirus B19 with EY

hi my husband has ET and just got Parvovirus B19 I’m reading online that it is not good any one have any advice on this?

hi my husband has ET and just got Parvovirus B19 I’m reading online that it is n...

•24 days ago

Started Rux

Hello All, I am a 75 year old guy, diagnosed with MF two years ago, and been on 1 Hydrea 500/ day since. In May my dr convinced me to switch to Rux. We are...

Hello All, I am a 75 year old guy, diagnosed with MF two years ago, and been on ...

•24 days ago

PV - need medical codes for allele burden test

I have polycythemia vera and have been on hydroxyurea since November 2023. My doctor has finally agreed to prescribe Besemri but, I have asked him to first...

I have polycythemia vera and have been on hydroxyurea since November 2023. My d...

•25 days ago

Blood Parameters effected by dieting?

I just finished a diet of 4 weeks where I lost just over 10 pounds. So 3 or 4 days after the diet I had blood work done - These are the changes in 4 weeks...

I just finished a diet of 4 weeks where I lost just over 10 pounds. So 3 or ...

•26 days ago

E.T. Symptoms

I’m JAK2 positive and have been diagnosed with E.T. a few weeks ago. I’m on hydroxycarbamide plus aspirin and am 74 and, apart from this, am reasonably fit....

I’m JAK2 positive and have been diagnosed with E.T. a few weeks ago. I’m on hydr...

•26 days ago

blood morphology

Does everyone have morphology when CBC is done . I have blood done every 2 months and see hemo every 4 . The morphology was strange … showing anthracites,...

Does everyone have morphology when CBC is done . I have blood done every 2 mont...

•26 days ago

ET triple negative

Hi. Diagnosed at 16 and I'm now 45. I've had various medications throughout, some ok, some not so great. They've either made me miserable or become tolerated....

Hi. Diagnosed at 16 and I'm now 45. I've had various medications throughout, so...

•26 days ago

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