Support group near us

[PrePMFpartner]

Hi - My partner was diagnosed 3 years ago with ET and possibly pre-PMF and I wondered whether anyone knows of an MPN support group Norfolk or Cambridgeshire way?

We went to the UCH Heamatology support group in London at the start; but no-one else had an MPN. Luckily we found this forum, which has been so helpful, but it would be good to meet other people with the same thing.

Thanks, Deb

[Skye333]

Hi Deb, I’ve been saying for ages that I’d like to meet up with other MeFer’s. I think the problem is that it’s the MPNs are very rare. I have been thinking that the best place to start would be the clinics but as we are still not attending them we would have to wait. Janet

[PrePMFpartner in reply to Skye333]

Hi Janet, thank-you for replying. Yes I hadnt thought about that and I guess its about the worst time to try and do this. Maybe when things are safer we can re-think. Stay safe, Deb

[Rachelthepotter]

Hi Deb: lots of MPN research going on at Addenbrooks : worth contacting them ( if they are contactable) to see whats there.

[PrePMFpartner]

Thanks Rachel, will have a look at that.