Posts - MPN Voice | HealthUnlocked

MPN Voice

10,784 members • 14,980 posts

All posts for February 2018

PV Pain

Hello, I just wondered if anyone else had problems trying to sleep with p.v. pain, I have been on two different types of drugs but unfortunately they are not...

Hello, I just wondered if anyone else had problems trying to sleep with p.v. pai...

•7 years ago

sunblocks for hydroxycarbamide users

hi everyone, i am shortly to start hydroxycarbamide and was wondering what level of sunblock i need to use.and if there are any particularly good face creams/...

hi everyone, i am shortly to start hydroxycarbamide and was wondering what level...

•7 years ago

Pensive and emotional (MF)

Hi Everyone Happy Wednesday! I'm just out for a day to Brimingham. Looking at the landscape as I travel North.. I wanted to share a few feelings and maybe to...

Hi Everyone Happy Wednesday! I'm just out for a day to Brimingham. Looking at th...

•7 years ago

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Starting treatments

Hi lovely MPN folks! I had a call from my haem nurse today to say they are starting me on aspirin and want me to get a couple of venesections over the next few...

Hi lovely MPN folks! I had a call from my haem nurse today to say they are start...

•7 years ago

New here- aching legs

Diagnosed with ET last year and started Hydroxycarbamide in November. Still trying to find right level so having blood tests every two weeks. I am experiencing...

Diagnosed with ET last year and started Hydroxycarbamide in November. Still tryi...

•7 years ago

My ruxulitnib trial over 3 years has been very successful .im very happy my blood results are looking good .

My specialist says I can lengthen my visits to 12 weeks from now on .. I may be asked to try a new drug .trial for 2018 .to add to my existing drug , My...

My specialist says I can lengthen my visits to 12 weeks from now on .. I may be ...

•7 years ago

Bad effects from hydroxycarbamide

Since starting HU almost three years ago, I have been getting order progressively worse bleeding under the skin particularly on my hands. It has now also...

Since starting HU almost three years ago, I have been getting order progressivel...

•7 years ago

PV joint pain

Please help me understand why I have excruciating knee and hip pain constantly. My onc doesn't understand it. I'm on Pegasys 90mcg weekly. Truly, the pain is...

Please help me understand why I have excruciating knee and hip pain constantly. ...

•7 years ago

Skull change shape ?

I'm not sure if I'm going loopy or whatever,but I was washing my hair today and I seem to have developed a tender lump on the crown of my skull. It feels as if...

I'm not sure if I'm going loopy or whatever,but I was washing my hair today and ...

•7 years ago

AngiP

Hi Everyone, I'm new here. I am 75 years old, and was diagnosed a few months ago. i don't know anyone with this condition and find it very daunting. Would...

Hi Everyone, I'm new here. I am 75 years old, and was diagnosed a few months a...

•7 years ago

Just stopped fuming!

My normal haematologist was on call this week so a different one was on clinic when I went on Thursday. I said I was concerned about my counts Hgb 9.1, white...

My normal haematologist was on call this week so a different one was on clinic w...

•7 years ago

This made me smile!

Have a great weekend everybody!

Have a great weekend everybody!

Volunteer•7 years ago

Not a good consultation

Hi need some more advice please. Had my consult with my heamo this week, just didn’t go well, I ended up in tears, never done that before. I think the fact I...

Hi need some more advice please. Had my consult with my heamo this week, just di...

•7 years ago

Peginterferon in pregnancy?

Hi I’m very new to this group and very newly diagnosed with ET. I’m just wondering has anyone used peginterferon in pregnancy here and what was their...

Hi I’m very new to this group and very newly diagnosed with ET. I’m just wonder...

•7 years ago

PV Iron supplement

I had 2 appointments at my surgery today, one was knicker dept with the nurse (not relevant here) and the other following a B12 and iron blood test. I...

I had 2 appointments at my surgery today, one was knicker dept with the nurse (n...

•7 years ago

Understanding your condition

Hi everyone, I found this on powerfulpatients.org and, being relatively newly diagnosed myself, I thought it might be useful to other 'newbies' (and maybe a...

Hi everyone, I found this on powerfulpatients.org and, being relatively newly di...

•7 years ago

First dose of Interferon

Well, last night I had my first injection of Interferon Roferon A, which was interesting. I took it about 6pm and within an hour was very achey, which led to...

Well, last night I had my first injection of Interferon Roferon A, which was int...

•7 years ago

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