MPN Voice
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Understanding your condition

Hi everyone,

I found this on powerfulpatients.org and, being relatively newly diagnosed myself, I thought it might be useful to other 'newbies' (and maybe a few long-timers too!). It is mostly common sense, but somehow common sense doesn't seem to be that common when the panic sets in at diagnosis ;-) It's not specific to MPNs but it is entirely relevant.

powerfulpatients.org/2018/0...

John

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Thanks John,

As you say ‘common sense’ but sometimes we need reminding!

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Hi just like to say thank you for this site.

A.must read for every.one.

The key here. is take charge of your illness and help yourself well.

There are many parts to this process that we as a group can change and stepping up the power of support and sharing is one of them.

Being informed , gives us knowledge to address issues and concerns.

Take care .Annemarie.

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