I found this on powerfulpatients.org and, being relatively newly diagnosed myself, I thought it might be useful to other 'newbies' (and maybe a few long-timers too!). It is mostly common sense, but somehow common sense doesn't seem to be that common when the panic sets in at diagnosis It's not specific to MPNs but it is entirely relevant.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
It's not specific to MPNs but it is entirely relevant.
What is your fatigue like and how does it effect your life ?
GP hasn’t recorded my condition 
Osteoarthritis; family condition!
Understanding a MAYBE ET diagnosis
Let's talk grass roots level !! It's time to make a big change in your life style .once diagnosed ,your whole world needs to re evaluate 
