Happy Wednesday! I'm just out for a day to Brimingham. Looking at the landscape as I travel North..
I wanted to share a few feelings and maybe to see how others maintain a positive outlook.
When I was first diagnosed with ET I went through the shock and made some adjustments to my outlook and goals but I got to a place where I felt ok about things. As many have said here, it is a bit like having other long term conditions like diabetes and I was in a happy rhythm.
Since I received the subsequent diagnosis of MF I have found it harder to let this settle. On the positive side I am focused on maintaining overall good health: exercise got to be fitter than I was 20 years ago; diet really good and I still allow the odd pastry/ glass if wine ; time with family is truly a gift every day and so I cherish it.
On the other hand I find that when I'm not busy, busy, busy... my mind turns to the worry beads... what if this gets worse? When will it get worse and in what way? how long do I really have? How can I prepare my son? When should I do that? How will my husband manage? So many questions and really I think I'm just torturing myself..
I'm thinking about counselling but I really don't know how I will find peace with this. I am just still very angry.
Sorry this is such a downer... How do you cope ? Have you found acceptance or do you just box it up and put it away? Really keen to understand what techniques you find helpful as I am up for anything... even if it is just a distraction !
Wishing you all a good day.