PV Pain: Hello, I just wondered if anyone else had... - MPN Voice

MPN Voice

10,775 members14,963 posts

PV Pain

ktd1955 profile image
6 Replies

Hello, I just wondered if anyone else had problems trying to sleep with p.v. pain, I have been on two different types of drugs but unfortunately they are not having much effect on the discomfort through the night. I manage fine during the day with only mild symptoms but the pain is getting worse. Seeing my haematologist next week but does anyone have any suggestions. Thank you

Written by
ktd1955 profile image
ktd1955
To view profiles and participate in discussions please or .
6 Replies
jane13 profile image
jane13

i have bone pain, prescribed solpadol from gp, paracetamol/codeine take 1/2 helps u sleep

ktd1955 profile image
ktd1955 in reply to jane13

Thank you Jane, I have tried just paracetamol but this wears off after a while so still waking up, it would appear to be just one of those things that goes with the condition.

jane13 profile image
jane13 in reply to ktd1955

agreed: I often take 1 tablet as I go to sleep then another if i wake up before say 0200 . I think lack of a good night's sleep night after night has a major effect on how I feel, but can't find anything better! I tried anti-inflammatories (brufen) and they work better as pain killers but give me bad acid reflux. No real solution.

Roger41 profile image
Roger41

So sorry to hear of your pain discomfort.

Some times its hard to find a good solution to fit you.

When my hand was playing up following a fracture last year I alternated with paracetamol and voicemail two hours apart.

Return to your team and ask for solutions.

Other over the counter solutions may benefit you.

Such as pain cold spray, tiger balm, eating well and drinking lots of fluid.

Tens machine and acupressure have helped me in the passed.

Roger41 profile image
Roger41

It should read cocodamol

ktd1955 profile image
ktd1955

Thank you Roger, I thought voicemail sounded a bit strange! I am back at the hospital tomorrow so will definitely mention some form of pain relief.

Not what you're looking for?

You may also like...

PV joint pain

Please help me understand why I have excruciating knee and hip pain constantly. My onc doesn't...

PV Bone Pain

Hi anyone with PV, I was diagnosed 2 years ago and have been on hydroxycarbomide, however the bone...

Chest pain with pv

Hi all Over the last two weeks I have developed chest pain accompanied by dizzy spells. I have gone...

Joint pain: Pv or arthritis?

I have recently had joint pain which has come on fairly rapidly in the last few months.It started...

How do you handle the pain associated with PV?

I have PV Jac2+. I suffered with painful joints for years before I was diagnosed but at 56 I feel...