Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for May 2017

Spotty face

Has anyone noticed red splotches on their faces. Mine are getting worse now it looks like I have measles. I have MF and I wondered if it's due to that! Janet...

Has anyone noticed red splotches on their faces. Mine are getting worse now it l...

•7 years ago

Replying to members blogs

I am having problems concerning replies to everyone in that I have no way of knowing if they have been received. Could someone guide me please?

I am having problems concerning replies to everyone in that I have no way of kno...

•7 years ago

Another side effect of HU ?

Morning friends , i have been having some sleepness issues , where im getting sensations in my legs ! hard to explain but i have to keep moving them and...

Morning friends , i have been having some sleepness issues , where im getting se...

•7 years ago

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Update on ophthalmology

Had ophthalmology appointment today as I'm getting flashing vision and migraines. Found out I've got the start of cataracts in my right eye. I'm only 48 yrs...

Had ophthalmology appointment today as I'm getting flashing vision and migraines...

•7 years ago

MPN Voice Fundraising Update April and May 2017

The Simply Health Great North Run, Sunday 10th September 2017 We are very pleased to announce that MPN Voice has secured 5 places in this iconic...

The Simply Health Great North Run, Sunday 10th September 2017 We are very plea...

Partner•7 years ago

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Vertigo

I have been on Hydroxy for a month, but have started getting dizzy spells even in bed lying down - has anybody else experienced this? My haematologist says...

I have been on Hydroxy for a month, but have started getting dizzy spells even i...

•7 years ago

Significance of Jak -ve or +ve

I have ET Jak -ve. I asked my haematologist about the significance of this, and she told me there was none, really. She said that all it did was showed doctors...

I have ET Jak -ve. I asked my haematologist about the significance of this, and ...

•7 years ago

Taken off asprin today

Hi everyone, I've been on asprin now for about 6weeks and ringing in my ears is terrible. Doctor said stop it for a week and see if ringing goes away. She also...

Hi everyone, I've been on asprin now for about 6weeks and ringing in my ears is ...

•7 years ago

Got my dental surgery appointment

I had my check up with my haemotologist last week and told her that my gums were receeding fast and furiously to the extent that I don't know what's keeping my...

I had my check up with my haemotologist last week and told her that my gums were...

•7 years ago

Fatigue & Depression (and more fatigue?!)

I'm beginning to really think about the relationship between depression and fatigue and the extent to which one impacts on the other. It's never really...

I'm beginning to really think about the relationship between depression and fati...

•7 years ago

Hydroxy dosage

Hi all - I hope everyone is feeling as well as they can - At least Spring is here to help! I have PV and my platelet count started at 980, went down to 680...

Hi all - I hope everyone is feeling as well as they can - At least Spring is her...

•7 years ago

Fatigue

Hello everyone. Wanting to contact "the family".about fatigue I was amazed at how many of you suffer from it. There doesn't seem to be an answer and I'm so...

Hello everyone. Wanting to contact "the family".about fatigue I was amazed at h...

•7 years ago

Recently diagnosed with MF

I've came looking for support on the new me. I've slowly been telling my family about my diagnosis. It's been really hard. I still haven't talked to my mom...

I've came looking for support on the new me. I've slowly been telling my family...

•7 years ago

Dental Implants ET on HU

Just wondering if folks have had success with dental implants? I have ET/ Jak2+ on HU 3 x wk. Must your platelets be in normal range for them to do implants?...

Just wondering if folks have had success with dental implants? I have ET/ Jak2+ ...

•7 years ago

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