Taken off asprin today: Hi everyone, I've been on... - MPN Voice

MPN Voice

10,835 members15,132 posts

Taken off asprin today

Lainy1 profile image
10 Replies

Hi everyone,

I've been on asprin now for about 6weeks and ringing in my ears is terrible. Doctor said stop it for a week and see if ringing goes away. She also noted I have a very very red face, this is also new. She said I must be very sensitive to asprin. So what do I do now with no asprin and platelets of 1124.

You are told you have ET and it's manageabl with asprin but then they take you off of it. So how is it managed now ? Hope ringing goes away now.

Best wishes my MPN buddies 🤗

Written by
Lainy1 profile image
Lainy1
To view profiles and participate in discussions please or .
Read more about...
10 Replies
mhos61 profile image
mhos61

Hi lainy1, has nothing been suggested in place of aspirin such as clopidogrel? If not ask is it suitable as an alternative.

Take Care

Mary x

Hi Lainy

I have PV and also have high platelets . I am on clopidegrol as I'm also allergic to aspirin . Definitely worth discussing it with your haematologist.

Kind regards

Dianne

Vicki_02 profile image
Vicki_02

I stopped taking aspirin about 10 months ago as it didn't agree with me either. My platelets are sitting around the 1200 mark and I am CalR so my haem is happy for me to not take anything and just keep her in the loop if I start to experience any symptoms. Obviously speak to your specialist but if they're happy then you shouldn't have anything to worry about.

V

Bridie123 profile image
Bridie123

Hi laing, I was on asprin but came off it almost immediately because of stomach pains. I am on clopidogrel now and have ringing in my ears and a red face! Maybe you might think of it as an advantage because people will constantly being saying, oh well you look well 😲 Keep smiling, Carole

Lainy1 profile image
Lainy1 in reply toBridie123

Hi carole,

Knowing my luck they will just think I am a hard drinker. It's sunny in Scotland today for a change so I've got factor 50 on my already red face. 👺

Best wishes lainy

LinaZW profile image
LinaZW

As others have said, clopidogrel is an alternative to aspirin. As an asthmatic I can't take aspirin so I was never offered it and have been on clopidogrel since my diagnosis of ET in January 2017. Speak to your haematologist. Good luck. Lina

Lainy1 profile image
Lainy1

Thanks everyone.

Will wait the week and see if ringing goes away, but I'm not hopeful as doc mentioned asprin might have done irreversible damage.

Got ophthalmologist appointment today for flashing vision/headaches. Expecting to be told it's all down to having ET.

Feeling fed up today. Sorry for being a Debbie downer

Best wishes lainy 🤗

linds profile image
linds in reply toLainy1

I sometimes get ringing in the ears but not a constant. Had my ears checked and nothing untoward but I also get flashing lights altered vision headaches. Have now decided that it's all part of the condition and try and cope with them by wearing very dark glasses in altered light such as sunshine or grey skies. Seems to be helping. I have had MF for nearly three years. PV before that. I do hope your ringing gets better. I do take aspirin by the way.

Best wishes and much sympathy.

Linda

Cecilie profile image
Cecilie

Hi Lainy,

I've had flashing vision type migraines for years but since taking interferon and getting my platelets back to normal they have completely disappeared. Hope the ringing in your ears goes away soon.

Kind regards

Cecilie

ChrisAnnSen profile image
ChrisAnnSen

I chatted to my Haematologist today and mentioned the Wooshing sound in my ears (we agreed that it was a technical term) and I asked whether it was anything to do with taking Aspirin. She suggested reducing it from 7 times a week to 3 times a week to see whether it made any difference. otherwise we could try clopidogrel.

I think I've read somewhere that it is the sound of your blood passing beside whatever it is in the ears which registers noise and I assumed that as we have thick blood this could be expected. However, not everyone gets it so that theory may be incorrect.

That said, I don't find the noise too irritating and often don't notice it during the day unless I'm somewhere quiet or having a bit of a panic. I do notice it at night but not enough to affect my sleep (my intake of water does that without any help!).

Not what you're looking for?

You may also like...

Asprin

Hi my MPN friends, Has anyone read an article in the Daily Mail today regarding, Asprin heart...
Superwoman profile image

Asprin?

Hi everyone. I’m a 45yr old female that was diagnosed with ET CALR Dec 19. At the time of...
CK79 profile image

Asprin

Morning my friends , just interested to know , what time of day do you all take your asprin? up...

Being taken off shielding list?

Just watched the 1st August video. Very informative, thank you. Just wondering what others think...
Penny-10 profile image

jak2 with ET

Saw my heamatolgist yesterday , who confirmed for sure which mpd i have at the moment she still...

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.