FND Seizures : SEIZURES Hi, how does... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,582 members2,909 posts

FND Seizures

Sonja8690 profile image
9 Replies

SEIZURES

Hi, how does anyone cope with FND seizures?

My friend was dx with FND and has multiple seizures a day. Hospital and doctors say they can do nothing as it’s all anxiety related and CBT would be the only treatment Avenue to explore. She has no life now, is terrified, struggling and has an autistic young dependant who is under 10 (albeit he is in boarding school during the week). Any advice to cope or eradicate/reduce the seizures?

Written by
Sonja8690 profile image
Sonja8690
To view profiles and participate in discussions please or .
9 Replies
Jofisher profile image
Jofisher

Ask to see an FND specialist and speak to the epilepsy society helpline and check out their website as they have information on thereabout non epileptic seizures which maybe very helpful to her.

Sonja8690 profile image
Sonja8690 in reply to Jofisher

Thanks for your reply

fredsmummy profile image
fredsmummy

Hi Sonja, when I was first diagnosed with, it was the same for me and interestingly, I have an autistic son under 10 also! They were back to back and also i had tics and needed physio plus pain management.

It eventually resolved itself and they do seem to come in ‘flares’ i really hope it gets better for her also.

The more stressed you are, the worse it is which is frustrating because it’s a circle!

Now I only have one now and again and manage well using medication, cbt, no longer need physio but do just try to exercise myself.

If your friend needs any advice I’m happy to give my details.

Best of luck,

Zoe

Sonja8690 profile image
Sonja8690 in reply to fredsmummy

Thank you so very much x

MamieG profile image
MamieG

I get these seizures. I’ve learned that bright and flashing lights as well as sudden noises trigger them. I wear a baseball cap, sunglasses, and ear pods when going out.

Learning the early warning feeling can help.

I also started taking CBD at night to help with sleep. Rest is important.

Grow123 profile image
Grow123

I am taking a 12 week long course on FND. it’s all online and it’s super helpful for reducing symptoms. Find out more at FNDcourage. Find community that understands FND. If the doctors are dismissive, find someone else

Lorinda1 profile image
Lorinda1 in reply to Grow123

I’m in the same course! I’m learning so much from it.

jltwv77 profile image
jltwv77

My daughter has had some success with medical cannabis for the seizures. CBT did nothing to help her. If it's an option where you are, I'd recommend it.

Grow123 profile image
Grow123 in reply to jltwv77

I have also found cannabis to be helpful.

You may also like...

FND, POTS and non-epileptic seizures

with FND 18 months ago, triggered by a really nasty bout of vertigo, and the FND diagnosis has...

Do people take anti-seizure medication for FND seizures?

I am curious if people take anti-seizure meds for their FND seizures since they aren’t often...

How can I deal with family and my seizures from FND?

I live with my parents. And they struggle to help with my seizures.'duck walk' and of course my...

FND 😢

learning how to cope with this the longer I have it but I’m just wondering if anyone else has...

FND

My son has recently been diagnosed with FND. He is not coming to terms with his diagnoses and tried...