Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,180 members • 52,780 posts

All posts for July 2024

Back home & overthinking

After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my...

After 12 days in hospital I am back home. I now have to wear morphine patches, (...

Faylen34

•1 month ago

3 Replies

new here !!

hi guys I’m new here Im 18 and just recently been diagnosed with endometriosis after 8 years of suffering and being turned away , I’ve been in and out of...

hi guys I’m new here Im 18 and just recently been diagnosed with endometriosis a...

Kayleigh1x

•1 month ago

13 Replies

Most recent laparoscopy came back negative, feel so invalidated and down, please help

Hello all, I'm quite late to the party but after my most recent laparoscopy yesterday, I feel very deflated and invalidated. I'm sorry for the long post but...

Hello all, I'm quite late to the party but after my most recent laparoscopy yest...

rach3110

•1 month ago

8 Replies

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Lap booked - should I have the mirena coil?

Hi everyone, I've got my first lap booked for end of August and they say they can also put in the mirena coil during this. I'd love to hear people's...

Hi everyone, I've got my first lap booked for end of August and they say they ca...

GlumDumpling

•1 month ago

5 Replies

Hemorrhage bleeding

Please help I'm in so much pain is this normal when I stand up blood flows out of me over the pad I'm losing alot of blood is this normal it seems to be every...

Please help I'm in so much pain is this normal when I stand up blood flows out o...

Lynnsashalily

•1 month ago

6 Replies

advice for adenomyosis

Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I...

Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 20...

cantdeal

•1 month ago

6 Replies

Zoledex and menopause

Does anyone still experience flare ups and what menopause symptoms.Im 4 injections now and had a rough 2 months but kept till the 3rd and had a good month....

Does anyone still experience flare ups and what menopause symptoms.Im 4 injectio...

Chartolfrey

•1 month ago

8 Replies

can someone advice me on pros trap please

hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my ovaries … I am 31 and until then have been offered prostrap.....

hi there I have been told to go on oristrao until I have my hysterectomy but the...

Sara0102

•1 month ago

10 Replies

MRI - buscapan and contrast dye

Hey guys, I have an MRI this week where I will have a cannula for both buscapan and contrast dye. Anyone who has had these were there any side effects after?...

Hey guys, I have an MRI this week where I will have a cannula for both buscapa...

Oneday_

•1 month ago

7 Replies

Abdominal wall endometriosis help

Suspected endometriosis in several areas, including my bowel, abominal wall, pocket of douglas, was supposed to have a diagnostic laparascopy but it was...

Suspected endometriosis in several areas, including my bowel, abominal wall, poc...

ceilidht

•1 month ago

2 Replies

I've been told I am 'too young' for surgery/diagnosis.

Hi girls, I've got 'suspected endometriosis' and would like to clarify some things. I've always had severely painful, heavy, and irregular periods but in the...

Hi girls, I've got 'suspected endometriosis' and would like to clarify some thin...

jasminep

•1 month ago

7 Replies

Just here for a rant about no diagnosis...

I'm just so frustrated, I have every possible symptom of Endometriosis as well as severe and widespread adhesions as found at my lap. How can it not be Endo?...

I'm just so frustrated, I have every possible symptom of Endometriosis as well a...

TallulaShark

•1 month ago

8 Replies

Advice/Help

Hi all, I'm just looking for some advice please? I'm due to go in for a Laparoscopy next week, I've had heart surgery in the past but, I'm really nervous...

Hi all, I'm just looking for some advice please? I'm due to go in for a Laparos...

Lollipoprose

•1 month ago

3 Replies

My recent Hysteroscopy

Hello I posted a short while ago about my upcoming hysteroscopy. Just to update I had it last week, and if anyone is feeling scared/anxious about having it...

Hello I posted a short while ago about my upcoming hysteroscopy. Just to updat...

pickles36

•1 month ago

12 Replies

A bit shell shocked by Hysterectomy recommendation

I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see...

I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. I...

Charlamine2023

•1 month ago

5 Replies

Symptoms worse after internal exam

Hey :) new here!I have had my endometriosis removed with surgery before (about 10 years ago) and I have been blessed to have 3 children since then. Anyway I...

Hey :) new here!I have had my endometriosis removed with surgery before (about 1...

Bumblebee11

•1 month ago

2 Replies

Collaboration on Endometriosis Care Pathway Project

Hi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in Healthcare and Design at Imperial College London. As an endometriosis patient...

Hi everyone, My name is Alaina Zubair, and I am currently pursuing an MSc in ...

Alainazubair

•1 month ago

5 Replies

Bowel endometriosis

Hi, I was told i have a small amount of endometriosis on my right side of abdomen. But recently i have been having diarrhoea for 2 months now and i was...

Hi, I was told i have a small amount of endometriosis on my right side of abdome...

Sky342

•1 month ago

2 Replies

Is motherhood possible with endo?

Hi all, I'm 30y/o and was diagnosed with endo last year after a lap op and have been in debilitating pain ever since. I have tried numerous pain relief and...

Hi all, I'm 30y/o and was diagnosed with endo last year after a lap op and hav...

SonnySunflower

•1 month ago

8 Replies

Breathlessness / Endo or hormones?

Hi all , it’s been 3 months now since having the mirena coil taken out I’m really struggling with breathlessness ( along side feeling extremely weak and...

Hi all , it’s been 3 months now since having the mirena coil taken out I’m rea...

Smiley2022

•1 month ago

10 Replies

Advice, symptoms. Just wondering if anyone else has experienced symptoms I'm having and advice after surgery.

Hiya, I'm new to this.. For years I have been suffering with pain. I got told by doctors everytime I have had scans I have a cyst on my left ovary, this cyst...

Hiya, I'm new to this.. For years I have been suffering with pain. I got told by...

Kekedoll

•1 month ago

2 Replies

Advice

Hello I was just wondering if anyone had any advice about the following... Has anyone noticed a change in brain fog and memory issues after having a...

Hello I was just wondering if anyone had any advice about the following... Has...

Mel06

•1 month ago

4 Replies

Endo ablation without my consent

Hi all! I had my first laparoscopy last month where they confirmed extensive endo was found in four different places, as well as adenomyosis, and as agreed...

Hi all! I had my first laparoscopy last month where they confirmed extensive en...

endo_the_stigma

•1 month ago

11 Replies

Recent diagnosis

I'm looking for a little light at the end of the tunnel from anyone with stage 4 endo, i was recently diagnosed back in April after 9 yeard - it diagnosed as...

I'm looking for a little light at the end of the tunnel from anyone with stage 4...

danmels

•1 month ago

3 Replies

Hormonal medication

Hi all, I’m 29 and had a laparoscopy last July, where they found endo in my womb, ovaries, rectum, pouch of Douglas and somewhere else I am forgetting! After...

Hi all, I’m 29 and had a laparoscopy last July, where they found endo in my womb...

RAna14

•1 month ago

1 Reply

surgery packing

hi guys I have my surgery on Friday very nervous mostly that I will forget to pack something! What should I pack in my over night bag? Any advice would be...

hi guys I have my surgery on Friday very nervous mostly that I will forget to pa...

Annabelannabel

•1 month ago

14 Replies

grieving my old life

Hi so today has been a hard morning already. And I just wanna speak to someone who is going through the same sort of situation as me? So I had surgery last...

Hi so today has been a hard morning already. And I just wanna speak to someone w...

Ginge2001

•1 month ago

1 Reply

Lasting pain after TV Ultrasound

Hi, has anyone experienced lasting pain after a TV Ultrasound? This is the third one I've had and I've never experienced pain. The scan itself was...

Hi, has anyone experienced lasting pain after a TV Ultrasound? This is the third...

TallulaShark

•1 month ago

1 Reply

Find a specialist and check out their data

Increasingly some surgeons due to narcissistic jealousy are claiming they are endo specialists with no extra training and arrogance. The endo team comprises...

Increasingly some surgeons due to narcissistic jealousy are claiming they are e...

Patienttruth

•1 month ago

4 Replies

Registered nurse job advice

Hello, is there anyone whose job is a registered nurse? I'm right at the end of my training, weeks from qualifying and yet I was sent home yesterday because I...

Hello, is there anyone whose job is a registered nurse? I'm right at the end of ...

WJSM

•1 month ago

4 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for July 2024

Back home & overthinking

new here !!

Most recent laparoscopy came back negative, feel so invalidated and down, please help

Lap booked - should I have the mirena coil?

Hemorrhage bleeding

advice for adenomyosis

Zoledex and menopause

can someone advice me on pros trap please

MRI - buscapan and contrast dye

Abdominal wall endometriosis help

I've been told I am 'too young' for surgery/diagnosis.

Just here for a rant about no diagnosis...

Advice/Help

My recent Hysteroscopy

A bit shell shocked by Hysterectomy recommendation

Symptoms worse after internal exam

Collaboration on Endometriosis Care Pathway Project

Bowel endometriosis

Is motherhood possible with endo?

Breathlessness / Endo or hormones?

Advice, symptoms. Just wondering if anyone else has experienced symptoms I'm having and advice after surgery.

Advice

Endo ablation without my consent

Recent diagnosis

Hormonal medication

surgery packing

grieving my old life

Lasting pain after TV Ultrasound

Find a specialist and check out their data

Registered nurse job advice

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