advice for adenomyosis: Hi all. I have... - Endometriosis UK

Endometriosis UK

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advice for adenomyosis

cantdeal profile image
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Hi all. I have endometriosis, diagnosed in 1999 and adenomyosis, diagnosed in 2018. I’m 44 years old now. I am under the care of a gynaecologist but maybe I should get another opinion..?

I suffer with severe pain during my period but then right after bleeding stops, I suffer with a burning pain for about 10-12 days. It’s totally debilitating. Painkillers hardly work during this stage. I get 3-4 days of the month where I’m pain free. My life works around managing my pain. As a result my overall physical and mental health feels like it’s deteriorating.

Dr has referred me to a 9 week pain management programme but I’m not feeling optimistic. Has anyone taken part in a similar programme? It’s all online with a gynae nurse, a physiotherapist and a psychologist.

is it normal to suffer like this? My periods have always been horrific but only 2 days of the month. Since coming in to my late 30s this pre-period and post-period pain started, it’s getting worse and I don’t know how to cope anymore 😭

It’s a long post, sorry. Thank you for reading.

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