Back home & overthinking

[Faylen34]

After 12 days in hospital I am back home. I now have to wear morphine patches, (butec), take oramorph, cyclizine and various other medication. I've started my prostap injections so I'm mindful of monitoring my mood. I take HRT gel and tablets. It's a drain.

So I decided not to to with the emergency surgery to drain my endometriomas. The reason is my specialist is on annual leave so I had no reassurance from her and I saw a few different consultants who all had different opinions but all kept saying my endo is severe and complex. Is it right thing to do etc. I'd still have to have my big complex surgery to remove rest of endo, my tubes and sort out my bowel with colorectal and bladder. I was fearful that it would have a negative impact on my bowel and I kept being reminded of how complex my issues are. I asked if there would be any risk on my bowel and had no reassurance on that as I was told it would depend on who was available on theatre.

So I'm now on pain management and due an emergency appointment with specialist in 4 weeks with hope my surgery can be bumped up.

I do wonder if I should of done the emergency but I know I need to focus on the path I chose and focus on getting to my multi surgeon specialist surgery done. But it does play on my mind did I do the right thing. I just didn't feel reassured.

As usual it's a waiting game. Better to be in my own home and on top of meds though as I found in hospital sometimes I'd be hours behind and withering in pain due to not having it on time.

Any support or shared experience is appreciated. Thank you.