grieving my old life

[Ginge2001]

Hi so today has been a hard morning already. And I just wanna speak to someone who is going through the same sort of situation as me? So I had surgery last April to remove a 9cm endo cyst from my left ovary. Then I was put on the mini pill as the gyni said this would stop the endo from growing. Fast forward to today and I have now lost my job, and no contraception has worked for me. This include the combined pill, mini pill, zoladex and now depo injection.

I had a mri about 3 months ago and my results show that my ovaries are stuck to the back of my uterus. My rectum is stuck to my uterus with a band in between. I have cysts on both ovaries and my tubes are all swollen. My gyni doesn’t know what else to do with me so she has referred me to a different gynaecologist to see what they can suggest. But of course it been 2 months nearly and I have heard nothing at all. I have give my self 3rd degree burns from my heat pad and no pain killer is helping. But of course doctors go don’t use the heat pad but I have told them loads that if I don’t use it I’m in unbareable pain

I just wanna be okay again and be able to go to festivals ect. Im only 22 and feel like im useless and nothing i can do will help. I also feel so bad for my girlfriend when i constantly have flare ups as it isn’t fair and not nice for her to see. I think I’m just grieving my old life and I would do anything to be able to live like a normal healthy 22 year old does

Just want someone to talk to 😞

[endo_the_stigma]

Hi lovely, I am so sorry you are going through all this so young💔 I know it feels so completely isolating and lonely but I promise you are not alone.

I had my first lap last month where they found widespread endo as well as adenomyosis and it feels like everyone thinks I'm cured but I still feel pretty unwell most of the time. It feels like you will never feel 'normal' again and its so sad and scary. I don't have much advice but I just wanted to say that you are not alone and I understand how hard it can be.

Sending lots of love your way💛💛