hello everyone
I was diagnosed last year at the age of 32( 20 years after onset of symptoms ). At this point I was diagnosed with stage 4 endo , with endometrioma and an obliterated pouch of Douglas and part of my bowel and ovary .The endometrioma was removed but no treatment or removal as I was told I would need to see a specialist and a colorectal surgeon .
My case has now gone to an MDT meeting and I believe I am going to soon be seen by the colorectal team as well as gynae , in the one year since surgery the endometrioma has also grown back . I have also been told I will need to have a colonoscopy and the results will again go back to MDT , which is worrying .
I’m really worried about having a colostomy bag as I know this is a risk due to the severity and rectal involvement.
has anyone else experienced severe endo in this area and received surgery without colostomy ?
People really don’t understand the literal meaning that endo isn’t just a bad period , it has the ability to destroy your entire body .
Siann x