Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

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All posts for January 2025

Adenomyosis and pararectal resection

Hi im 32 and I got my mri results this week, deep infiltration of endometriosis, adenomyosis, Tilted uterus . My letter says I'm getting a hysterectomy but...

Hi im 32 and I got my mri results this week, deep infiltration of endometriosis...

NorthenGirly92

•7 hours ago

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emotional wreck

I had my diagnostic surgery today and they’ve found endometriosis and managed to remove it all but now I’m an emotional wreck and literally can’t stop crying...

I had my diagnostic surgery today and they’ve found endometriosis and managed t...

Woopwoop1234

•9 hours ago

1 Reply

Progesterone-only pill

Does anyone have experience with the progesterone-only pill (specifically Medroxyprogesterone)? My doctor has prescribed it for temporary relief of endo pain...

Does anyone have experience with the progesterone-only pill (specifically Medrox...

Americanexpat

•15 hours ago

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Going round in circles!

Hello everyone! I have a feeling this might be a long one, but I really need to share my journey and hopefully connect with others who understand. I’m 24...

Hello everyone! I have a feeling this might be a long one, but I really need to...

rainbowtulips2000

•18 hours ago

2 Replies

PARTICIPANTS WANTED! Anonymous 10-15 minute questionnaire on your experience of endometriosis

The purpose of the study is to explore a number of aspects of your endometriosis experience, including the pain you experience, the amount of support...

The purpose of the study is to explore a number of aspects of your endometriosis...

EndoResearcher1

•18 hours ago

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Black blood/discharge 8 weeks post ovarian cyst removal

Hiya, I had an ovarian cyst removed 8 weeks ago, biopsy results benign, yippee! And an endometriotic cyst diagnosed. follow up bloods last week showed my...

Hiya, I had an ovarian cyst removed 8 weeks ago, biopsy results benign, yippee...

Fozzie83

•1 day ago

3 Replies

Everlasting Long and Painful Journey

I have been on an endless painful journey for sooooo long. Prior to 2017 I would suffer with heavy bleeding and painful periods that would last weeks. This was...

I have been on an endless painful journey for sooooo long. Prior to 2017 I would...

nicolaal26

•2 days ago

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How long is your wait for surgery?

Does anybody know what the expected wait is for severe endometriosis surgery around the country? or would like to respond how long you've been told you have...

Does anybody know what the expected wait is for severe endometriosis surgery aro...

LucyMarie24

•2 days ago

11 Replies

managing working and finances

hi all, I’m looking for some advice I work full time 36 hours for a charity in women’s health and need some help. With my endometriosis symptoms I can get...

hi all, I’m looking for some advice I work full time 36 hours for a charity in w...

victoriaat1611

•2 days ago

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Bloating after transvaginal ultrasound

I had a transvaginal scan on Sunday to check the placement of my coil. however it is now Wednesday and the procedure has made me bloated and just feel quite...

I had a transvaginal scan on Sunday to check the placement of my coil. however...

Cereallover1234

•3 days ago

4 Replies

pain relief

I have tried various pain relief and have found nothing works. Naproxen makes me feel sick and I have no relief from other tablets. The only relief I have is...

I have tried various pain relief and have found nothing works. Naproxen makes me...

Deggie

•3 days ago

11 Replies

Reaching Out for Support: Endometriosis Symptoms and Challenges

Hello Everyone, My name is Sammy, and I am 24 years old. I’m reaching out to this community because I’ve been struggling with symptoms that I believe might...

Hello Everyone, My name is Sammy, and I am 24 years old. I’m reaching out to ...

KiaSia

•3 days ago

1 Reply

Vitamin D and B12 deficiency anyone else

Hope everyone is well Sorry this is a bit of a odd one. I have recently been to the drs and have been told I have a vitamin D and B12 deficiency we are...

Hope everyone is well Sorry this is a bit of a odd one. I have recently been...

p1xcv123

•3 days ago

4 Replies

Progestogen-only pill

Has anyone tried this as a method of treatment? The thought of no periods is liberating, but I am concerned about possible long/short term side effects.

Has anyone tried this as a method of treatment? The thought of no periods is lib...

JojoToots

•4 days ago

9 Replies

Urgent wait list

I had my first laparoscopy in November where I was diagnosed with severe endometriosis and told I had endometriosis and my ovary was also stuck to my bowel....

I had my first laparoscopy in November where I was diagnosed with severe endomet...

MamaRed

•4 days ago

8 Replies

Are these endo symptoms?

The bleeding after sex, it’s not always but maybe 80% of the time? also when I’m on my period (tmi) 🤣 but I feel like we’re all past that now, the pain I...

The bleeding after sex, it’s not always but maybe 80% of the time? also when I’...

Jmurf251

•4 days ago

2 Replies

Is this the basis on who is a qualified endo specialist?

This is a letter I got from an Endo Specialist Nurse at a NHS Hospital when asking what makes a qualified endo specialist. “Thank you for contacting the...

This is a letter I got from an Endo Specialist Nurse at a NHS Hospital when aski...

allyshajohnson

•4 days ago

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Newly diagnosed and in need of advice!

I’ve had my lap a month ago and am awaiting an official diagnosis of endo, but have been told it was present and that this is what has been causing my symptoms...

I’ve had my lap a month ago and am awaiting an official diagnosis of endo, but h...

Luvvy

•4 days ago

2 Replies

laparoscopy help

I have my diagnostic surgery on Friday and I’m wondering if I would be able to get my coil removed while I’m under I’ve forgot to ask during my pre assessment...

I have my diagnostic surgery on Friday and I’m wondering if I would be able to g...

Woopwoop1234

•4 days ago

2 Replies

MRI follow up

Hey, I wrote recently about being scared for my follow up, I guess I worked myself up not knowing which was the best answer to see it or not to see it. It...

Hey, I wrote recently about being scared for my follow up, I guess I worked my...

Lincoln67

•4 days ago

3 Replies

FERTILITY TREATMENT AND PCOS

In my area I was told that i could not receive fertility treatment because my partners bmi was still too high. I was under the impresssion that anyone...

In my area I was told that i could not receive fertility treatment because my pa...

Keirrhiann

•4 days ago

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provera 10mg tablets

hi has anyone taken these? Any feedback if it does stop the bleeding or any side effects? Also after you have stopped taking them have you had heavy bleeding...

hi has anyone taken these? Any feedback if it does stop the bleeding or any side...

N_12

•5 days ago

4 Replies

This pain is killing!

I can’t help it anymore

Antomum

•5 days ago

5 Replies

Mirena coil not helping :(

I got the mirena coil 5 weeks ago to help with my pain.I had a lap surgery a year ago which found spots of endometriosis on my pelvic walls which were ablated...

I got the mirena coil 5 weeks ago to help with my pain.I had a lap surgery a yea...

Unicorn777

•5 days ago

2 Replies

Traveling with Endo

Hi! I've been lucky enough to be able to afford to travel to America to visit friends of 10years and very excited. I really don't want to miss this opportunity...

Hi! I've been lucky enough to be able to afford to travel to America to visit fr...

Nolliemai

•6 days ago

1 Reply

Norethisterone and Endo

Hi, hope youre all OKIm travelling soon just for 4 days and was wondering if I should take norethisterone (primolut) to stop heavy period and pain whilst away....

Hi, hope youre all OKIm travelling soon just for 4 days and was wondering if I s...

Hannah818

•6 days ago

14 Replies

Bleeding Bleeding Bleeding

Is anyone just continuously bleeding? Every day? I had surgery August for DIE. Pelvic walls and ligaments. Treatment to the cervix for a cervical ectropion...

Is anyone just continuously bleeding? Every day? I had surgery August for DIE. ...

Tangoandmax

•7 days ago

6 Replies

Painkiller advice

Hi all. I've finally got my follow-up appointment on Monday since my MRI in August last year, which showed some adhesions, endometriotic plaque/nodules and...

Hi all. I've finally got my follow-up appointment on Monday since my MRI in Augu...

CitizenErased

•7 days ago

10 Replies

Upcoming surgery, feeling nervous and now have more questions. Mirena coil experiences?

I have a lap next week and starting to overthink it a little. I have a pre op in several days so I know I can ask more then but wanted to know people's...

I have a lap next week and starting to overthink it a little. I have a pre op in...

Surfingblue

•7 days ago

10 Replies

mri results help

So I’m sure my Endo has come back. I had an mri recently and just spoke to a gynae secretary who said she’d speak to a dr regarding the results, she was gone...

So I’m sure my Endo has come back. I had an mri recently and just spoke to a gyn...

Chloelouise92

•8 days ago

8 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for January 2025

Adenomyosis and pararectal resection

emotional wreck

Progesterone-only pill

Going round in circles!

PARTICIPANTS WANTED! Anonymous 10-15 minute questionnaire on your experience of endometriosis

Black blood/discharge 8 weeks post ovarian cyst removal

Everlasting Long and Painful Journey

How long is your wait for surgery?

managing working and finances

Bloating after transvaginal ultrasound

pain relief

Reaching Out for Support: Endometriosis Symptoms and Challenges

Vitamin D and B12 deficiency anyone else

Progestogen-only pill

Urgent wait list

Are these endo symptoms?

Is this the basis on who is a qualified endo specialist?

Newly diagnosed and in need of advice!

laparoscopy help

MRI follow up

FERTILITY TREATMENT AND PCOS

provera 10mg tablets

This pain is killing!

Mirena coil not helping :(

Traveling with Endo

Norethisterone and Endo

Bleeding Bleeding Bleeding

Painkiller advice

Upcoming surgery, feeling nervous and now have more questions. Mirena coil experiences?

mri results help

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