PIP phone call help : Hello all. I’ve been... - Endometriosis UK

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PIP phone call help

MonsteraMartha1995 profile image

Hello all.

I’ve been given a date for next Thursday for my phone PIP assessment.

Does anyone have any tips before I go ahead with it?

Thank you!

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MonsteraMartha1995 profile image
MonsteraMartha1995
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13 Replies
Nicjane profile image
Nicjane

I havent gone through this yet (Even thought I am planning to apply) Maybe write down as many notes as you can about how your symptoms effect you physcially (and mentally if applicable). Assume the most likely cause that they know nothing about endometriosis.

Don't be afraid to pause and think when they ask questions.

Phone citizens advice they might be able to give you some last minute tips and advice!

If like me i need to do something with my hands maybe doodle on a notebook while you speak to them or have a stress ball of some kind to ease any anxieties.

Sorry this is not much but I can see myself going through this process soon.

Wishes you all the best!

MonsteraMartha1995 profile image
MonsteraMartha1995 in reply to Nicjane

Thank you so much for taking the time to reply!

This is all helpful thank you so much.

Take care lovely!

Mami2merch profile image
Mami2merch in reply to Nicjane

I applied for PIP and unfortunately didn’t receive any help , they said I was physically mobile they couldn’t help me although I said on bad days which are 70% I struggle with 😔.

Good luck

Char30 profile image
Char30 in reply to Mami2merch

Appeal the decision. I have a friend that works in that sector and when I applied she said to appeal the decision and you might then get it.

MonsteraMartha1995 profile image
MonsteraMartha1995 in reply to Mami2merch

Oh bless you, I have heard that people who have appealed the decision have gotten it it eventually.

Best of luck to you x

kitten4687 profile image
kitten4687

Not really helpful, but how long from putting your application in did it take to get this appointment? i did my application on the phone 10 weeks ago but not heard anything yet?

Good luck with your assessment, just be truthful and always base your answers on your worse days

MonsteraMartha1995 profile image
MonsteraMartha1995 in reply to kitten4687

Around 6 weeks and I had a letter in the post with a time and date for a telephone appointment.

Really hope you hear something soon.

Thanks so much!

Char30 profile image
Char30

To get PIP it goes off of points to be eligible to receive it. You have to really go into detail about your daily struggles and how it affects you on a day to day basis.

Good luck with it.

MonsteraMartha1995 profile image
MonsteraMartha1995 in reply to Char30

Thanks so much! X

Tillymintxo profile image
Tillymintxo

good luck! I hope you get some help, they lied on my report and said I could do basically everything myself and I was absolutely fine - which I never said or insinuated. I tried to appeal but got ignored, they are abit ruthless and try and catch you out with repeated questions and tricks, just try and be prepared as best you can, you’re allowed to record the phonecall yourself (incase you need to appeal) just make sure you tell them you are recording for your own purposes! 🩷

MonsteraMartha1995 profile image
MonsteraMartha1995 in reply to Tillymintxo

Wow, so sorry to hear you had this experience. Is there nothing else you can do?

Thanks for giving me the heads up - always like to prepare for the worst!

X

Cailleach profile image
Cailleach

Tell them about how things are when you are at your worst, be careful not to downplay anything, as we all tend to do when talking to people. Maybe write down all the ways you are affected in different areas of your life, so you don’t forget to mention stuff.

Good advice to record.

Be prepared to be turned down, a lot of people have to go to appeal.

Good luck xx

Awwy profile image
Awwy

When you answer questions, talk about your worst day. How it affects you in everyday life, e.g, the impact from pain, to walking, self care you really have to describe the worst times. I contacted citizens advice and got an advocate as I dint get it the first time.

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