officially diagnosed : so I had my endo uss... - Endometriosis UK

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officially diagnosed

Sara0102 profile image
3 Replies

so I had my endo uss with a endo specialist which lasts 1 hour

On my scan I have adhesions, Adenomyosis, and my ovaries are stuck to my uterus… she said endo is 99perfent there aswell coz I have adhesions…

does this sound about right ? Any

Advice would help x

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Sara0102 profile image
Sara0102
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3 Replies
Moon_maiden profile image
Moon_maiden

Hi

Hope you aren’t in too much pain. Adhesions and Endo seem to go together unfortunately, Endo seems to be an inflammatory condition, it has been from my perspective. I had loads of adhesions as well as Endo.

What did you want to know?

Have they mentioned any treatment or surgery?

Sara0102 profile image
Sara0102 in reply to Moon_maiden

Hi thanks so much for the reply

Yes I had loads of adhesions and endo and the other one I typed I think it’s adenomyosis

I jus wana know is all my symptoms fitting in have the mirina coil in my bleeding is less heavy but a lot longer where it lasts 2/3 weeks

Also I have pelvic pain leg pain constant fatigue and it’s every day not just when I’m due on

Moon_maiden profile image
Moon_maiden in reply to Sara0102

Sorry you’ve got it so bad, it’s not easy. Hope you’ve got support from friends and family. Here is a good place to vent as well 🙂

I’d say Gynae is likely right re endo, I don’t know much about the coil, you’ll find lots on here though as many have tried it with various results. I think others have mentioned similar things with bleeding. Sorry not much help on that one. I did try Zoladex but that didn’t work for me.

Its horrible when the pain is everyday, are you on any painkillers? If you get any pins and needles in your legs the sciatic nerve might be effected, nerve pain medication can be Pregabalin, Gabapentin and Duloxitine, I’m on Duloxitine, better than Pregabalin for me, mine is more abdominal. I take paracetamol and Oramorph and occasionally use Diclofenac or naproxen. If GP isn’t being helpful about medication ask them to refer you to the pain clinic.

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