Any 'Ankylosing Spondylitis'-ers (AS)? - Cure Arthritis Co...

Cure Arthritis Community

2,824 members599 posts

Any 'Ankylosing Spondylitis'-ers (AS)?

Kai-- profile image
9 Replies

.

Any 'Ankylosing Spondylitis'-ers (AS)?

If so, do you have suggestions, tips, insights, you'd like to share with anyone newly diagnosed with Ankylosing Spondylitis (AS)?

[I'm requesting on behalf of another/ different forum member at early stages of research.]

Any guidance/ road maps from those who've travelled the Ankylosing Spondylitis (AS) road, would be deeply appreciated. 🙏

Thank you in advance for anyone wishing to contribute. 💐

(Hope this proves useful for other AS-ers, as well. 👍 )

.

.

___________________________

7️⃣5️⃣ Chiropractic, Massage, Physical Therapy to Help Manage Pain: Matthew Redman: healthunlocked.com/cure-art...

7️⃣4️⃣ JIA-er Katy Shares Her Progress: From 10 Months Old to 26 Years Old: healthunlocked.com/jia/post...

7️⃣3️⃣ Quality Deep Sleep: Physical/ Mental Restoration & Improving Health: healthunlocked.com/cure-art...

7️⃣2️⃣ Oats as Cooked Oatmeal or Fermented Overnight. Rolled, Steel Cut, or Whole Groat. Prebiotic, Probiotic, not Idiotic via Dr. Richard Matthews.: healthunlocked.com/cure-art...

7️⃣1️⃣ DMARD Infographic: Methotrexate (MTX), Leflunomide (LEF), Sulphasalazine (SSP), Hydroxychloroquine (HCQ): healthunlocked.com/cure-art...

7️⃣0️⃣ Paddison Program (PP): Clinical Trial, Rheumatologist Contacting Clint Paddison, 'Guide for Rheumatologists', TEDtalk, etc.: healthunlocked.com/cure-art....

▫️

▫️

6️⃣9️⃣ Journey To 100: Evolution of Medicine (Functional Medicine & Importance of 'Community'): healthunlocked.com/cure-art...

6️⃣8️⃣ Dr. Michael Greger ('Sense & Sensibility') Shares "How Not to Die": healthunlocked.com/cure-art...

6️⃣7️⃣ Journalist Sumit Bose, Another RA-er Who's Documenting His RA Journey: healthunlocked.com/cure-art...

6️⃣6️⃣ 'Microbiome/ Gut Health Book List' from AARA: healthunlocked.com/cure-art...

6️⃣5️⃣ Practical, Brief Video Tips for RAers/ Autoimmuners: healthunlocked.com/cure-art...

6️⃣4️⃣ Supplements/ Nutrients (B12, Vit. D, Potassium, Protein . . . ) for RAers/ Autoimmuners & Plant-Based Dieters (Vegans, Vegetarians, . . . ): healthunlocked.com/cure-art....

6️⃣3️⃣ Sally, 'The Galloping Grandma': healthunlocked.com/cure-art...

6️⃣2️⃣ Why Does the Medical System Ignore the Importance of Diet? A Fable Told by John Robbins: healthunlocked.com/cure-art...

6️⃣1️⃣ Dr. Brooke Goldner's Free 3-Day Webinar, '6 Steps to Reversing Autoimmune Disease with Supermarket Foods': August 3/Thu, 7/Mon, 10/Thu 2017: healthunlocked.com/cure-art...

6️⃣0️⃣ 'No' to Fish Oil Too?: healthunlocked.com/cure-art...

▫️

▫️

5️⃣9️⃣ Top Rheumatoid Arthritis Blogs & Websites (from 'Feedspot'): healthunlocked.com/cure-art...

5️⃣8️⃣ Psoriatic Arthritis & Skin Psoriasis: Nicole S. O’Shea's Journal (& Journey): healthunlocked.com/cure-art...

5️⃣7️⃣ Anyone experience with Pulmonary Nocardia (Nocardiosis)?: healthunlocked.com/blf/post...

5️⃣6️⃣ Osteoarthritis: Prevented with Diet & Exercise? University of Surrey (U.K.) study in 'Nature Reviews Rheumatology': healthunlocked.com/ra-warri...

5️⃣5️⃣ "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers): healthunlocked.com/ra-warri...

5️⃣4️⃣ Life is all about how we see things. Context is everything. Perspective is everything.: healthunlocked.com/nras/pos....

5️⃣3️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.) Now Underway: healthunlocked.com/ra-warri...

5️⃣2️⃣ Reg, Coordinator of 'Redcar Arthritis Care Group', Shares His Thoughts about Movement/ Exercise & Arthritis: healthunlocked.com/nras/pos...

5️⃣1️⃣ Cornetto Trio? From Maya Angelou to Confucius to 'Oprah'!?: healthunlocked.com/nras/pos...

5️⃣0️⃣ "What Doctors Don't Know About the Drugs They Prescribe" by Ben Goldacre: healthunlocked.com/nras/pos...

▫️

▫️

4️⃣9️⃣ 2017 Food Revolution Summit: April 29 (Sat.) to May 7 (Sun.): healthunlocked.com/nras/pos....

4️⃣8️⃣ "People who say it cannot be done should not interrupt those who are doing it.": healthunlocked.com/fibromya....

4️⃣7️⃣ "When someone shows you who they are, believe them.": healthunlocked.com/fibromya....

4️⃣6️⃣ Ankylosing Spondylitis (AS): healthunlocked.com/nras/pos...

4️⃣5️⃣ Have you been on the "Paddison Program Forum"?: healthunlocked.com/ra-warri...

4️⃣4️⃣ Anyone on the "Paddison Program Forum"?: healthunlocked.com/nras/pos...

4️⃣3️⃣ "How U.S. Health Care Became Big Business": Medical Journalist, Dr. Elisabeth Rosenthal talks with NPR's Terry Gross: healthunlocked.com/ra-warri...

4️⃣2️⃣ Quinoa, Buckwheat, Sweet Potatoes, Leafy Greens, . . . 'Baseline Phase' of PP Diet Fulfills Nutritional Requirements (Diverse & Complete): healthunlocked.com/nras/pos...

4️⃣1️⃣ Healing Power of Resilience, Optimism, & Hope: Moving Forward from Trauma, PTSD, Physical & Psychological Abuse & Illness — Dave Pelzer: healthunlocked.com/nras/pos...

4️⃣0️⃣ Warm welcome, Hopeyj19!: healthunlocked.com/nras/pos...

▫️

▫️

3️⃣9️⃣ From Wheelchair to Bikram Yoga (in 10 Months): healthunlocked.com/nras/pos...

3️⃣8️⃣ "A Kitchen Fairy Tale" by Iida, How She Healed Herself with a Plant-Based Diet (according to 'Tribe Magazine'): healthunlocked.com/nras/pos...

3️⃣7️⃣ Can I Avoid RA Drugs or Should I Go On Drugs? 'Paddison Program' FAQ Opinion; Also: Methotrexate Explanation & References: healthunlocked.com/nras/pos...

3️⃣6️⃣ EarthToLor: Psoriasis, RA, Depression, Weight Gain; Triple Therapy & More; Potatoes & Rice: healthunlocked.com/nras/pos...

3️⃣5️⃣ New Arthritis Podcast: "Can Arthritis Potentially End a Musical Career?": healthunlocked.com/nras/pos...

3️⃣4️⃣ Cardiologist, Dr. Monica Aggarwal, Reduces Her RA Inflammation via Plant-Based Nutrition, Diet, Lifestyle: healthunlocked.com/nras/pos...

3️⃣3️⃣ AndySwarbs Shares His RA Hero's Journey — Joe Campbell Style: healthunlocked.com/ra-warri...

3️⃣2️⃣ Olive Oil — not Popeye's 'Olive Oyl': healthunlocked.com/ra-warri...

3️⃣1️⃣ Our Beloved AndySwarbs, a Hero's Journey: healthunlocked.com/nras/pos...

3️⃣0️⃣ Erika's Rheumatologist Confirms Erika's CCP Reduced (from 144.3 to 27) via Diet — turning_pain_n2_purpose: healthunlocked.com/nras/pos...

▫️

▫️

2️⃣9️⃣ "Super Juice Me!" Documentary by Jason Vale: healthunlocked.com/nras/pos...

2️⃣8️⃣ "Fat, Sick & Nearly Dead" Documentary by Joe Cross: healthunlocked.com/ra-warri...

2️⃣7️⃣ Juvenile Idiopathic Arthritis (JIA): Jenn, Cole, & Joseph Share Hope & Practical Experience: healthunlocked.com/nras/pos...

2️⃣6️⃣ Jenn, Cole, & Joseph: JIA-ers Who Share Hope & Practical Experience: healthunlocked.com/jia/post...

2️⃣5️⃣ Empathetic 'Knee Photo' for Deejojo: healthunlocked.com/nras/pos...

2️⃣4️⃣ "Tis but a scratch . . .": healthunlocked.com/ra-warri....

2️⃣3️⃣ Placing Dietary & Lifestyle Approaches 'In Context'/ 'In Perspective': healthunlocked.com/nras/pos...

2️⃣2️⃣ Roxana, 'The Sofia Vergara of Peru' (& now 'The States'), Improves Her Hashimoto's (Hypothyroid) & Rheumatoid Arthritis (RA): healthunlocked.com/thyroidu...

2️⃣1️⃣ Any 'Ankylosing Spondylitis'-ers (AS)?: healthunlocked.com/ra-warri...

2️⃣0️⃣ Catching Up with 'Healing Josefine' -- Over 2 Years & 80+ Vlogs: healthunlocked.com/nras/pos...

▫️

▫️

1️⃣9️⃣ Dr. Pam Popper on: Hypothyroidism; Iodine, Thyroid Function & Thyroid Disease: healthunlocked.com/thyroidu...

1️⃣8️⃣ Self-Management Event in Southampton on Feb. 14 & 15 from 'Arthritis Action': healthunlocked.com/nras/pos...

1️⃣7️⃣ X-Ray Yoga: healthunlocked.com/ra-warri...

1️⃣6️⃣ Gentle Chair Yoga for RA, X-Ray Yoga for Wonderment: healthunlocked.com/nras/pos...

1️⃣5️⃣ Suicide -- Career & Otherwise: healthunlocked.com/nras/pos...

1️⃣4️⃣ Meditation, Mindfulness, Movement, Breathing, Relaxation, Stress Reduction . . .: healthunlocked.com/nras/pos....

1️⃣3️⃣ 13 Bite-Size Thoughts for Autoimmuners -- Newly Diagnosed (or Not): healthunlocked.com/ra-warri...

1️⃣2️⃣ "When You Know Better, You Do Better!": healthunlocked.com/fibromya...

1️⃣1️⃣ Dietary/ Lifestyle Considerations for Rheumatologists to 'Ruminate On': healthunlocked.com/nras/pos...

🔟 Spoon Theory, Spoonie, Spooning: healthunlocked.com/nras/pos...

▫️

▫️

9️⃣ Douglas Lisle: 'The Pleasure Trap': healthunlocked.com/nras/pos...

8️⃣ Dean Ornish, Neal Barnard, T. Colin Campbell, Caldwell Esselstyn, John McDougall, Michael Klaper, Michael Greger: healthunlocked.com/nras/pos...

7️⃣ "Poofed" Info, References, Links, Your Replies, etc. (at ALL 'Kai-- Posts'): healthunlocked.com/nras/pos...

6️⃣ FREE Whole Foods Plant-Based Diet/ Lifestyle (WFP-BD/L) Info for Interested Autoimmuners/ RAers: healthunlocked.com/nras/pos...

5️⃣ Vogons, Vulcans, Vegans: healthunlocked.com/nras/pos...

4️⃣ Microbiome, Pooing, Toilet Humour: healthunlocked.com/nras/pos...

3️⃣ For All Autoimmuner's: FREE 7-Part Documentary with Tom O'Bryan: healthunlocked.com/nras/pos...

2️⃣ FREE 3-Part 'Serology (RF, ACPA, Anti-CCP, ANAs, ANCA) in Rheumatology' Series from Dr. Robert Coughlan's 'Rheumatology Toolbox': healthunlocked.com/nras/pos...

1️⃣ "Live Your Life. . . ": healthunlocked.com/nras/pos....

Kai-- Profile: healthunlocked.com/user/kai... [Click on blue "Read more" text (at top of page) to read full profile.]

.

Written by
Kai-- profile image
Kai--
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Kai-- profile image
Kai--

Here's some 'generic' Ankylosing Spondylitis resources info (I'd run into in past):

.

👞 🌙🌙 KickAS Forum: kickas.org/ubbthreads/ubbth...

👞 🌙🌙 KickAS Low/ No Starch Diet: kickas.org/asfood.shtml

.

🗣 👥 Spondylitis Association of America (SAA) Forum: forums.spondylitis.org/ubbt...

🗣 👥 SAA Diet: forums.spondylitis.org/ubbt...

.

🏊 Ankylosing Spondylitis (AS) Exercises: google.ca/search?as_q=Ankyl...

.

Kai-- profile image
Kai--

Generic Rheumatologists Appointment info:

The "RAise It" document from the NRAS* website ( nras.org.uk/publications/ra... ) is "a guide to talking to your doctor or nurse about rheumatoid":

• Online (PDF file): nras.org.uk/data/files/Publ...

.

[*NRAS (National Rheumatoid Arthritis Society) is a UK-based charity. Much of the information is informative/ useful state-side too. Kindly bear in mind, there are country-specific differences. 👍 ]

______

Supplementally, for anyone interested in what additional queries to consider asking your rheumatologist upon initial meeting, consider the following:

NRAS forum participants have noted their additional questions for their rheumatologist in forum posts. If you've time/ inclination to skim through the list of search results ("questions first rheum appointment"):

healthunlocked.com/search/q... , you may glean additional ideas for queries that relate to your specific concerns. 👍

.

Kai-- profile image
Kai--

For ASers also interested in (reputable) dietary/ lifestyle information (in addition to meds), here's references/ links I've gleaned from some of my 'go to sites' by plugging in 'Ankylosing Spondylitis' as a 'search term':

T. Colin Campbell • nutritionstudies.org/autoim...

Dr. John McDougall • drmcdougall.com/health/educ...

. . . . . . . . . . . . . . . . . • drmcdougall.com/health/educ...

Dr. Michael Klaper • doctorklaper.com/answers/an...

Clint Paddison • paddisonprogram.com/?s=Anky...

. . . . . . . . . . . . . • paddisonprogram.com/clint-e...

Dr. Michael Greger • nutritionfacts.org/topics/a...

Dr. Joel Fuhrman • drfuhrman.com/lifestyle/suc...

.

Again, it's a lot of info to wade through 😳 , yet there may be some practical dietary/ lifestyle ideas that may serve as a roadmap to navigating (& improving) life with AS. 👍 [Merely supplemental food for thought. 💡 🤔 ]

.

Kai-- profile image
Kai--

Just checking in.

Anyone with Ankylosing Spondylitis tips that you'd like to share with a newbie?

Any insights would be greatly appreciated. 🙏

Thank you in advance for anything you're comfortable sharing. 👍 😌

.

Kai-- profile image
Kai--

As luck 🍀 would have it, an RA podcast I follow had an ASer on:

Cherie AllardiceReversing Ankylosing Spondylitis on The Paddison Program - Cherie Shares Her Journey: m.youtube.com/watch?v=gabuK...

.

Transcript: Ankylosing Spondylitis Symptom Reversal with Cherie: paddisonprogram.com/ankylos...

.

Cherie's not only explains her AS journey, but has also written a book & started a Facebook group for anyone who's interested:

👤 Facebook: Ankylosing Spondylitis Recovery: facebook.com/ankylosingspon...

📖 Book: Freedom from Ankylosing Spondylitis: How I got pain free and off all medications, and you can too: amazon.com/dp/B01N3AXPAC

.

🙏 🍀 🌺 🌞

.

Kai-- profile image
Kai-- in reply toKai--

.

Bit more on Cherie's experience:

Testimonial Cherie Allardice Nutritional Therapist Graduate The Health Sciences Academy Review: m.youtube.com/watch?v=vYxn7...

.

🙏 🍀 🌺 🌞

.

Kai-- profile image
Kai--

Another recovering AS-er! 😳 😯 🤗

Katie Gets Off Methotrexate After 11 Years Of Inflammatory Arthritis / Ankylosing Spondylitis:

m.youtube.com/watch?v=tBYfl...

.

Transcript: paddisonprogram.com/katie/

.

🙏 🍀 🌺 🌞

.

Kai-- profile image
Kai--

Additional AS info at 'ankylosing spondylitis and how to manage it' 👍 :

healthunlocked.com/nras/pos...

🙏 🍀 🌺 🌞

.

Kai-- profile image
Kai--

.

[Per usual 😳, while looking at 1 thing 🧐 , stumble across something else! 🙃 🤯 ☺️ ]

.

For Ankylosing Spondylitis-ers, Mark Jones’ experience may be of interest 🙏 🍀 🌺 🌞 :

'Mark Jones: Cures Arthritis, Heart Disease & Obesity' (March 2012): drmcdougall.com/health/educ...

m.youtube.com/watch?v=HNqXV...

.

.

Here MJ’s October 2016 update:

'Mark’s Cardiologist Told Him He Wouldn’t See His 64th Birthday – NEW': drmcdougall.com/health/educ...

m.youtube.com/watch?v=KvXZW...

.

🎄 🔖 🎁 🎅 ❄️ ☃️ 🌨

.

Not what you're looking for?

You may also like...

"Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers)

. "Guide for Rheumatologists" V 1.5.6 (for 'Paddison Program'-ers) For Paddison...
Kai-- profile image

Supplements/ Nutrients (B12, Vit. D, Potassium, Protein . . . ) for RAers/ Autoimmuners & Plant-Based Dieters (Vegans, Vegetarians, . . . )

. Supplements/ Nutrients (B12, Vitamin D, Potassium, Protein . . . ) for RAers/ Autoimmuners...
Kai-- profile image

X-Ray Yoga

. X-Ray Yoga . You might get a kick out of this amazing video 😃 : X-Ray Body in Motion -...
Kai-- profile image

Sally, 'The Galloping Grandma'

. Sally, 'The Galloping Grandma' Blog: https://TheGallopingGrandma.wordpress.com/...
Kai-- profile image

Have you been on the "Paddison Program Forum"?

. Have you been on the "Paddison Program Forum"? If so, would you mind sharing your...
Kai-- profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.