Any 'Ankylosing Spondylitis'-ers (AS)?

Any 'Ankylosing Spondylitis'-ers (AS)?

.

Any 'Ankylosing Spondylitis'-ers (AS)?

If so, do you have suggestions, tips, insights, you'd like to share with anyone newly diagnosed with Ankylosing Spondylitis (AS)?

[I'm requesting on behalf of another/ different forum member at early stages of research.]

Any guidance/ road maps from those who've travelled the Ankylosing Spondylitis (AS) road, would be deeply appreciated. 🙏

Thank you in advance for anyone wishing to contribute. 💐

(Hope this proves useful for other AS-ers, as well. 👍 )

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  • Here's some 'generic' Ankylosing Spondylitis resources info (I'd run into in past):

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    👞 🌙🌙 KickAS Forum: kickas.org/ubbthreads/ubbth...

    👞 🌙🌙 KickAS Low/ No Starch Diet: kickas.org/asfood.shtml

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    🗣 👥 Spondylitis Association of America (SAA) Forum: forums.spondylitis.org/ubbt...

    🗣 👥 SAA Diet: forums.spondylitis.org/ubbt...

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    🏊 Ankylosing Spondylitis (AS) Exercises: google.ca/search?as_q=Ankyl...

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  • Generic Rheumatologists Appointment info:

    The "RAise It" document from the NRAS* website ( nras.org.uk/publications/ra... ) is "a guide to talking to your doctor or nurse about rheumatoid":

    • Online (PDF file): nras.org.uk/data/files/Publ...

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    [*NRAS (National Rheumatoid Arthritis Society) is a UK-based charity. Much of the information is informative/ useful state-side too. Kindly bear in mind, there are country-specific differences. 👍 ]

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    Supplementally, for anyone interested in what additional queries to consider asking your rheumatologist upon initial meeting, consider the following:

    NRAS forum participants have noted their additional questions for their rheumatologist in forum posts. If you've time/ inclination to skim through the list of search results ("questions first rheum appointment"):

    healthunlocked.com/search/q... , you may glean additional ideas for queries that relate to your specific concerns. 👍

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  • For ASers also interested in (reputable) dietary/ lifestyle information (in addition to meds), here's references/ links I've gleaned from some of my 'go to sites' by plugging in 'Ankylosing Spondylitis' as a 'search term':

    T. Colin Campbell • nutritionstudies.org/autoim...

    Dr. John McDougall • drmcdougall.com/health/educ...

    . . . . . . . . . . . . . . . . . • drmcdougall.com/health/educ...

    Dr. Michael Klaper • doctorklaper.com/answers/an...

    Clint Paddison • paddisonprogram.com/?s=Anky...

    . . . . . . . . . . . . . • paddisonprogram.com/clint-e...

    Dr. Michael Greger • nutritionfacts.org/topics/a...

    Dr. Joel Fuhrman • drfuhrman.com/lifestyle/suc...

    .

    Again, it's a lot of info to wade through 😳 , yet there may be some practical dietary/ lifestyle ideas that may serve as a roadmap to navigating (& improving) life with AS. 👍 [Merely supplemental food for thought. 💡 🤔 ]

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  • Just checking in.

    Anyone with Ankylosing Spondylitis tips that you'd like to share with a newbie?

    Any insights would be greatly appreciated. 🙏

    Thank you in advance for anything you're comfortable sharing. 👍 😌

    .

  • As luck 🍀 would have it, an RA podcast I follow had an ASer on:

    Cherie Allardice — Reversing Ankylosing Spondylitis on The Paddison Program - Cherie Shares Her Journey:

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    Transcript: Ankylosing Spondylitis Symptom Reversal with Cherie: paddisonprogram.com/ankylos...

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    Cherie's not only explains her AS journey, but has also written a book & started a Facebook group for anyone who's interested:

    👤 Facebook: Ankylosing Spondylitis Recovery: facebook.com/ankylosingspon...

    📖 Book: Freedom from Ankylosing Spondylitis: How I got pain free and off all medications, and you can too: amazon.com/dp/B01N3AXPAC

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    🙏 🍀 🌺 🌞

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  • Another recovering AS-er! 😳 😯 🤗

    Katie Gets Off Methotrexate After 11 Years Of Inflammatory Arthritis / Ankylosing Spondylitis:

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    Transcript: paddisonprogram.com/katie/

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    🙏 🍀 🌺 🌞

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