For 2 months I kept telling myself that the reason I was feeling so bad was because of my MS. I just kept pushing along, doing all of the things I wanted to do, such as hiking with my dear dog and selling my jewelry. I could hardly lift my legs, but I kept going! I got short of breath and I was dizzy. I was passing out this past weekend. I went to the hospital, as you know. It was NOT my MS. I have a clot in my left lung. I decided to share this because I want to remind everyone that we must not assume that everything is part of our existing illness. I was sure I was just having a relapse. Thankfully the medicine is already helping and I am breathing better and some of the other symptoms have diminished. Please don’t assume it is always your MS. Just some unsolicited advice from me, hopefully it helps us all. Love, Kelly PS I wish this information was treated with privacy like the HIPPA regulations. I would like to keep it private.
Remember…it’s not always MS: For 2 months... - My MSAA Community
Remember…it’s not always MS
I agree! It’s one of the reasons I just fired my primary care doctor. He wanted to blame everything on MS!!
Isn’t that the truth?!
Glad you are getting the meds you need to dissolve the clot and are feeling better. You are so right....everything is not MS-related. Please keep us updated on how you are doing when you can.
You're right!!
It’s such an important thing to remember, because it’s so easy to say oh, it’s just the disease. I know that I do it often.
I admit that I do like to take my anger and failures out on MS....it's why I have bad hair days.😅
That’s why I keep my hair so short!
I've thought about shaving my head but I don't like bowling.😂
I even went so far as to buy the clippers! But the girl who cuts my hair talked me out of doing it. Thank goodness.
My hub once asked me to trim around his ears with the clippers.
I put it flat against his head and gave him a nice set of whitewalls.
He didn't like that and proceeded to shave his entire head, starting by taking it right up the center for a reverse Mohawk.😍🤣
A bit drastic if you ask me....which he never did again.😅😅
🤣🤣
That’s why mine keeps falling out!
I call it playing the “is this my MS or something else” game. I have epilepsy as well as the MS so warning signs for my seizures sometimes go unchecked (is that the right word?) or I guest it would be better to say “not dealt with” because I blame the MS. Stuttering, not being able to get my words out, and muscles jerking are signs that I’m about to have a seizure but they are also things that happen because of the MS.
I am so glad you are feeling better.😀Leslie
So glad to hear you are on the mend. How scary! I'm with you on the doctors who try to blame everything on M.S. It is so important for us to listen to our bodies and push for answers when we know something is going on. I have fired more than one doctor because of this issue. Wishing you a full and speedy recovery! 🤗
I'm so glad you got an answer to why you were feeling so bad and now you're getting treatment. You are so right that we can't just assume that it's MS. For me it seems like there's so many doctors. The MS one, the sjogren's one, my eyes, skin cancer treatment. Sometimes we just don't know that it's not any of that and that it's something else until it hits us hard. Like when it hit you with passing out. And when there's several things going on, I know with myself, I don't want to complain because then it sounds like I'm a hypochondriac.
I'm glad I see different Drs for all new symptoms. Was seen by one, who listened to my chest, and diagnosed me with pneumonia. He prescribed me antibiotics, which worked for a while, but the phlegmy cough has come back. Then, another Dr diagnosed me with silent reflux, and was about to prescribe me omeprazole until I told her I've tried it and it doesn't work. She referred me to a gastroenterologist, and I'm just waiting to see him.Looked up what the gastroenterologist could do when he puts a camera down my oesophagus, and it came back with "possible infection." Can't remember the name of the infection, but hopefully I'll be getting somewhere. I've already had antibiotics fir my UTIs, so I don't know if it's antibiotic resistant 🤔 we'll see
Hi, re. privacy you could lock your post, it may help a bit. Cheers
Glad to hear you’re feeling better🙏🏾
Wow, I'm so sorry you experienced that. Blood clots are no joke and very dangerous. We must always seek help with new issues and not assume it's the MS.I hope you continue to get better.
im glad you found out before it got worse!
Thanks for the reminder!
I’m so thankful that you’re feeling better. I also assumed that my weakness was related to MS and found out that it was Covid. Prayers for a speedy recovery and thanks for the reminder that our overall health is greater than our MS.
Very good post. It's true. We need to work out a plan on when I call my primary and when to call the neurologist.
Thank you so much Kelly for sharing your story! I’m in complete agreement… Sometimes not only do we make the assumption that it is “ just our MS” but often times the medical community does.. I am so incredibly grateful that you figured out the pulmonary embolism thing and that you are on the mend ❤️🩹
Thanks for sharing! Hope you’re fully recovered soon
Take care it is a good reminder that MS is not the cause of all our troubles. Hope you get feeling better soon 👍🏼🙏😉
I'm so glad that you were able to get medication to dissolve this clot, and that you made sure to get checked out for something not related to MS, Kelly. What a relief to learn that you're breathing better as a result!
I agree completely it's the easy way out to blame ms. I have ppms and I've gone that road before. From now on I eliminate other causes for and when the
I am so very glad it was found and you're feeling better!
I hope you are feeling better soon and able to get back to the things you enjoy! 🙏 Lots of love to you!
I will keep you in my prayers
Sorry for your illness glad you figured it out
I’m so glad you are feeling better 🙏 and I thank you for the reminder. I tend to ignore changes and assume it’s just ms making me miserable again. ☹️
I think we all do this often, because it is so easy. I am certainly guilty of it.
Thank God you listened to your inner voice and went to the hospital! Please continue to take care of you and feel better 💐 ❤️. NeeC
That inner voice has saved me many times over my life! ❤️
Hi!! How appropriate to read this post as I am currently in the hospital with a vicious UTI caused by kidney stones. I have felt terrible for awhile and last weekend was the breaking point. I thought I was in a flare and my neurologist sent me to the ER. Turns out it is a UTI and several large stones that I had no idea I had. It was a relief to find out it isn’t a flare and after some good iv antibiotics I’m feeling much better than I have for weeks however, I now must have kidney surgery as the stones must be removed. I have gotten many kidney stones since I’ve been 21(so for 34 years). I passed a few but this is my 5th surgery because they get so large that they can’t pass out of my kidneys. I’m looking forward to feeling better but nothing is ever easy!!
Stacey
so glad the clot was treated before any damage could have set it. Great advice that we not assume everything is MS related. Feel better and keep enjoying life
Thank you!😊
I hope you feel better soon! The hardest thing for me is to get my doctors not to blame everything on M.S. I moved to be by family a year ago and am breaking in all new doctors. It’s hard work!
Is it MS or not? No answer !
Acupuncture for MS
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