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My MSAA Community

8,967 members • 20,688 posts

All posts for January 2020

Post 586 ms is unpredictable so be prepared 26 Jan 2019

Read the title again. Good, yes it is unpredictable and I am not sure that ever ends. 20+ years, and today I had to sit down because my legs were shaking...

Read the title again. Good, yes it is unpredictable and I am not sure that eve...

•4 years ago

HOPE

Some days I lose hope when I’m frustrated, angry, sad, worried with whatever life throws at me and it’s not always due to MS. Then I look outside at the...

Some days I lose hope when I’m frustrated, angry, sad, worried with whatever lif...

•4 years ago

My last MRI cost quote... $350.00

I asked on Friday how much a head MRI costs these days, $350 United States dollars. I think push came to shove and with a bit of financial juggling this is...

I asked on Friday how much a head MRI costs these days, $350 United States dolla...

•4 years ago

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Sick of sick

Thank you everyone..sick again..the walkn only lasted 2 weeks..my wbc went sky high..the 2 root canals i guess he broke a piece of wire in tooth did nt tell...

Thank you everyone..sick again..the walkn only lasted 2 weeks..my wbc went sky h...

•4 years ago

What is that little burning spot on my foot on the inside right down from my bunion?

I developed a small area on my inside of my foot below my bunion about 5 years ago out of the blue. I have gout in that big toe, and my foot has become wider....

I developed a small area on my inside of my foot below my bunion about 5 years a...

•4 years ago

Fawn (Mule Deer)

“I see you and you see me”. This fawn pic I took recently on a trip in Prescott, AZ.

“I see you and you see me”. This fawn pic I took recently on a trip in Prescott,...

•4 years ago

Gallbladder Surgery

Has anyone had their gallbladder removed since having MS? I’m waiting for my gallbladder surgery to be scheduled ASAP as my Gastro Doc said. I’m getting a...

Has anyone had their gallbladder removed since having MS? I’m waiting for my gal...

•4 years ago

MRI yesterday 25 Jan 2020

WOW that went well, even the young lady putting in the ports for the contrast was gentle. Admittedly I did tell her that I am a total crybaby when it comes...

WOW that went well, even the young lady putting in the ports for the contrast wa...

•4 years ago

MRI Today 24 Jan 2020

Got my 2 tabs 5mg diazepam, got my 3 Tesla machine. The strongest commercial that I could find, ready to go. Bet I still have Relapsing-Remitting ms...

Got my 2 tabs 5mg diazepam, got my 3 Tesla machine. The strongest commercial t...

•4 years ago

Vaccines

Hello Does anyone get vaccinated? Re: Pneumococcal, Shingles? Have any side effects presented? Physician is suggesting I vaccinate however I’m hesitant....

Hello Does anyone get vaccinated? Re: Pneumococcal, Shingles? Have any side effe...

•4 years ago

Disability approved

I have been approved for social security and i am disabled. I hate saying that but i guess i really am. It took me a long time to realize i can never go back...

I have been approved for social security and i am disabled. I hate saying that b...

•4 years ago

I named my rollator.

My 4 year old great niece was here visiting this weekend and a friend told her I needed a name for my rollater. I asked her what I should name it. She thought...

My 4 year old great niece was here visiting this weekend and a friend told her I...

•4 years ago

MS Challenge

I am doing the 8 week MS Challenge exercise program . A free 8 week video exercise program that comes to your email every week. It is fabulous. Better than...

I am doing the 8 week MS Challenge exercise program . A free 8 week video exerc...

•4 years ago

Ocrevus-where are you??

I received my 2 half doses of ocrevus in July and August. I was due for my first full dose yesterday. I didn’t receive it because it was day four in the...

I received my 2 half doses of ocrevus in July and August. I was due for my first...

•4 years ago

Mini shawl

Made this for my fellas granddaughter she is 9 for her American girl doll

Made this for my fellas granddaughter she is 9 for her American girl doll

•4 years ago

My project

Made this for my great granddaughter

Made this for my great granddaughter

•4 years ago

What I do to relax

I just finished this today

I just finished this today

•4 years ago

Sore throat day 3

Sorry for the late post. I am feeling better the redness is much better and my glands are not as swollen. I am still taking it easy hydrating like crazy and I...

Sorry for the late post. I am feeling better the redness is much better and my g...

•4 years ago

How often do you see your doctor(s)?

I’m just curious. How often do you see your neurologist or your PCP?

I’m just curious. How often do you see your neurologist or your PCP?

•4 years ago

Washout period for Techfidera?

I am curious as I am going to see my Neuro in a few weeks and will most likely have to change my dmt cause my white blood cell numbers keep dropping and I am...

I am curious as I am going to see my Neuro in a few weeks and will most likely h...

•4 years ago

Hello, my name is MS

Hi, my name is MS and I'm an invisible chronic illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I...

Hi, my name is MS and I'm an invisible chronic illness. I am now velcroed to you...

•4 years ago

Big question to everyone. 70 on O ?

For a lot of you that have followed me have heard me mention my best friends wife Toni with her MS. She has been trying to do a brain 🧠 mri and cervical and...

For a lot of you that have followed me have heard me mention my best friends wif...

•4 years ago

My sore throat day 2

I feel terrible. My glands are not as swollen so that's a good thing. I been doing my best to respond to everyone that is reaching out to me. I have tried most...

I feel terrible. My glands are not as swollen so that's a good thing. I been doi...

•4 years ago

Gathering Wool

Jes Mc D asked what I have been doing. I don't do as much as I want. Or as I should. There is never enough time to finish what I start because everything takes...

Jes Mc D asked what I have been doing. I don't do as much as I want. Or as I sho...

•4 years ago

Clinical Trials

Have you done one? Are you in one? Are you interested in looking for one? Or interested in learning more about them? What are Clinical Trials? Clinical trials...

Have you done one? Are you in one? Are you interested in looking for one? Or int...

CommunityAmbassador•4 years ago

Symptoms of Autonomic and sensory neuropathy in MS?

New here wondering how many have neuropathy and muscle spasms? I was worked up by a neurologist to find out what diagnosis I have I have to wait another 5...

New here wondering how many have neuropathy and muscle spasms? I was worked up b...

•4 years ago

Very Inept Therapist!

When we moved to a Kansas it was very stressful. I have never talked about it here I believe, but I have bipolar disorder. About 8 years ago a therapist I saw...

When we moved to a Kansas it was very stressful. I have never talked about it he...

•4 years ago

Relapse

I just had my first relapse since being diagnosed 7 years ago. I had been taking Tecifedera, which I loved. No side effects, kept symptoms away. But my...

I just had my first relapse since being diagnosed 7 years ago. I had been taking...

•4 years ago

Update on my last post from yesterday

I went to see my pcp today I have a throat infection I will be on antibiotics for 10 days. The visit to the doctor was a mess I was told that I had to call my...

I went to see my pcp today I have a throat infection I will be on antibiotics fo...

•4 years ago

Unnumbered post STOP... think about this 23 Jan 2020

"YOU" are thinking aren't "YOU". "YOU" the person reading this are no more than the sum of your experiences and how "YOU" interpret those experiences....

"YOU" are thinking aren't "YOU". "YOU" the person reading this are no more than ...

•4 years ago

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